SAVE the DATES
As we approach the end of 2019 which seems to have gone by in a flash, it is only natural to start looking forward to 2020.
Two definite dates to save for us ITP folk are Saturday February 29th Rare Disease Day and Saturday May 9th for the ITP Support Association Annual Convention.
Both of these events are really wonderful opportunities for us to raise awareness for ITP and rare diseases as a whole. They also provide great occasions for us to learn from other people who are living with our rare illness and other such conditions too.
The ITP Support Association event will be in Central London and full details of how to reserve places, price of tickets and venue directions etc will be announced soon.
From attending the event a number of times in the past, I can confirm that it is something that I learned so much from and I cannot recommend it highly enough. The following link provides details released so far.....
itpsupport.org.uk/index.php...
In terms of the Rare Disease Day campaign, this is an annual initiative which focuses the attention of all of the various agencies, health professionals, pharmaceutical companies, researchers, politicians and decision makers on the realities of the daily struggles of rare disease sufferers.
Details of how you can get involved in the Rare Disease Day campaign are available at the following links ....
rarediseaseday.org/article/... rarediseaseday.org/article/...
So save the dates, it's 2020 and with hindsight you won't want to have missed out on two key events.
My ITP blog is also available to read at myownpurplepatch.simplesite.... I endeavour to do a blog update weekly as new ITP developments and stories come in.
