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Shingles and flu shots

sharroN42 profile image
23 Replies

Should ITP patients have flu and shingles vaccinations?

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sharroN42
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23 Replies
Kerryc profile image
Kerryc

I always have the flu shot. My platelets run between 40 and 60. Not sure about shingles.

sharroN42 profile image
sharroN42 in reply to Kerryc

Thanks Kerry

LifeafterITP profile image
LifeafterITP

Last year I had hepatitis A, typhoid, tetanus, diphtheria and polio vaccination on one day for a holiday to India and far east. I then had my flu vaccination a week later. There was no effect on my ITP.

sharroN42 profile image
sharroN42 in reply to LifeafterITP

Thanks LAITP

Heath21 profile image
Heath21

I always have flu shots but my haematologist advises against live vaccines like the shingles one. A shame since being exposed to shingles and chicken pox is a no no

sharroN42 profile image
sharroN42 in reply to Heath21

Thanks Heath

sharroN42 profile image
sharroN42 in reply to sharroN42

Heath,

I have been told that the new 2 shot shingles treatment is not live. I did have the first and all seems the same (many bruises) but I haven’t had my platelet count done for a while.

SurferDude profile image
SurferDude in reply to Heath21

What are your levels?

Heath21 profile image
Heath21 in reply to SurferDude

Levels weren’t spoken about, just whether vaccines are live or not. My platelets vary between 8 and 300 for no apparent reason!

sharroN42 profile image
sharroN42 in reply to SurferDude

My count has varied between 11 and 222; usually around 52 - 54. They were at 222 for knee surgery after an ivig but apparently I bled alot anyway.

Lynwoodley profile image
Lynwoodley

Hi I always have flu shots With no problems my platelets were always around 40

sharroN42 profile image
sharroN42 in reply to Lynwoodley

Thanks Lynwoodley

scaryteacher profile image
scaryteacher

I always have a flu jab. Have not had the shingles jab, but as I had shingles just under 4 years ago for my 50th birthday, it would be pointless having it now.

sharroN42 profile image
sharroN42

Thanks scaryteacher

linda64 profile image
linda64

my platelets are always around 50 i have shingles at moment but my gp has advised my to have shingles jab after its cleared up

sharroN42 profile image
sharroN42 in reply to linda64

Thanks Linda

AnthonyHeard profile image
AnthonyHeardAdministratorITP Support Association

Like most things ITP it is all a matter of each case on its' merits.

I wrote an article on my ITP blog about a month ago about the flu jab. Here is a link to the item.....

myownpurplepatch.simplesite...

If you scroll down to the item titled TO JAB or not TO JAB - THAT is the QUESTION

it gives an account of my experience of considering the flu jab and the same applies to the shingles jab too. (I actually did get shingles in 2009 due to steroid use for my ITP over a 5 year period)

More very useful information on vaccinations is available at.....

itpsupport.org.uk/index.php...

and

itpsupport.org.uk/index.php...

Hope that it helps.

sharroN42 profile image
sharroN42 in reply to AnthonyHeard

Thanks Anthony

vernmary profile image
vernmary

I was newly diagnosed in March of 2019. Placed on high doses of prednisone (100mg daily and tapered ) all happened in a 4 month period. I was told by my Hematologist not to get a flu shot because it might awaken a sleeping giant. So, no flu shot for me this year. I'm doing fine and went from 3 platelets at diagnosis (getting a platelet and steroid transfusion in the ER) to 278 nine months later. I am happy I found a hematologist who understands and treats ITP with good results.

vernmary profile image
vernmary

My hemotologist said NO. It might stir things up so this is the first year I have not had a flu shot. He has me at normal right now so he doesn't want to create a problem.

sharroN42 profile image
sharroN42

Thanks Vernmary

ASooner profile image
ASooner

My wife and I each got the second of 2 shingles vacinations yesterday just before noon. By 5:00pm we both felt weak and hurting all over. This morning we woke up exhausted and aching all over. We were in church on Sunday and the Cancer and Hematology Center on Monday and went grocery shopping/vacination yesterday. We could have picked up a bug at any of those places but the info sheet that we got with the shots list flu like symptoms. We never have had a problem with annual flu shots and nothing with the first new shingles shot in November. Makes you wonder was it the Chinese?

vernmary profile image
vernmary

Just remember it takes more than 3 day incubation period to get the flu, so it can't be a bug. Must be a reaction to your shots. My hemo doc said NO to both shots now that he had me at normal platelets.

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