Pains: Do anybody else get pains in... - ITP Support Assoc...

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Pains

Bluebuzz profile image
9 Replies

Do anybody else get pains in their joints and muscles of your legs when ye get fatigue and platelets are low?

Do any of ye guys think that a lack of sleep might have caused this illness along with stress?

I would like to know what your views are on this!!

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Bluebuzz profile image
Bluebuzz
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9 Replies
Topography52_- profile image
Topography52_-

Pains, ache's, fatigue,headaches, i think my platelets drop as i start bruising It is a vicious circle regarding sleep i find i am tired i go to bed and one of my particular symptoms seems to be shooting pains in my foot were I had my shingles a year ago I never wake up feeling refreshed when I think back to 12 months ago to how I feel I put it all down to itp my body has never been the same I have read stress can play a part I had a particular bad year with life events i got shingles itp fancied playing a part and changed everything : ) on a plus this forum fasinatinates me as I have mentioned one illness with so many different symptoms I feel if there was more research one particular symptom would stand out just a thought...... Bluebuzz sorry long winded reply lol :) : )

Bluebuzz profile image
Bluebuzz

No worries Topography52.. It is funny how people react in different ways. My ankles and feet begin to ache, then I notice the bruising after that, if I lean against anything with a edge on it, I will bruise. I know I'm about to start a cycle of feeling crap, tired, weak and pain for the next few weeks.. I bet been up and down now(mostly down) the last 6 weeks, I normally get more sick in the summer months!! I do think in the cold winter months in Ireland the harsh cold days kill off all of the nasty bugs in the air which help me from being sick. Can anybody else relate to this?

Topography52_- profile image
Topography52_- in reply to Bluebuzz

Hi Bluebuzz, feeling crap totally agree I am currently working full time when I get home I just crash and burn really is an unusual illness I found when I had a bacterial infection other week my platelets went up apparently only slightly but a plus I told my hematologist he said don't get to excited now I know dropped again bruises popping up : ( hey hey tomorrow is another day onwards upwards lol

Morgan profile image
Morgan

I get pain in my joints all the time now, used to be just winter, but not necessarily when platelets are low as its all the time now. I got better when I gave up work but I notice now I'm looking after a grandchild it is getting bad again. We probably need to rest more. Going through a rough time at the moment as I have hurt my foot (on a Health Walk!) and it is impacting on my other leg and hips, which will stop me walking much on holiday in 2 weeks.

Bluebuzz profile image
Bluebuzz in reply to Morgan

I hope you will be ok before your holidays Morgan.. I'm on holidays in France myself at the moment.. I'm so tired and I have really bad pains today. I had my bloods done just before I left which I got the results yesterday, my platelets had dropped down more than I had expected, the lowest they have ever been

Bluebuzz profile image
Bluebuzz in reply to Bluebuzz

Morgan did you have to walk alot in your job or stand for long periods of time before you retired??

Morgan profile image
Morgan in reply to Bluebuzz

No it was all computer based but working for 9 different council departments was stressful, and even though occupation health told them i needed more time to work because of the ITP they heaped on more work, so I quit and never regretted it (that was 2 yrs before retirement age, luckily we managed on my husband's wage)

Bluebuzz profile image
Bluebuzz in reply to Morgan

I'm glad you but yourself before work.. Fair play to you for doing that.. Stressful jobs are no no for the likes of us.. Hopefully I will find something else that I won't be stressed everyday.. Unfortunately for me I am not anyway near retirement yet, it's along time away as I'm only 38. I hope you are feeling good

Topography52_- profile image
Topography52_-

Yes , yes ,yes I completely agree with all of what you said above I am currently having investigation into other auto immune here we go again ..... Tell yourself I do daily it will get better it is just when : )

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