I went back to the Haemotologist for the second week yesterday since this last post:
healthunlocked.com/itpsuppo...
I'm happy to report that my count has been slowly going in the right direction, 24 last week then 34 this week which is a new high for me. While there is an increase they are happy to continue tapering off the prednisolone and not start any new drugs which works for me.
As for the prednisolone... I've so far had the following daily dose each week since the start
40mg, 80mg, 80mg, 80mg, 60mg, 50mg, 40mg
And I'm starting on 30mg this next week.
In the last two weeks since coming down to 50mg and 40mg I am SO HUNGRY, I didn't understand how hard it is not to eat, but I am still sticking to the specific carbohydrate diet, so it's just fruit, veg, etc otherwise the weight would be piling on at this point. I'm really looking forward to getting over the hunger stage though
Mike