Rehab feel confused

[Sonia1903]

My partner is currently sitting in a bed in a stroke ward after brain surgery for a cyst that burst ! so he is stable but can not walk due to being stuck in the bed and is waiting to get a bed in a special rehab hospital which could be ages. So my question is if he was discharged to home instead (a doctor did suggest this) what would happen physio wise etc ...

[razyheath43]

unless you get in touch with your local headway, or know for sure what community based home services there are,then who knows? i would check out what IS being offerd and see what you think.Another tip, do you both a favour and become his legal advocate best thing i did! for my hubby,take care and good luck

[Kirk5w7]

Hi, I was kept in hospital until a bed was available in rehab, about two weeks. We were told in our area, Oldham, the whole care in the home was really stretched and I could wait a long time, they wouldn't specify how long, for any physio or other help.

So I waited where I was, not really helpful because I was on a general ward and had been right from the start, no room for me on a neuro ward or stroke ward and initially it was considered too risky for me to be transferred to another hospital.

Luckily I recovered well, and I'm glad I waited for the rehab bed because once I left there for home, my care in the home was very patchy, by that time I could manage very well.

So, as already said to you check out just what is available in your area, I had to have my home checked before I was even allowed home for weekend visits to ensure I would be safe, and any handrails, banisters etc put in place.

Janet xx

[cat3]

As both Razy and Janet advise, phone the Headway helpline on monday and see if they can advise on resources in your area before you decide which option to take.

If facilities are sketchy and/or waiting lists are too long, your partner might be wise to hang on. His transfer might be processed sooner if beds are in short supply on the stroke ward where he is at present.

Helpline no :- 0808 800 2244 (office hours, mon-fri.) Cat x

[straydog]

Hi ,

if the hospital/ Dr are happy to discharge him home , I would expect a referral would go through to the community physiotherapist ‘s , occupational health and Salt ( speech and language team ) . It would all be discussed in the discharge planning meetings on the ward , which is where specialists , ie physio , salt etc , ward staff , ( nurse in charge of the particular bay he is in ) Dr”s , dieticians all sit around a table and discussing how each patient ‘s journey on the road to recovery is going . At least they did when I was a staff Nurse .

It may well be the hospital social workers can implement the power of attorney procedure for you as he has a significant health event .

I would ask the discharge planning sister / team , for the ward about the implications of having him discharged home . They may well be able to get him some further treatment/ appointments at the local rehab centre .

When I was discharged after my Tbi , my partner , community matron at the time , had to chase the discharge team to implement the primary care teams into action , but that was 7 years ago .

I hope this helps .

[Sonia1903]

Thanks guys/girls it just annoying as he seems to be stuck in a bed and getting worse physio every other day 🙄 then he’s left all day to day with out any anti sickness drugs as no doctor to give prescription .... I feel so helpless that I can’t do anything 😥

[rlipscombe]

I had a benign brain tumour removed just over 2 years ago and i went into a rehab unit following a spell in hospital. In terms of whether it was 'worth it' or not, there were pros and cons. In terms of positive things, i received various therapies 'speech & language, memory, physio' to name a few which was helpful i would say. On the negative side, it was quite a lonely existence if you like in that a lot of the time i was just on my own in my room. I was allowed visitors at set times but the rest of it was quite a lot of sitting around.

Overall, despite being away from my wife and young daughter i would say on balance it was worth it as i had the therapies whilst there. i did still receive these once i got home but these ended after a few months.

Not sure if this helps but thought i would offer my thoughts.