Posts - Functional Neurological Disorder - FND Hope | HealthUnlocked

Functional Neurological Disorder - FND Hope

5,689 members • 2,979 posts

All posts for January 2018

Non epileptic seizures

Hi all. Had my first appointment yesterday. I've collapsed 5 times in past week. have resigned from work as had been on sick leave since September....

Hi all. Had my first appointment yesterday. I've collapsed 5 times in past we...

•6 years ago

Good Morning!!!

Hi Everyone, How you all Doing? Have you been on our website www.fndhope.org and signed up for our Newsletter, Your be kept up to date with all the Fnd...

Hi Everyone, How you all Doing? Have you been on our website www.fndhope.org and...

•6 years ago

I have fnd and fibromyalgia

I have had fibromyalgia for nearly 5 years I got diagnosed fnd just 7 mouths ago I started not been able to walk stright as my gate was bent to one said and I...

I have had fibromyalgia for nearly 5 years I got diagnosed fnd just 7 mouths ago...

•6 years ago

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Feeling hopeless

Hi everyone iv had FND for 2 years my life has changed and feeling hopeless I was told it was a Functional stroke my left side of body is a mess along with...

Hi everyone iv had FND for 2 years my life has changed and feeling hopeless I wa...

•6 years ago

monday morning rant

upon having fnd for 12 years now to the point that i am now housrbound with no speech unable to walk very far , feeling like im constantly wired up to a car...

upon having fnd for 12 years now to the point that i am now housrbound with no s...

•6 years ago

WE NEED YOUR HELP

FND Hope UK NEEDS YOUR HELP We need 10,000 signatures for our petition called 'Improve Availability of NHS Services for FND Sufferers' by 12th March 2018 in...

FND Hope UK NEEDS YOUR HELP We need 10,000 signatures for our petition called 'I...

Moderator•6 years ago

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Robotic help with walking!

https://www.facebook.com/diplytech/videos/1094493440692258/ http://fortune.com/2016/03/11/parker-hannifin-robot-exoskeleton/ Just copy and paste this link -...

https://www.facebook.com/diplytech/videos/1094493440692258/ http://fortune.com/2...

•6 years ago

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Can FND be life threatening?

Hi everyone! My wife Kim has had Spams in her throat on 2 occasions. 2 years ago, and this morning. What happened this morning was that we was both in our...

Hi everyone! My wife Kim has had Spams in her throat on 2 occasions. 2 years a...

•6 years ago

Start of the Day

Yep, like I said Dr this is when my day starts - well actually I've had a whole 40 minute lie in. Took my meds at 10 pm, by midnight thought I'd try to sleep...

Yep, like I said Dr this is when my day starts - well actually I've had a whole ...

FND Hope UK•6 years ago

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Still kicking on

Just a quick hello been awhile since I last post thought 💭 I would post today . So it's summer here in oz and bam 💥 as usually I kick into relapse mode all...

Just a quick hello been awhile since I last post thought 💭 I would post today ....

•6 years ago

Causes of FND - Trauma by medicine conflict

Hi everyone. I hope that you are all well and thriving. Please could I ask for some help in with research into causal factors of FND? In Nov 16...

Hi everyone. I hope that you are all well and thriving. Please could I ask for s...

•6 years ago

Topamax

Hi, i started this medication yesterday can anyone give me any advice or how it worked for you or didnt?

Hi, i started this medication yesterday can anyone give me any advice or how it ...

Unknownerror404

•6 years ago

Save the Date - International FND Awareness Day

April 13th 2018 International FND Awareness Day Our Theme #LetsTalkFND How will you start your FND conversation? Want to fundraise, complete our Event Form...

April 13th 2018 International FND Awareness Day Our Theme #LetsTalkFND How wil...

Moderator•6 years ago

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Coping with a whole host of problems …

Good Morning I hope you’re all well and please let me know if this is the wrong forum for posting my question. I am a male and approaching 50 years of age. I...

Good Morning I hope you’re all well and please let me know if this is the wrong ...

•6 years ago

New doctor more useless comments

Went to my GP today to have a med review after the pain clinic suggested an increase in my pregabalin due to working now and being left in agony at end of......

Went to my GP today to have a med review after the pain clinic suggested an incr...

andyglasgow2016

•6 years ago

Not diagnosed

I’ve written here in the past. Though the specialist didn’t formally diagnose this for me, he suggested that it could be the case. He didn’t want to worry me...

I’ve written here in the past. Though the specialist didn’t formally diagnose th...

•6 years ago

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FND and immunity

Hi Has anyone else found that their immunity is bad during an attack? Since November I have had 3 chest infections, 2 bouts of sinusitis and now tonsillitis....

Hi Has anyone else found that their immunity is bad during an attack? Since Nov...

shirleysgirl2016

•6 years ago

Chucked off the Edinburgh Tram

Hi Peeps Yes you read my post title right. I have a National Entitlement Card because I cannot drive with my FND symptoms which include daily whole body...

Hi Peeps Yes you read my post title right. I have a National Entitlement Card b...

FND Hope UK•6 years ago

confused

hi. I'm new here as I have been diagnosed today with FND. if I'm being honest, I don't really know what to think. I don't feel like anything was really...

hi. I'm new here as I have been diagnosed today with FND. if I'm being honest, I...

shirleysgirl2016

•6 years ago

Looking for the Cowgirl Photo

Hi Someone posted a black and white photo/poster of a cowgirl sitting on a bale of straw looking downbeat but with a statement about not being defeated. Could...

Hi Someone posted a black and white photo/poster of a cowgirl sitting on a bale ...

FND Hope UK•6 years ago

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Natural birth and Pregnancy with FND

Hey all Not sure if this has been answered before but from looking there arnt many comment of those whom have or are currently pregnant with FND. I am. I have...

Hey all Not sure if this has been answered before but from looking there arnt ma...

•6 years ago

Medication reaction?

Does anyone notice an increase in jerking/tremors when they take certain medications? For me, if i take Tramadol and/or Neurontin (for disk issues in my...

Does anyone notice an increase in jerking/tremors when they take certain medicat...

•6 years ago

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