Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,463 members • 66,507 posts

All posts for April 2024

Hybrid Working Advice

hello I’ve been off with a major flare since November and am planning to return to work next week My GP and OHS have both recommended hybrid working as I...

hello I’ve been off with a major flare since November and am planning to return ...

kikimouse17

•3 hours ago

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Hypermobility

Thank you for accepting me on to your forum. My daughter has just been diagnosed with Hypermobility at 20. She has been offered physio and is coping well...

Thank you for accepting me on to your forum. My daughter has just been diagnos...

tamccart

•10 hours ago

8 Replies

Never ending flare

I seem to be getting worse and having no good days😢.Any advice anyone ? I'm doing physio every morning. I'm eating less, but the burning skin spread today -...

I seem to be getting worse and having no good days😢.Any advice anyone ? I'm doi...

Smilesalot

•1 day ago

25 Replies

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Spondylolithesis

Hi has anyone got or had Spondilolisthesis this pain is so bad I'm waiting on an operation but need to loose weight ( on crutches) so I've no chance can anyone...

Hi has anyone got or had Spondilolisthesis this pain is so bad I'm waiting on an...

Djemima

•1 day ago

4 Replies

Ear pain

Hello, I keep getting ear pain both sides. I have just been seen at ENT . He was more concerned about my snoring and is sending me for tests for sleep apnoea....

Hello, I keep getting ear pain both sides. I have just been seen at ENT . He was...

Fatball

•1 day ago

10 Replies

Newly diagnosed

I am new to this group. I have Giant Cell Arteritis, Polymyalgia Rheumatica, Hashimoto’s, IBS, Intestitial Cystitis and Reynaud’s. A year ago I had a heart...

I am new to this group. I have Giant Cell Arteritis, Polymyalgia Rheumatica, Has...

Miacaro45

•1 day ago

6 Replies

Tummy cramps

Hi all Do any of you have bad tummy cramps to do with IBS (I hope) if so how do you ease it, paracetamol and hot water bottle haven't worked .... 🦋

Hi all Do any of you have bad tummy cramps to do with IBS (I hope) if so how do ...

Sleepyhead_

•2 days ago

11 Replies

Pregabalin advice

My first time on this forum so firstly hi 👋 I’m hoping someone can give me some help regarding pregabalin - and please don’t worry I understand that people...

My first time on this forum so firstly hi 👋 I’m hoping someone can give me s...

Mifford

•2 days ago

25 Replies

Newbee

Hello 👋 Just joined this group & am newly diagnosed with fibromyralgia. Does anyone have any suggestions for hypersensitivity to smells & managing when...

Hello 👋 Just joined this group & am newly diagnosed with fibromyralgia. Does a...

Dreamgreen

•2 days ago

2 Replies

Hi, Long Time Lurker

Hi, I'm saxcat, I'm 58. I have Fibromyalgia, diagnosed around 8 years ago, but have had symptoms since in my 20's. Long term mental health - Depression,...

Hi, I'm saxcat, I'm 58. I have Fibromyalgia, diagnosed around 8 years ago, but...

saxcat

•2 days ago

35 Replies

Getting Diangnosed

Hi everyone,Even though my GP agrees I have all the relevant symptoms of fibromyalgia, he point blank refuses to diagnose me as suffering from it. Any ideas...

Hi everyone,Even though my GP agrees I have all the relevant symptoms of fibromy...

Jer1cha

•3 days ago

4 Replies

Red lumps on hands

Hi, Since I've started having issues with my joints (had two hip replacements at 25, arthritis in my lower lumbar spine & sacralratic joint etc) I've had these...

Hi, Since I've started having issues with my joints (had two hip replacements at...

YoungAndPainful

•3 days ago

5 Replies

Fibromyalgia

Hi all you warriors. Can I just ask a question If fibromyalgia classed as a disability?

Hi all you warriors. Can I just ask a question If fibromyalgia classed as a dis...

Tommygurl

•3 days ago

5 Replies

how do we know?

hi! I’m 66, have had a bad back for 20 years or more with other painful symptoms : swollen tight hands feet, shoulders , that burn possibly waking me up in...

hi! I’m 66, have had a bad back for 20 years or more with other painful symptoms...

Eggcustard12

•3 days ago

8 Replies

PIP ASSESSMENT

Had my pip re-assessment over the phone yesterday. A nurse did it and she was really nice and put me at ease. She didn't ask questions that weren't reasonable...

Had my pip re-assessment over the phone yesterday. A nurse did it and she was re...

vikki123456

•4 days ago

7 Replies

Swollen stomach

Hi I have bad fibromylaga 1 suffer with bad stomach problems swollen abdoman. And breathlessness does any one else suffer please

Hi I have bad fibromylaga 1 suffer with bad stomach problems swollen abdoman...

shazzafloyd

•4 days ago

16 Replies

Hugs 🤗

Hugs to all who need them😍🤗🤗🤗🤗🤗🤗🤗🤗🤗😃😄😊😇😇😇😇😇😇😇😇😂😂😂😂😂😂😀😊😁I think we all need them 😍🤗Dawn 🤗🤗🤗🤗🤗😘

Hugs to all who need them😍🤗🤗🤗🤗🤗🤗🤗🤗🤗😃😄😊😇😇😇😇😇😇😇😇😂😂😂😂😂😂�...

Smilesalot

•5 days ago

18 Replies

Fatigue and feeling down

Hi everyone, I hope you are okay, just wanted to say im feeling fatigued this week, dont know why, it gets me down and it makes me feel teary and like an 80...

Hi everyone, I hope you are okay, just wanted to say im feeling fatigued this we...

fibrogirl41

•6 days ago

18 Replies

blue badge renewal

When your Blue badge comes up for renewal do you have to reapply all over again and go for an interview.

When your Blue badge comes up for renewal do you have to reapply all over again ...

Patdoyle

•6 days ago

10 Replies

Our nervous system

Yup I get this

Tommygurl

•7 days ago

1 Reply

Pip review

Hi still awaiting my PIP review which ends June 2024 they have had all the paperwork since last July 2023. Had a letter to say payments will go up on 8th...

Hi still awaiting my PIP review which ends June 2024 they have had all the paper...

Debbiedo2

•7 days ago

10 Replies

I don’t have fibromyalgia ( I am so sorry you do) but yes my blood pressure medicine Clonidine makes me shake (my insides shake) .it’s awful

check the side effects of your medicine ( all of them) perhaps your doctor can switch you to something else with less side effects 🙏I’ll pray for you. I can...

check the side effects of your medicine ( all of them) perhaps your doctor can s...

Skylane2

•7 days ago

1 Reply

Shaking

Does anyone feel like they shake on the inside? My legs randomly start shaking when I am sitting.

Does anyone feel like they shake on the inside? My legs randomly start shakin...

Laupecyndi

•8 days ago

10 Replies

Pip telephone assessment

HiFirst time poster here. I have a multitude of condition, emphysema, lower back nerve compression ( a result of dystectomy surgery now build up of scar...

HiFirst time poster here. I have a multitude of condition, emphysema, lower back...

Jaxm66

•8 days ago

11 Replies

Well done Katrina!

This is a little (late night/early morning) post to say well done to Katrina for her C5 interview last night on "Long Term Sick Leave" and your struggle with...

This is a little (late night/early morning) post to say well done to Katrina for...

Uellow22

•9 days ago

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Lady Julia

Hi there I was diagnosed with osteoarthritis and fibromyalgia 7years ago. I live alone with no support. Am finding it hard to cope at the moment with the...

Hi there I was diagnosed with osteoarthritis and fibromyalgia 7years ago. I live...

ladyjulia

•9 days ago

10 Replies

eight weeks on LDN update

So eight weeks ago, I posted that I started taking low-dose naltrexone. Fatigue greatly reduced brain fog greatly reduced it’s too early to reduce pain...

So eight weeks ago, I posted that I started taking low-dose naltrexone. Fatigue...

Astonvilla68

•9 days ago

13 Replies

New diagnosis

I was just diagnosed with fibromyalgia. Four years ago, I was diagnosed with Giant Cell Arteritis and, about 2 years later, Polymyalgia Rheumatica. My life...

I was just diagnosed with fibromyalgia. Four years ago, I was diagnosed with Gia...

Miacaro45

•9 days ago

7 Replies

Anxiety/ brain fog

I feel I want to get back to work but the anxiety gets worse when there's any pressure. My friends feel it will.help to go back and wase myself back in to a...

I feel I want to get back to work but the anxiety gets worse when there's any pr...

Laupecyndi

•10 days ago

25 Replies

E45 to stop itching

I can't remember when but a lady on here was asking about something to stop itching to the whole body.After some nosing I found an E45 with a mild oh god brain...

I can't remember when but a lady on here was asking about something to stop itch...

Smilesalot

•10 days ago

7 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for April 2024

Hybrid Working Advice

Hypermobility

Never ending flare

Spondylolithesis

Ear pain

Newly diagnosed

Tummy cramps

Pregabalin advice

Newbee

Hi, Long Time Lurker

Getting Diangnosed

Red lumps on hands

Fibromyalgia

how do we know?

PIP ASSESSMENT

Swollen stomach

Hugs 🤗

Fatigue and feeling down

blue badge renewal

Our nervous system

Pip review

I don’t have fibromyalgia ( I am so sorry you do) but yes my blood pressure medicine Clonidine makes me shake (my insides shake) .it’s awful

Shaking

Pip telephone assessment

Well done Katrina!

Lady Julia

eight weeks on LDN update

New diagnosis

Anxiety/ brain fog

E45 to stop itching

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