Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,469 members • 66,515 posts

All posts for March 2024

Sore bones

Are anyone else's bones sore to the touch with fibromyalgia, the bones along top of shoulders where a lot of my pain is feel sore also in certain areas down my...

Are anyone else's bones sore to the touch with fibromyalgia, the bones along top...

Acdf

•2 months ago

7 Replies

LDN my story

hello. This is just my own personal experience. I have taken over the years so many different drugs for fibromyalgia. None of them have worked and have just...

hello. This is just my own personal experience. I have taken over the years so ...

Astonvilla68

•2 months ago

12 Replies

Advice on pain relief

Hi, my name is Bev & I'm a newbie. After what seems like a lifetime l have finally been referred to the rheumatology clinic for a diagnosis which may or may...

Hi, my name is Bev & I'm a newbie. After what seems like a lifetime l have fina...

Diy2

•2 months ago

12 Replies

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Pain pills

So. IV had fibromyalgia since Oct 2021 after an accident at work left me with it,took forever to diagnose blah blah. At that time I was already long awaiting a...

So. IV had fibromyalgia since Oct 2021 after an accident at work left me with it...

Cazza2243

•2 months ago

3 Replies

Stomach pain

Hi all I've been struggling with stomach pain last few weeks which is really annoying and debilitating. It's under bra area or I'm guessing that's diaphragm...

Hi all I've been struggling with stomach pain last few weeks which is really ann...

Seascapes31

•2 months ago

15 Replies

Just come across this ...

Am afraid to say this is us x

Tommygurl

•2 months ago

33 Replies

ADP appeal

Has anyone had a redetermanation with the Scottish ADP I got no mobility and I have a broken back so trying to appeal if anyone can help please

Has anyone had a redetermanation with the Scottish ADP I got no mobility and I h...

Djemima

•2 months ago

3 Replies

lost health unlocked?

I don’t know what happened but I stopped receiving daily emails , then couldn’t get back on here - like I’d been logged out !! Thought I’d been deleted?! Has...

I don’t know what happened but I stopped receiving daily emails , then couldn’t ...

Applespearspeaches

•2 months ago

2 Replies

In need of some help/suggestions please

Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall.I don't...

Hi, this is my first time back on the forum after a few years break just bimblin...

Wispymisty

•2 months ago

15 Replies

support groups/meetings

good morning , hope all are as well as can be, I’m wondering if anyone knows of any support groups coffee mornings ect for people with fibro and other chronic...

good morning , hope all are as well as can be, I’m wondering if anyone knows of...

Nevercansleep

•2 months ago

1 Reply

Gabapentin

I'm finding that Gabapentin helps a little bit with pain in the morning. Is this right ?However my mood is considerably lower. ? And I still can't sleep meh....

I'm finding that Gabapentin helps a little bit with pain in the morning. Is this...

Smilesalot

•2 months ago

90 Replies

looking for possible calming methods and to talk to somebody

Just feeling scared and lonely Just got diagnosed with fibromyalgia arthritis in my back schmorls node metabolic syndrome degenerative disk disease restless...

Just feeling scared and lonely Just got diagnosed with fibromyalgia arthritis in...

Doglover2121

•2 months ago

5 Replies

Lonliness

How do some of you cope with lonliness, I personally struggle at times but find many many distractions help with this.I do go out of my comfort zone...

How do some of you cope with lonliness, I personally struggle at times but find ...

Sleepyhead_

•2 months ago

4 Replies

clubs

hi does any one no of fibro clubs in marborough wiltshire are in 2024 to meet up

hi does any one no of fibro clubs in marborough wiltshire are in 2024 to meet up...

Ribes

•2 months ago

1 Reply

Certain smells

Is anyone else effected by certain smells ?Mine are .. Red wine Strong perfumes Burning wood Fresh-cut grass Weed If I get a smell of any of the above ,...

Is anyone else effected by certain smells ?Mine are .. Red wine Strong perfumes...

Tommygurl

•2 months ago

20 Replies

Pain management change of meds.

Hi there , after a recent visit with a pain management doctor I have been ask the try some new medication called Celecoxib instead of Naproxen has anyone else...

Hi there , after a recent visit with a pain management doctor I have been ask t...

Rob172

•2 months ago

12 Replies

Post Nasal Drip driving me mad!!

Since Christmas I have had the flu, a stomach bug and have just got over a bad cold. Unfortunately, since then I have had constant post nasal drip down the...

Since Christmas I have had the flu, a stomach bug and have just got over a bad c...

caico

•2 months ago

21 Replies

Poetry

Anyone also have bad depression? Writing poetry helps me - what do you do?

Sleepyhead_

•2 months ago

13 Replies

My Experience

I did not have a good experience with this medication. I felt dizzy , had dry mouth , severe constipation. My dr kept saying “you gotta give it time to work “,...

I did not have a good experience with this medication. I felt dizzy , had dry mo...

ashimahimsa

•2 months ago

3 Replies

pip for fibromyalgia

has anyone been successful in getting pip for for fibromyalgia? I have this also arthritis in both knees I work 32hrs a week and do take a lot of medication...

has anyone been successful in getting pip for for fibromyalgia? I have this als...

abichesh101

•2 months ago

18 Replies

Hugs to all

Thank you 😊 everybody for all your support😀😊😍To all of you suffering hugs🤗🤗🤗 to all that are getting by hugs😉. I've been cheered up by you all😀 My...

Thank you 😊 everybody for all your support😀😊😍To all of you suffering hugs🤗�...

Smilesalot

•2 months ago

7 Replies

Fibro or B12 deficiency??

Hi All I just wanted to share this link which feature Dr Chandy talking about B12 deficiency. I am in both the fibromyalgia group and the one for pernicious...

Hi All I just wanted to share this link which feature Dr Chandy talking about ...

Blueoxo

•3 months ago

17 Replies

PIP change of circumstances

Hi everyone, I was awarded basic PIP for both daily activities and mobility. I’ve now become worse with symptoms and mobility and have now acquired severe...

Hi everyone, I was awarded basic PIP for both daily activities and mobility. ...

Onedaymore1

•3 months ago

10 Replies

Feeling down today😶

Hi all hope I find you well🤗🤗😇😍.I've been waking exhausted . I'm so tired and keep dozing off. I'm too tired to cry again and pain is draining me. I have a...

Hi all hope I find you well🤗🤗😇😍.I've been waking exhausted . I'm so tired an...

Smilesalot

•3 months ago

29 Replies

Julie s

sometimes I wake up but can’t move straight away Sometimes can open eyes but a few times I have wet myself too only a small amount but I tryed wearing a pad...

sometimes I wake up but can’t move straight away Sometimes can open eyes but ...

Pinky768

•3 months ago

11 Replies

Abdomen and groin pain

In November I started with pain in my abdomen and groin .I thought it was a water infection results came back negative. I play everything down as I had no...

In November I started with pain in my abdomen and groin .I thought it was a wate...

Tommygurl

•3 months ago

3 Replies

Claiming PIP

Can I ask a question?I work 5 days a week 5 to 6 hours a day I am struggling so much with work, life and fibromyalgia I can't afford to go on the sick . A...

Can I ask a question?I work 5 days a week 5 to 6 hours a day I am struggling so ...

Tommygurl

•3 months ago

21 Replies

Do you just get forgotten about

Hi all, only been suffering with fibro a couple of years got diagnosed last November. Like everyone else still suffering some days I don't think I can go one....

Hi all, only been suffering with fibro a couple of years got diagnosed last Nove...

Slimjohn

•3 months ago

32 Replies

Confused

Still not diagnosed was initially put on naproxen but still pain persisted , both doctor and I then assumed I had polymyalgia so he tried me on predisnolone...

Still not diagnosed was initially put on naproxen but still pain persisted , bot...

Fatgrandad

•3 months ago

17 Replies

spasms and twitches

I often get arm and leg spasms, but a few months ago, I had the strangest of "attacks". I can only describe it as "electric spasms"...everything twitches, I...

I often get arm and leg spasms, but a few months ago, I had the strangest of "at...

Geriinaz

•3 months ago

10 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for March 2024

Sore bones

LDN my story

Advice on pain relief

Pain pills

Stomach pain

Just come across this ...

ADP appeal

lost health unlocked?

In need of some help/suggestions please

support groups/meetings

Gabapentin

looking for possible calming methods and to talk to somebody

Lonliness

clubs

Certain smells

Pain management change of meds.

Post Nasal Drip driving me mad!!

Poetry

My Experience

pip for fibromyalgia

Hugs to all

Fibro or B12 deficiency??

PIP change of circumstances

Feeling down today😶

Julie s

Abdomen and groin pain

Claiming PIP

Do you just get forgotten about

Confused

spasms and twitches

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