Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,469 members • 66,515 posts

All posts for March 2023

Frustrated

I had an appointment with a Rheumatology Doctor 2 weeks ago and although the appointment was good and thorough it's opened up a whole lot of new problems. In...

I had an appointment with a Rheumatology Doctor 2 weeks ago and although the app...

Billyboy2216

•1 year ago

5 Replies

Treatment

HiI have just finally been given a diagnosis of fibromyalgia by a rheumatologist after 3 years of pain and fatigue. I just wanted to know what treatment...

HiI have just finally been given a diagnosis of fibromyalgia by a rheumatologist...

Gowest123

•1 year ago

11 Replies

long covid

My fibro had a flare that got a lot worse and stayed after I had covid in Dec 2021, and I now think this is a comorbidity esp as the symptoms overlap with...

My fibro had a flare that got a lot worse and stayed after I had covid in Dec 20...

DavidCB

•1 year ago

7 Replies

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Fibromyalgia causing breathlessness?

I had covid pneumonia in 2021 and suffer with long covid. But since getting covid my fibromyalgia flare ups are alot worse.I have breathlessness and chest pain...

I had covid pneumonia in 2021 and suffer with long covid. But since getting covi...

eightieslass

•1 year ago

5 Replies

Fibromyalgia

Hi can i please ask doe's anyone go to toilet alot ( weeing) i am constantly up and down day and night i was wondering with fibro do anyone else suffer...

Hi can i please ask doe's anyone go to toilet alot ( weeing) i am constantly up ...

Shartaylor0264

•1 year ago

28 Replies

Move or Stay Put?

Hiya everyone, and thank you for all replies to my previous post.I saw specialist physio recently it transpires that around S1 area of my spine(?) the disc is...

Hiya everyone, and thank you for all replies to my previous post.I saw speciali...

Seascapes31

•1 year ago

12 Replies

Initial consultation

Hi everyone, I have my first consultation with the Rheumatologist on Thursday. What can I expect from this? Will they be doing any tests or is it more of a...

Hi everyone, I have my first consultation with the Rheumatologist on Thursday. W...

BakerMam

•1 year ago

10 Replies

Changes

Just like say thank you too everyone who reply my post changes really appreciate you all and I'm so sorry for everyone one you that understand what I'm going...

Just like say thank you too everyone who reply my post changes really appreciate...

Kel6

•1 year ago

4 Replies

Attendance allowance

Hi This is my first time of posting. I have had Fibro for over 20 years but have managed to cope so far. In the last year I have found that I am struggling in...

Hi This is my first time of posting. I have had Fibro for over 20 years but hav...

daisue

•1 year ago

8 Replies

Thankyou

Thankyou all for your replies I only asked as this all new to me I'm in a council property I don't have anyone who can help support me in way of advice being...

Thankyou all for your replies I only asked as this all new to me I'm in a counci...

Miss1234

•1 year ago

2 Replies

Not sure what to do about work

Morning all. So I was diagnosed with Fibro around 2 years ago but as time has gone on I actually believe my symptoms to be closer to ME/CFS. Either way the...

Morning all. So I was diagnosed with Fibro around 2 years ago but as time has ...

KiciaDoll

•1 year ago

41 Replies

Vit d or fibromyalgia?

Hello, I'm new here. I'll try put this short. Since December 2022 I have had hand ache, which spread up my arm in January 2023. Went to Dr in February as it...

Hello, I'm new here. I'll try put this short. Since December 2022 I have had han...

Sebbybabybucky

•1 year ago

14 Replies

Job loss

Hi I have reached the point now that I may soon be asked to leave my job due to medical grounds and the liability I pose to myself and others whilst in my...

Hi I have reached the point now that I may soon be asked to leave my job due to ...

Mystique23

•1 year ago

13 Replies

Changes

Hi morning everyone hope all is good I'm really sorry for your pain I'm in so much pain my legs there clicking all the time in my knee and my hips big clicks...

Hi morning everyone hope all is good I'm really sorry for your pain I'm in so mu...

Kel6

•1 year ago

3 Replies

budget disabled pip change

Hi 👋 I am worried about the new changes about the Pip ? The new assessments as they government change these the system yet again :( I get so stressed...

Hi 👋 I am worried about the new changes about the Pip ? The new assessments ...

Scoo1961

•1 year ago

20 Replies

A total inspiration - in very difficult fibromyalgia circumstances!!

I literally HAVE to tell you all about this podcast, it was passed onto me through my glass-making network, so there's no gain for me, other than hoping it...

I literally HAVE to tell you all about this podcast, it was passed onto me throu...

Timmer79

•1 year ago

3 Replies

assessor lied in my pip report

hi everyone just to say for anyone having future pip assessments please ask for it to be recorded. I don’t cook at all !! I said only microwave meals and in...

hi everyone just to say for anyone having future pip assessments please ask for ...

Lh1979

•1 year ago

86 Replies

fibromyalgia diagnosed - how effective is 10mg amitriptyline iin managing symptoms?

I have been diagnosed with fibromyalgia and prescribed 10mg amitriptyline. Does anyone have experience of how effective thisfor managing the symptoms? Am I...

I have been diagnosed with fibromyalgia and prescribed 10mg amitriptyline. Does...

Ivyamanda

•1 year ago

40 Replies

Pins & Needles in Face

Hi, was diagnosed with Fibromyalgia last year. Been getting pins & needles in the right side of my face & numbness, a bit like when you’ve been to the dentist...

Hi, was diagnosed with Fibromyalgia last year. Been getting pins & needles in th...

Faxgirl

•1 year ago

11 Replies

Adult disability Scotland

Hi am from Scotland and we no longer have PIP its now called adult disability Scotland and I applied for the back in November and I they received all my...

Hi am from Scotland and we no longer have PIP its now called adult disability Sc...

Fmcr

•1 year ago

18 Replies

Retirement due to ill health.

I have fibromyalgia and also suffer from anxiety. I have been out of work since the end of December and have recently applied for ill health retirement As I...

I have fibromyalgia and also suffer from anxiety. I have been out of work since...

Elifant

•1 year ago

24 Replies

Brother’s passing away

it is with great devastation and heartbreak that my 65 yo brother passed on Monday 13/3/23. He was released from his 10th hospital admit in recent weeks and...

it is with great devastation and heartbreak that my 65 yo brother passed on Mond...

honeybug

•1 year ago

34 Replies

new style ESA payment April 2023

Hi Does anyone knows what will be the new payment for esa support group this April? Currently I think it is £117 per week. Thank you

Hi Does anyone knows what will be the new payment for esa support group this ...

NLBC

•1 year ago

4 Replies

PIP tribunal outcome

Hi everyone & hope all are doing as well as they can be :) A few months ago I asked on here for advice following a rejection for PIP from the DWP & I then put...

Hi everyone & hope all are doing as well as they can be :) A few months ago I as...

Essexgal118

•1 year ago

6 Replies

tablets fibro

anyone struggling at momnt with fibro flares I still can’t seem to shake it of drs put me back on duloxatine the side affects are Terrible with pregablin as...

anyone struggling at momnt with fibro flares I still can’t seem to shake it of d...

Annya34

•1 year ago

15 Replies

Shoulder pain

Hi I was diagnosed with fibromyalgia last year and I am on medication that helps my mental health and torso pain but my shoulders and knees are still very...

Hi I was diagnosed with fibromyalgia last year and I am on medication that hel...

Banditthecat

•1 year ago

14 Replies

TRAMADOL

I'm asking my GP to take me off Pregabalin as A) it doesn't really work even though it has been increased again and B) horrendous weight gain. 2 stone weight...

I'm asking my GP to take me off Pregabalin as A) it doesn't really work even tho...

golly123

•1 year ago

31 Replies

Massage for Fibromyalgia

Has anyone found that massage is helpful with Fibromyalgia and if so what type of massage is most beneficial?

Has anyone found that massage is helpful with Fibromyalgia and if so what type o...

Jomaur

•1 year ago

26 Replies

working with fibro

thanks so much for all of your replies. I have decided not to let this illness beat me completely. I am going to cut my hours down and go part time maybe 2...

thanks so much for all of your replies. I have decided not to let this illness b...

Kazzza1976

•1 year ago

10 Replies

Medical gaslighting and problems accessing help through NHS

Hi there, Are any of you experiencing medical gaslighting or experiencing difficulty in receiving basic treatment from the NHS? I would be very interested to...

Hi there, Are any of you experiencing medical gaslighting or experiencing diffi...

Alecinthesun

•1 year ago

11 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for March 2023

Frustrated

Treatment

long covid

Fibromyalgia causing breathlessness?

Fibromyalgia

Move or Stay Put?

Initial consultation

Changes

Attendance allowance

Thankyou

Not sure what to do about work

Vit d or fibromyalgia?

Job loss

Changes

budget disabled pip change

A total inspiration - in very difficult fibromyalgia circumstances!!

assessor lied in my pip report

fibromyalgia diagnosed - how effective is 10mg amitriptyline iin managing symptoms?

Pins & Needles in Face

Adult disability Scotland

Retirement due to ill health.

Brother’s passing away

new style ESA payment April 2023

PIP tribunal outcome

tablets fibro

Shoulder pain

TRAMADOL

Massage for Fibromyalgia

working with fibro

Medical gaslighting and problems accessing help through NHS

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