Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,451 members • 66,497 posts

All posts for February 2023

Gram’s Girl

I am new to this site. I was diagnosed with Fibromyalgia in 2014 and have been on many different medications. Nothing worked. If I stooped down to get...

I am new to this site. I was diagnosed with Fibromyalgia in 2014 and have been ...

3741-Sun

•1 year ago

3 Replies

In the words of Columbo - "just one more thing…”

I've been diagnosed with fibromyalgia for only the last 15 months. Although battling chronic fatigue, muscle spasms, painful joints, sporadic pain from head...

I've been diagnosed with fibromyalgia for only the last 15 months. Although batt...

Gulfstream_Maggie

•1 year ago

4 Replies

Newsletter will go out tomorrow

Newsletter will go out tomorrow & contains an exclusive limited offer on a awareness value pack with americano cup, tote bag, bade and band. Limited to UK and...

Newsletter will go out tomorrow & contains an exclusive limited offer on a aware...

desquinn

Partner•1 year ago

1 Reply

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Nonononoooooo

I have no clue what my body thinks it doing. Just when I thought I may be getting a break,??? It seems I have been in a constant fibro hell for the last...

I have no clue what my body thinks it doing. Just when I thought I may be getti...

Debsdelight72

•1 year ago

2 Replies

fibromyalgia

hi all. Does anybody get pins and needles in hands. I get it in my hands and at the top of my head. Like someone is putting pressure on my head. My gp has...

hi all. Does anybody get pins and needles in hands. I get it in my hands and at ...

Kazzza1976

•1 year ago

14 Replies

No energy and motivation

I have Fibromyalgia, Hashimotos,Litchen Sclerosis. I take morphine, cocodamal and amitryptaline 30mg in the evening for nerve spasms. I spend most of my...

I have Fibromyalgia, Hashimotos,Litchen Sclerosis. I take morphine, cocodamal...

usbrit

•1 year ago

21 Replies

cure for chron’s

hi Has any had chron’s diagnosis for over 20 years to be told they no longer have it. Not that it’s in remission. thank u.

hi Has any had chron’s diagnosis for over 20 years to be told they no longer ha...

BARTLETT1965

•1 year ago

4 Replies

Fibromyalgia and bottom bleeding

Hi to all my fellow warriors I’m not going to cry and give myself a pity party but I do feel that this ugly condition has robbed me of my life, of who I used...

Hi to all my fellow warriors I’m not going to cry and give myself a pity party b...

Ebonybaby

•1 year ago

14 Replies

Sciatica pain

I've had unbearable sciatica pain on top of my fibro, all down left leg, I'm using an elbow crutch to help me walk but also waiting to see specialist physio...

I've had unbearable sciatica pain on top of my fibro, all down left leg, I'm usi...

Seascapes31

•1 year ago

24 Replies

Lifes Goodish

After 3 weekd of hell on earth with pain and now more medical issues I have had a good enough day to wear my heels again, even if im stafrting to feel it. Hope...

After 3 weekd of hell on earth with pain and now more medical issues I have had ...

Ellie1991

•1 year ago

5 Replies

Fibro v Gabapentin v Pregabalin v Duloxetine or just a whole new way of approaching it.

Hello all. I hope today finds you all coping one way or another😀 Now having posted a few weeks back about severe stiffness & fibro and having many of you...

Hello all. I hope today finds you all coping one way or another😀 Now having...

catcalling

•1 year ago

23 Replies

Any experiences of >90mg doses of Amitriptyline for fibro pain?

Hi everyone. Thanks for taking the time to read my post. I suffer with a number of painful conditions: fibro, erythromelalgia, PoTS and haven recently been...

Hi everyone. Thanks for taking the time to read my post. I suffer with a number ...

Winter_night

•1 year ago

20 Replies

New diagnosis, Gabapentin

Hi all, I’ve been reading the posts here for a while and all your sage advice has helped tremendously! I’ve recently been officially diagnosed with...

Hi all, I’ve been reading the posts here for a while and all your sage advice ha...

Brief_Encounter

•1 year ago

8 Replies

Does anyone feel their fibro is saying something much more serious is going on in their bodies and it’s being missed?

Hi, this is for me a very honest heart on the table post. I’m saying it how it is and how I feel which isn’t easy. I’m recently diagnosed with fibromyalgia...

Hi, this is for me a very honest heart on the table post. I’m saying it how it i...

PersonalTAgent

•1 year ago

31 Replies

newbie

just wanted to say thank you for letting me join your group. And hoping that it will help me with issues I come up against on my journey!

just wanted to say thank you for letting me join your group. And hoping that it ...

Cosytoesknitting66

•1 year ago

4 Replies

sick and tired of being sick and tired

hi all I’m in England don’t know if everyone is or not even though fibromyalgia has been part of my life for a long time it only decided to introduce itself to...

hi all I’m in England don’t know if everyone is or not even though fibromyalgia ...

Wongle1

•1 year ago

8 Replies

Too much Iron

Does anyone else suffer with too much iron in their blood my ferritin levels are really high at 880 normal is 250.

Does anyone else suffer with too much iron in their blood my ferritin levels are...

Billyboy2216

•1 year ago

16 Replies

Pip assessment for fibro and anxiety

Hi,,i had my pip assessment 2 weeks ago now,,it only lasted half an hour,,does any one think this could be a bad sign as i have herd the assessment can be up...

Hi,,i had my pip assessment 2 weeks ago now,,it only lasted half an hour,,does a...

L8L8

•1 year ago

2 Replies

uncomfortable bras

Thank you all for your suggestions. I will certainly try them out.

Brightener70

•1 year ago

1 Reply

Is this it 🤔

I have been diagnosed with Fibromyalgia and it has absolutely floored me. The pain I can sort of deal with but the extreme tiredness is something else. I have...

I have been diagnosed with Fibromyalgia and it has absolutely floored me. The pa...

Outoftheblue1954

•1 year ago

4 Replies

Iron infusion

Hi again guys,can anyone help?may not be fibro related but I am just trying to work it out.My iron is always low,so 3 weeks ago I had an iron infusions in...

Hi again guys,can anyone help?may not be fibro related but I am just trying to w...

Socialbutterfly00

•1 year ago

8 Replies

pip hone call

this will be my first phone assessment , can anyone tell me examples what they reply to the questions as I’m no good on the phone and I prob just say really...

this will be my first phone assessment , can anyone tell me examples what they ...

Groundhog1234

•1 year ago

10 Replies

To claim PIP for Fibromyalgia does the diagnosis have to be confirmed by a consultant rheumatologist or will the GPs diagnosis be enough?

I want to put a claim in for PIP as I have been told by the GP's on two occasions that my symptoms are probably Fibromyalgia, especially given my family...

I want to put a claim in for PIP as I have been told by the GP's on two occasion...

Bolognese2022

•1 year ago

7 Replies

fibro fog tips?

I’ve been doing alright lately, exercising well, going therapy, eating well, but I’ve noticed this past week the fibro fog has been getting worse. I had a bit...

I’ve been doing alright lately, exercising well, going therapy, eating well, but...

Cassi0

•1 year ago

11 Replies

Headache

Does anyone get a headache on their eyebrow that won't go away?I've woke up with this today and it hasn't gone yet. I've had paracetamol which is all I can...

Does anyone get a headache on their eyebrow that won't go away?I've woke up with...

jarbnsnmelts

•1 year ago

5 Replies

Help info please

Hi,people, it's been a while, but just wanted to ask if anybody else has been taken off there main pain meds , and told that they have to go to a pain cafè,...

Hi,people, it's been a while, but just wanted to ask if anybody else has been ...

Paula5

•1 year ago

14 Replies

Weight loss with fibro?

Hi all, had anyone experienced large weight loss with fibro? I can't attribute it to my medication as it started before i was taking the duloxetine.I've now...

Hi all, had anyone experienced large weight loss with fibro? I can't attribute i...

Tassadar

•1 year ago

10 Replies

Spine pain

Hi everyone,I hope you are all keeping as well as you can 😊I haven't posted anything here for a while but wondering if any of you can shed any light,following...

Hi everyone,I hope you are all keeping as well as you can 😊I haven't posted any...

Socialbutterfly00

•1 year ago

18 Replies

Face pain.

Not sure what's going on with my face this week but I'm about to storm the dentist and demand they remove all my teeth😁 I'm mostly sipping soup and duncking...

Not sure what's going on with my face this week but I'm about to storm the denti...

Broadfield

•1 year ago

26 Replies

Pip assesment

Good morning campers, I've had a text to say I'm having my assessment on the 28th Feb at 9.00am. my husband will be with me,can I ask if they will record my...

Good morning campers, I've had a text to say I'm having my assessment on the 28t...

lanzarote55

•1 year ago

18 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for February 2023

Gram’s Girl

In the words of Columbo - "just one more thing…”

Newsletter will go out tomorrow

Nonononoooooo

fibromyalgia

No energy and motivation

cure for chron’s

Fibromyalgia and bottom bleeding

Sciatica pain

Lifes Goodish

Fibro v Gabapentin v Pregabalin v Duloxetine or just a whole new way of approaching it.

Any experiences of >90mg doses of Amitriptyline for fibro pain?

New diagnosis, Gabapentin

Does anyone feel their fibro is saying something much more serious is going on in their bodies and it’s being missed?

newbie

sick and tired of being sick and tired

Too much Iron

Pip assessment for fibro and anxiety

uncomfortable bras

Is this it 🤔

Iron infusion

pip hone call

To claim PIP for Fibromyalgia does the diagnosis have to be confirmed by a consultant rheumatologist or will the GPs diagnosis be enough?

fibro fog tips?

Headache

Help info please

Weight loss with fibro?

Spine pain

Face pain.

Pip assesment

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