Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,451 members • 66,497 posts

All posts for September 2022

Just when life went from 0 to crazy

All that i can do with this is LOL. I should start by saying that I was Transgenderand after completing my journey inc lower surgery I spent 3 weeks in...

All that i can do with this is LOL. I should start by saying that I was Transgen...

Ellie1991

•2 years ago

11 Replies

I gess its a miracle

Sorry for the spelling. I just wanted to say I have had 2 weeks of basic normality (I forgot what it felt like). Although today it has hit me again had the...

Sorry for the spelling. I just wanted to say I have had 2 weeks of basic normal...

Ellie1991

•2 years ago

2 Replies

pain and docs.

my fibro has changed because of the weather ,I am not sleeping properly ,I have pain all over ,migraines ,been to doctors to see if they can give me anything...

my fibro has changed because of the weather ,I am not sleeping properly ,I have ...

Hidden

•2 years ago

17 Replies

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Struggling

Cant even stand for 5 mins without crying the pain alo g to bottom of my back and down mmy legs is unreal taking every painkiller u can think of but nothing...

Cant even stand for 5 mins without crying the pain alo g to bottom of my back an...

Djemima

•2 years ago

10 Replies

September Newsletter

This month's edition of FMA UK's newsletter will feature research, news stories, and the latest updates from FMA UK. Make sure you don't miss out. Sign up for...

This month's edition of FMA UK's newsletter will feature research, news stories,...

Lynda_FMA_UK

Moderator•2 years ago

1 Reply

Mri scan of spine

After forever waiting to be referred to a rheumatologist, the gp referred me to physiotherapy for musculoskeletal. I had my fist appointment and broke down...

After forever waiting to be referred to a rheumatologist, the gp referred me to ...

Coffeemum

•2 years ago

12 Replies

Thigh problems

Hi Does anyone get stiff sore thighs. Feeling really down at the moment as i cant walk very far and am so stiff

Hi Does anyone get stiff sore thighs. Feeling really down at the moment as i ...

Tremble

•2 years ago

9 Replies

Join our Firewalk Challenge 2022

Can you help us raise awareness of fibromyalgia and funds to help support those affected by it? Fibromyalgia Action UK is looking for brave 'soles' to join...

Can you help us raise awareness of fibromyalgia and funds to help support those ...

Lynda_FMA_UK

Moderator•2 years ago

1 Reply

Can a GP force you to come off medication that works?

Hi all, I was just wondering if a GP can force you to come off a medication without your consent? For context, I take Cocodamol for my Fibro, and it enabled...

Hi all, I was just wondering if a GP can force you to come off a medication wit...

Angelxna

•2 years ago

13 Replies

Painful feet and ankles

Does anyone suffer with painful feet and ankles, I’m in absolute agony tonight, had to come home early leaving my friends to enjoy the rest of our day out...

Does anyone suffer with painful feet and ankles, I’m in absolute agony tonight, ...

Ammangirl

•2 years ago

22 Replies

Memory foam for relief

Just wondering if anyone has found a memory foam topper that help improve comfort and decrease pain when laying down and sleeping. I don't think I can afford...

Just wondering if anyone has found a memory foam topper that help improve comfor...

LynnYorm

•2 years ago

4 Replies

The Common Cold and my firend fibro.

Just come down with a cold. I have to say although my pain is under control for now my fatigue is not being helped by this cold.

Just come down with a cold. I have to say although my pain is under control for ...

Ellie1991

•2 years ago

3 Replies

RSM / FMA UK Fibro Event - 10th October

Have you signed up yet? There will be a recording for those that have registered if you cannot be there for the whole day. https://rsm.ac/3zev59U Des

Have you signed up yet? There will be a recording for those that have registered...

desquinn

Partner•2 years ago

7 Replies

New to this

Hi, Newly diagnosed a few months ago & first visit here. I'm having constant pain in my ankles feet & lower legs (also wrists, shoulders & neck) to the point...

Hi, Newly diagnosed a few months ago & first visit here. I'm having constant pa...

Faxgirl

•2 years ago

18 Replies

Butec Patch

Hi, I was given a new pain relief to try. Transdermal patch Buprenorphine. I was wondering if anyone else has or is using this and if there is any side...

Hi, I was given a new pain relief to try. Transdermal patch Buprenorphine. I...

Flame_lily

•2 years ago

8 Replies

Kellie79

hi everyone hope ur all ok havent posted for awhile due to having a ready bad time of late. I have just been awarded pip but only standard daily no mobilitiy...

hi everyone hope ur all ok havent posted for awhile due to having a ready bad t...

Kit79

•2 years ago

4 Replies

Numbness

Does anyone suffer with numbness on the skin. I do on my little toe, just below the knee on my left leg, around my tummy and right side where my ribs are and...

Does anyone suffer with numbness on the skin. I do on my little toe, just below ...

Cat-222

•2 years ago

11 Replies

handling feelings around turning down invitations

Hallo, I wonder if you could share how you handle your feelings around turning down invitations from friends and family. How do you handle it? I feel low...

Hallo, I wonder if you could share how you handle your feelings around turning d...

Lussan

•2 years ago

8 Replies

Hi all I have diagnosis of fibromyalgia +back issues +osteophyte it's gard to manage all this pain l find useful information here

someone has mare information how to manage all this pain thanks

Ronzanijane

•2 years ago

3 Replies

bendroflumethiazide and worsening fibromyalgia

I have had problems with Long Covid breathlessness and raised heart raise on gentle exercise ( getting washed etc)over the last 15 months and had various...

I have had problems with Long Covid breathlessness and raised heart raise on gen...

Judithdalston

•2 years ago

2 Replies

start of my journey

I haven’t got a formal diagnosis and am still waiting for a referral to neurologist following MRI. MS has been ruled out but I feel like I’m going mad and no...

I haven’t got a formal diagnosis and am still waiting for a referral to neurolog...

Leafern

•2 years ago

10 Replies

how do you all cope?

hi, me again.. All your advice last time was truly amazing so, I’m back! My husband keeps saying exercise and diet will make me better but he also thinks...

hi, me again.. All your advice last time was truly amazing so, I’m back! My...

NewToFibrox

•2 years ago

40 Replies

Airing pain podcast - long covid

Trailer for upcoming episode: https://www.youtube.com/watch?v=A0pbchkbNT0 Paul Evans spoke to Drs/patients at Berkshire Pain Clinic & Woodley Centre Surgery...

Trailer for upcoming episode: https://www.youtube.com/watch?v=A0pbchkbNT0 Paul ...

desquinn

Partner•2 years ago

Be the first to reply

I have read the relationship between cfs and fibromyalgia and emotional trauma and being associated with Narcissists.

On you tube there was a good video about the relationship between narcissistic abuse and auto immune issues and included was CFS and Fibro. To sum it up.....

On you tube there was a good video about the relationship between narcissistic a...

TooTiredTara

•2 years ago

10 Replies

Anyone else have MTHFR MUTATION? I have a homozygous on c677t and polymorphism on 1298. I found via hematologist. I keep getting dvt /pe.

MTHFR MUTATION is hard to explain so Google it. People with it are likely to have CFS, and Fibromyalgia. I also had hashymotos disease. And my thyroid was...

MTHFR MUTATION is hard to explain so Google it. People with it are likely to hav...

TooTiredTara

•2 years ago

15 Replies

I’m drained and that blinking bus came back twice 😂

hey guys, I hop you are all coping and in a good place, I’m absolutely exhausted and if that blinking bus had stopped I would be ok 😂. Well some of you know...

hey guys, I hop you are all coping and in a good place, I’m absolutely exhausted...

Hidden

•2 years ago

66 Replies

Recycling for FMA UK

19-25 September is Recyle Week - check out our Eco-Friendly Fundraising page for ways that you can support FMA UK by recycling your inkjet catridges, clothes...

19-25 September is Recyle Week - check out our Eco-Friendly Fundraising page for...

Hazel_Angelstar

Administrator•2 years ago

Be the first to reply

venlafaxine 75mg twice daily

I Have been on the medication now a couple of months But I am suffering really bad with insomnia I cant sleep my appetite has decreased gradually, it was the...

I Have been on the medication now a couple of months But I am suffering really b...

maldeeblue

•2 years ago

9 Replies

Virus

Still got this Virus been nearly 2 weeks now. So i am still feeling rough. I honestly cant see me turning a corner, as i wake up and i feel rubbish. My blood...

Still got this Virus been nearly 2 weeks now. So i am still feeling rough. I hon...

Fibrofog

•2 years ago

2 Replies

Ecg results

I had an ecg this morning and it said that my systolic reading was 88mmhg and my diastolic was 50mmhg. The nurse said that my blood pressure was a bit low...

I had an ecg this morning and it said that my systolic reading was 88mmhg and m...

fibrogirl41

•2 years ago

3 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for September 2022

Just when life went from 0 to crazy

I gess its a miracle

pain and docs.

Struggling

September Newsletter

Mri scan of spine

Thigh problems

Join our Firewalk Challenge 2022

Can a GP force you to come off medication that works?

Painful feet and ankles

Memory foam for relief

The Common Cold and my firend fibro.

RSM / FMA UK Fibro Event - 10th October

New to this

Butec Patch

Kellie79

Numbness

handling feelings around turning down invitations

Hi all I have diagnosis of fibromyalgia +back issues +osteophyte it's gard to manage all this pain l find useful information here

bendroflumethiazide and worsening fibromyalgia

start of my journey

how do you all cope?

Airing pain podcast - long covid

I have read the relationship between cfs and fibromyalgia and emotional trauma and being associated with Narcissists.

Anyone else have MTHFR MUTATION? I have a homozygous on c677t and polymorphism on 1298. I found via hematologist. I keep getting dvt /pe.

I’m drained and that blinking bus came back twice 😂

Recycling for FMA UK

venlafaxine 75mg twice daily

Virus

Ecg results

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