Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

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All posts for April 2021

pip / dla fibro warrior

hi everyone,, can someone point me in the right direction of how to apply for pip/dla as ive been diagnosed since august last year with fibro and i have been...

hi everyone,, can someone point me in the right direction of how to apply for pi...

cargirl

•3 years ago

3 Replies

Support Groups

Good afternoon, Does anyone know if there are any fibromyalgia support groups in Plymouth or Cornwall please or any online maybe ? Any help would be much...

Good afternoon, Does anyone know if there are any fibromyalgia support groups in...

livelif

•3 years ago

3 Replies

Management of my FIBROMYALGIA

I have an appointment with my neurologist at the end of next month with the hope of managing my fibro at the moment I am taking 70mg of zomoph 2 times a day...

I have an appointment with my neurologist at the end of next month with the hop...

Dylan62x

•3 years ago

3 Replies

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Severe relapse after Covid jab

Hello everyone I hope your all managing to get a little if this lovely sunshine. I normally manage my fybro quite well with various methods eg meditation diet...

Hello everyone I hope your all managing to get a little if this lovely sunshine....

Goldylocks

•3 years ago

18 Replies

Trust your Instincts

Ankylosing Spondylitis - so very weary of every pain (chronic back, buttock, leg, hip and knee) being put down to Fibro. Insisted on MRI - got Rheumatalogy...

Ankylosing Spondylitis - so very weary of every pain (chronic back, buttock, le...

Maud-ie

•3 years ago

18 Replies

Fibro and vit d help

Hi all, i dont have a fibro diagnosis but all the symptoms fit. I brought this up woth my doctor due to the pain, fatigue ect, I suffer anxiety depression and...

Hi all, i dont have a fibro diagnosis but all the symptoms fit. I brought this u...

Leahty

•3 years ago

12 Replies

Advice needed from anyone please

I suffer from extreme fatigue due mainly to lack of sleep the pain in my back and neck for some reason are worse at night once I get up and move around the...

I suffer from extreme fatigue due mainly to lack of sleep the pain in my back an...

pryja

•3 years ago

11 Replies

Hi everyone do any one suffer from a rash I have them on bottom of my legs and it’s really sore

Rashes

Fisherman81

•3 years ago

7 Replies

Pregabalin doses

Hi! My mum is on 25mg of pregabalin twice daily (has decreased gradually from much higher as side effects). Anyone know if you can you take doses every other...

Hi! My mum is on 25mg of pregabalin twice daily (has decreased gradually from mu...

Bookworm79

•3 years ago

16 Replies

Newly diagnosed /First Post

I have been suffering from Rheumatoid arthritis for 15 years and was recently told that I also have Polymalgia overlap. Last week I was told that in addition...

I have been suffering from Rheumatoid arthritis for 15 years and was recently to...

Painful2021

•3 years ago

7 Replies

Telegraph - ‘Hurting all the time is not an option’: The alternative paths to ease chronic pain

From this telegraph article (behind paywall :( ) "But while the new emphasis on trying natural treatments is broadly welcomed, both Quinn and Dr Peacock voice...

From this telegraph article (behind paywall :( ) "But while the new emphasis on ...

desquinn

Partner•3 years ago

14 Replies

Support groups

Just wondering if there is anything around the Bedfordshire/Northamptonshire area that is beneficial for support?

Just wondering if there is anything around the Bedfordshire/Northamptonshire are...

egm123

•3 years ago

2 Replies

Exercise

I would love to do some exercise as I feel so positive mentally and physically but all exercise seems so painful!! I have tried walking, yoga, Pilates, tai chi...

I would love to do some exercise as I feel so positive mentally and physically b...

egm123

•3 years ago

15 Replies

Venlafaxine

I spoke with a doctor in a Pain Clinic recently. As I have advanced kidney disease and I am on blood thinners (Warfarin) I am finding it difficult to find...

I spoke with a doctor in a Pain Clinic recently. As I have advanced kidney dise...

ChristineW18

•3 years ago

17 Replies

PIP

Hi again, Just wondering how we know if we’re entitled to PIP? Are the thresholds high? Are there any other benefits we may be entitled to?

Hi again, Just wondering how we know if we’re entitled to PIP? Are the threshol...

egm123

•3 years ago

4 Replies

New diagnosis😬

Hi, I have just been diagnosed with fibro literally 2 weeks ago!!! I’m really struggling to come to terms with it.... it has given me a name for a lot of the...

Hi, I have just been diagnosed with fibro literally 2 weeks ago!!! I’m really ...

egm123

•3 years ago

4 Replies

PIP claim - endo, fibro & depression

Has anyone had a successful PIP claim with endometriosis and fibromyalgia (& depression)? I’m so so fatigued and the thought of even starting the form is...

Has anyone had a successful PIP claim with endometriosis and fibromyalgia (& dep...

Wilder_ness

•3 years ago

3 Replies

PIP assessment by phone

Hi , I am due to have a tel assessment because after my award was extended because of covid, I received a small questioner asking if I had gotten worse well...

Hi , I am due to have a tel assessment because after my award was extended becau...

yalilassy

•3 years ago

1 Reply

Support group

Hi I’m interested in people mostly around Wisbech or within 25 mile of Wisbech for support, friendship , walking buddy’s , I’m sixty and devastated by my...

Hi I’m interested in people mostly around Wisbech or within 25 mile of Wisbech ...

Jasharper

•3 years ago

5 Replies

Meds

Just wondering if anyone else is on duloxetine

Sky122

•3 years ago

1 Reply

CBD. Is it effective for Fibromyalgia?

Hello! Has anyone had any success with CBD products for fibromyalgia pain? If so, which ones and what strength? I have Graves disease, Fibromyalgia and IBS...

Hello! Has anyone had any success with CBD products for fibromyalgia pain? If so...

Calliope62

•3 years ago

13 Replies

Nerve Pain

Hi all, I just wondered if anyone has any advice regarding this post. I know we are not GPs but if anyone is going through anything similar, I would feel...

Hi all, I just wondered if anyone has any advice regarding this post. I know we ...

jjsmum

•3 years ago

41 Replies

BettyBooo29

Hello fybo friends just want to ask if you generally feel like you've bit of flu sniffles headaches aches allover and just exhausted I'm new to this so love to...

Hello fybo friends just want to ask if you generally feel like you've bit of flu...

BettyBooo29

•3 years ago

6 Replies

Pip form

Hi all I would strongly recommend you find someone like the CAB. To Assist with your form they are generally experts in this form. A lady I no has been refused...

Hi all I would strongly recommend you find someone like the CAB. To Assist with ...

Jasharper

•3 years ago

3 Replies

Duloxetine

Hi Paige, I have taken Duloxetine for 10 years. I take the highest dose of 120mg slow release once a day in the morning. I am very susceptible to drugs but...

Hi Paige, I have taken Duloxetine for 10 years. I take the highest dose of 120mg...

merlinmac

•3 years ago

1 Reply

GP changed hylo forte to Evolve

hello everyone, My gp has changed my eyes drops and I have severe dry eye from sjorgrens and I don't get on with this new product. I did try it but it is not...

hello everyone, My gp has changed my eyes drops and I have severe dry eye from s...

fluffmonkey

•3 years ago

3 Replies

More Myofascial than fibro in neck causing issues - Bruxism

I dont think in general I have TMJ I am sure my neck issue of aching and feels tired causing my ears to feel full is caused by myofascial than fibro as my body...

I dont think in general I have TMJ I am sure my neck issue of aching and feels t...

Floppy99

•3 years ago

13 Replies

Erythromelalgia..........anyone else?

Hi, fellow fibro warriors. On top of the fibro, malignant hypertension and possibly PoTS, I've recently been diagnosed with erythromelalgia. I'd never even...

Hi, fellow fibro warriors. On top of the fibro, malignant hypertension and possi...

Woldsy

•3 years ago

10 Replies

Newly diagnosed

Feel like I've been given diagnosis put on waiting lists and then left to get on with it, bad couple of weeks, it's hard to know whether depression is creeping...

Feel like I've been given diagnosis put on waiting lists and then left to get on...

Lillieziggie

•3 years ago

7 Replies

So much pain

Hi everyone. Hope everyone is well as they can be. For 3 days I have had really bad pain down both arms and back I haven't had it before. I was diagnosed Feb...

Hi everyone. Hope everyone is well as they can be. For 3 days I have had really ...

Danni299

•3 years ago

4 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for April 2021

pip / dla fibro warrior

Support Groups

Management of my FIBROMYALGIA

Severe relapse after Covid jab

Trust your Instincts

Fibro and vit d help

Advice needed from anyone please

Hi everyone do any one suffer from a rash I have them on bottom of my legs and it’s really sore

Pregabalin doses

Newly diagnosed /First Post

Telegraph - ‘Hurting all the time is not an option’: The alternative paths to ease chronic pain

Support groups

Exercise

Venlafaxine

PIP

New diagnosis😬

PIP claim - endo, fibro & depression

PIP assessment by phone

Support group

Meds

CBD. Is it effective for Fibromyalgia?

Nerve Pain

BettyBooo29

Pip form

Duloxetine

GP changed hylo forte to Evolve

More Myofascial than fibro in neck causing issues - Bruxism

Erythromelalgia..........anyone else?

Newly diagnosed

So much pain

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