Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

59,469 members • 66,515 posts

All posts for October 2018

Pip tribunal

Hi hope evry1 feeling ok I was wondering does anyone know of any help in my pip tribunal need a representative to come along with me as cab don't have the...

Hi hope evry1 feeling ok I was wondering does anyone know of any help in my pip ...

angieskye

•6 years ago

6 Replies

Whats next

I've recently been told i have nead non epileptic seizure disorder after having a numbet of seizure they said it's part of the fibromyalgia does any 1 else...

I've recently been told i have nead non epileptic seizure disorder after having ...

walking52

•6 years ago

10 Replies

doctors dont care

hi i am 71 yrs old and suffer from terrible terrible headaches and back pain also muscles problems doc said it was muscles in part but wont prescribe me...

hi i am 71 yrs old and suffer from terrible terrible headaches and back pain ...

celtlady

•6 years ago

15 Replies

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Pip appeal

Been in touch with support worker at the brill p3, a mental health support charity in swadlincote. She said tribunal appeal wait time is normally about 20...

Been in touch with support worker at the brill p3, a mental health support char...

Julieaburrows

•6 years ago

2 Replies

Thank you

Thank you for taking the time to reply. I have woken up feeling slightly better this morning both the pain and mindset due a lot to yourselves. I appreciate...

Thank you for taking the time to reply. I have woken up feeling slightly better ...

Bettybright

•6 years ago

2 Replies

Rant

Sorry but can I just rant and let some steam out of my ears for a minute ? Best beloved just finished asking me what I was going to make for supper ? Well I...

Sorry but can I just rant and let some steam out of my ears for a minute ? Best ...

Bluenordic

•6 years ago

12 Replies

My story any1 similar

Hi every1, new to all this. I was finally diagnoised 4days ago with fibromalgia, had fought doctors for years who made me feel like it was all in my head. My...

Hi every1, new to all this. I was finally diagnoised 4days ago with fibromalgia,...

XlostX

•6 years ago

43 Replies

Paid for benefit advice.

Has anyone joined any of these paid for benefit online advise and support websites? im nearing the deadline to submit my pip appeal but i dont want to get it...

Has anyone joined any of these paid for benefit online advise and support websit...

Kazhc

•6 years ago

15 Replies

Fibro diagnosis

Hi, I have been going round in circles for a few years between Dr's, referred Physiotherapists, osteopaths, rheumatologists and neurologists for chronic pain...

Hi, I have been going round in circles for a few years between Dr's, referred P...

HDav84

•6 years ago

10 Replies

Mixed up

V mixed up and frightened. Mum being so Is sending my mind and body all over the place. Every part of me hurts and feels like it's on fire. It's hurting me...

V mixed up and frightened. Mum being so Is sending my mind and body all over the...

Julieaburrows

•6 years ago

16 Replies

I have been on 200mg sertraline and 40mg amytripaline and a bunch of other pills but seen other doctor who put me down to 10mg amytripaline

Does it sound right or should I still be on 40mg always in pain and just got use to the 40mg

Does it sound right or should I still be on 40mg always in pain and just got use...

Kenny20

•6 years ago

2 Replies

Stiff and sore

Morning everyone not such a good day really stiff and sore, does anybody’s muscles in the fore arm get loads of knots and ache a lot?? Tried to lift something...

Morning everyone not such a good day really stiff and sore, does anybody’s muscl...

thesmiler32

•6 years ago

1 Reply

Hi I am new

Hi my name is Lucy am new this, I have Fibromyalgia been living with it now for around 3 years so looking forward to meet other people with the same condition x

Hi my name is Lucy am new this, I have Fibromyalgia been living with it now for ...

thesmiler32

•6 years ago

6 Replies

Fibromyalgia = paralympics.

Does anyone know if you can compete in paralympics with fibromyalgia..?

Stallone

•6 years ago

1 Reply

Hi everyone, starting to ride a motorbike

Hi everyone, ive always wanted a motorbike but then my health conditions took over my life. Im now totally focused on completing my cbt and getting a 125cc....

Hi everyone, ive always wanted a motorbike but then my health conditions took ov...

Mazz2010

•6 years ago

6 Replies

PMR & diarrhea

Am reducing Pred steadily 1 unit a month.Now down to 6.No real probs. Normally I have a very strong resistance to stomach/food probs. Recently developed...

Am reducing Pred steadily 1 unit a month.Now down to 6.No real probs. Normally...

Furotic

•6 years ago

2 Replies

Just not sure about these symptoms yet,please help

Hello , I've joined this forum as I'm pretty certain i have fibro through my own research. Reamatologist app to come in ñov after a three year of persistently...

Hello , I've joined this forum as I'm pretty certain i have fibro through my own...

Nasturtion

•6 years ago

8 Replies

My baby

This is my wee girl Pipsqueak she’s no voice so she squeaks, she saved my life when I got her, I got out of my bed started to eat again and she’s been with me...

This is my wee girl Pipsqueak she’s no voice so she squeaks, she saved my life w...

Pips04

•6 years ago

10 Replies

PIP Assessment

Hi all ,I have my first PIP assessment today ,not looking forward to it have heard such horror stories about the whole thing.😭😭xx

Hi all ,I have my first PIP assessment today ,not looking forward to it have hea...

Shenni

•6 years ago

12 Replies

Fibro on TV tonight BBC look east

Link to programme below and price is from about 13.22 to 19.37. https://www.bbc.co.uk/iplayer/episode/b0bmdx6c/look-east-west-evening-news-09102018 Will be...

Link to programme below and price is from about 13.22 to 19.37. https://www.b...

desquinn

Partner•6 years ago

8 Replies

so tired

Hi everybody, im Lou Lou and im new on here. I was diagnosed with fibromyalgia in november 2017 after being in pain for quite a few years , every day now i...

Hi everybody, im Lou Lou and im new on here. I was diagnosed with fibromyalgia i...

lou_lou2018

•6 years ago

6 Replies

Pip appeal won on tribunal

Hi, I had my pip stopped last sept 2017, after a long battle ive just won on appeal to have it reinstated today 9 oct 2018, will i get my money backdated. Ive...

Hi, I had my pip stopped last sept 2017, after a long battle ive just won on app...

Perkintracey

•6 years ago

16 Replies

DWP Text

Afternoon everyone. Had a text from DWP!!!! Didn't think I'd given them my mobile no as don't use it much. Says " We need to talk to you about your ESA...

Afternoon everyone. Had a text from DWP!!!! Didn't think I'd given them my mo...

foxie

•6 years ago

19 Replies

fatty liver disease

i was diagnosed with fatty liver and pancreas 2yrs ago. was told not to have alcohol EVER (!!!!) and to cut out fatty foods. i lost loads of weight (that i'd...

i was diagnosed with fatty liver and pancreas 2yrs ago. was told not to have alc...

fibropal

•6 years ago

4 Replies

Struggling SO hard

Hi. I am new to this site. I was diagnosed with fibromyalgia in August 2017 after suffering for years with symptoms. I suffer a LOT of pain when I am...

Hi. I am new to this site. I was diagnosed with fibromyalgia in August 2017 afte...

Moomaa

•6 years ago

9 Replies

Pip

Hi there can any one tell me why pip not sent me any think about my pip review it’s been 7 weeks now not even a text message got my payment the other day fine...

Hi there can any one tell me why pip not sent me any think about my pip review ...

Delboy32

•6 years ago

18 Replies

Fibromyalgia and Fatty Liver Disease.

So on top of the fibro, I have fatty liver disease. It is reversible with diet and exercise. But how the h*ll (edited by admin) am I supposed to get the...

So on top of the fibro, I have fatty liver disease. It is reversible with diet a...

MorganScorpion

•6 years ago

4 Replies

Is this just me ......?💔

Hi It’s late , I’m wide awake !! Not because I want to be , but because my bones have decided that now is a good time to really hurt . Because I’m awake with...

Hi It’s late , I’m wide awake !! Not because I want to be , but because my bone...

Patty1964

•6 years ago

23 Replies

Pain management

Taking oxynorm 5mg. Every 3 hours anyone else do it & will I be ok

Maryann99

•6 years ago

2 Replies

NHS early retirement pension due to ill health

Dear members I have recently had my application for early retirement refused. I was diagnosed with Fibromyalgia and struggle with day to day living and have...

Dear members I have recently had my application for early retirement refused. I...

CathyCD

•6 years ago

46 Replies

Posts - Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

All posts for October 2018

Pip tribunal

Whats next

doctors dont care

Pip appeal

Thank you

Rant

My story any1 similar

Paid for benefit advice.

Fibro diagnosis

Mixed up

I have been on 200mg sertraline and 40mg amytripaline and a bunch of other pills but seen other doctor who put me down to 10mg amytripaline

Stiff and sore

Hi I am new

Fibromyalgia = paralympics.

Hi everyone, starting to ride a motorbike

PMR & diarrhea

Just not sure about these symptoms yet,please help

My baby

PIP Assessment

Fibro on TV tonight BBC look east

so tired

Pip appeal won on tribunal

DWP Text

fatty liver disease

Struggling SO hard

Pip

Fibromyalgia and Fatty Liver Disease.

Is this just me ......?💔

Pain management

NHS early retirement pension due to ill health

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