Brown Envelope.: Well peeps I have had... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Brown Envelope.

Sthandra profile image
21 Replies

Well peeps I have had a brown endibloke from DWP telling me about the changes to DLA, I noticed they have canged my entitlement from for life to indefinite without even getting in touch with me, I have been on for life for 20 years now with no probs, why can't they just leave us alone.

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Sthandra profile image
Sthandra
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21 Replies

Well the brown endi bloke sounds very interesting :) but I wouldn't worry too much about the change In wording .. My son is autistic and every two years I fill in the same cos nothing changes ... This time it came back saying he was awarded his dla indefinitely .. If I could have jigged I would have... I just have mine to fill mine in now as I go through it every year .

VG x

Fibrofoggiest profile image
Fibrofoggiest in reply to

VG, I see your son has been awarded his DLA indefinitely. I was told that my claim was indefinite, but do youhappen to know if we, having been that assurance, may still have to go through system again with the change over to PIP ?

F....iest x

in reply to Fibrofoggiest

Well the change over to PIP is apparantly April my sons reveiw was up in April and I got the forms nov and was told to send them back ASAP which I did and it took 2 weeks for the answer same entitlements indefinitely. my dla runs out June but I have been told to get. Mine back before April. So I am guessing they are trying to get as many people on dla already ...

assesed under the old rules before it changes to,PIP I think once it changes to PIP new cases will be then assesed and people on dla indefinately already won't hear again until 2015 at the earliest.

If I am wrong I apologise but that was the impression I got from the leaflets that came with the forms...

VG x

Yorkielover profile image
Yorkielover in reply to

Sorry to tell you this but your gonna have to go through the change to PIP in Oct 2015. Anyone with lifetime/indefinite award will be changing to via applying for PIP. The only group of people who wont are anyone over 64 or illnesses on the 'list' that wont have to worry, 3 I believe the last time I read about it.

Ozzygirl64 profile image
Ozzygirl64

Yup I got a brown envelope too for my daughter but for ESA. I filled it in last time for her as her appointee and she sailed into the support group without a medical. Then we got one to renew her DLA and for the first time ever she got it indefinitely. I too would have jigged if I could. But this time around I am getting help with her ESa forms as I feel my head is not in the right place to get it right this time without stuffing it up xxxxx

hamble99b profile image
hamble99b

I got dla one too - gave me a fright.

it also officially states I won't be called again until at least 2015.

Sthandra profile image
Sthandra

Hi peeps my mum used to have to renew every 6 months an she was worse than me she lived in Norwich an I live in Huddersfield just gos to show its a post code lottery, I'm not good company at moment it was my mums 3rd anniversary on 21st , we lost her to lung cancerin 2010. Sithy

hamble99b profile image
hamble99b in reply to Sthandra

hi sithy it was my dad's on feb 2nd.

you have my sympathies, try and remember the good times, but allow the grief release.

regards,

sandra.

sue32 profile image
sue32

I have DLA indefinitely too. I hope I won't have to do anything that will jeopardise my income!!!!

hamble99b profile image
hamble99b in reply to sue32

no you are safe until at least 2015.

Mdaisy profile image
Mdaisy

If anyone would like PIP information FibroAction can send the factsheet available from Benefits & Work website for free. Please email: info@fibroaction.org

The Factsheet does state that PIP will replace DLA from April 2013 but will initially be dealing with new claims and in October 2015 will start to change existing DLA claimants to PIP.

Hope this helps

Emma

michphil profile image
michphil

Sorry to say but no one is safe my husband had his DLA Indefinitely and he has had it for 12 years all of a sudden he received a letter to say that he was no longer entitled to it as they looked a this claim again which is whatntheybdo now and again by picking someone's out of the filing system and if they think they are not entitled they stop the payments . He suffers from very bad respitory problems and osteoarthiritis and has problems walking about . So please do not think that indefinitely means they wil never look at your claim from time to time because they do . Keep fingers crossed that they never look at yours xx

tinkerbell66 profile image
tinkerbell66

i to got a letter frol DLa saying it for life but know been told i should try and get middle rate care as only on low rate , i get high rate mobilty but frightnes me of loosing everything .

fibro profile image
fibro in reply to tinkerbell66

from what I can gathers they are so inundated with claims to see if they can get at least middle rate that they are disallowing them. I don't have the energy to appeal and they know that so they said the original award still stands, but I do need extra care, the trouble is I didn't get the option of seeing a doctor to prove to them of my needs. I asked them to look at it's again and from what I can gather they didn't even bother looking at it.

there's no way I can go through an appeal as I'm already doing that for something else and am likely to have a breakdown the way things are going.

I'm just going to have to wait until 2015 when the benefit is reassessed and I assume like with Incap and ESA we will all be seen by doctors. My only worry is that they are using CAPITA as well as ATOS and its CAPITA I'm battling with at the moment.

I'm hanging on by a thread at the moment as their doctor is sending me right to the edge.

the GMC want me to make a complaint as he has to follow their rules just like a GP would and he hasn't kept proper records and it's being accepted on his 'recollection' of the events, not my written version. he reckoned I was in a wheel chair when I made the effort to walk, used one crutch and OHs arm. I wanted him to see what my walking was like, but they are adamant I turned up by wheelchair unaided! god knows how I wheeled myself 30 miles to get there..... one handed as I had problems with carpal tunnel in the other hand!!

so there you have it....... they may as well just throw us on the scrap heap and be done with it! that's how I have been made to feel for a pension claim, Not even a benefit claim but a pension I have paid in for. I haven't been able to work for 17 yrs nearly but it doesn't matter they still think I am going to get better before ages 60 so I can return to my old job....which so longer exists even, but similar.

if no doctor has managed to make me walk better or rid me of pain in the past 17 yrs who has that magic wand so I can wave it over me before I reach 60 and be able to earn a proper wage than have to rely on benefits. I wouldn't have claimed if it wasn't weren't by choice. I would loved to have worked but I cannot remember a day now when I haven't been in pain!

I would just love those stupid ministers who decided that our lives aren't turned upside down enough, to be struck down with chronic pain have no money coming in and being made to feel that life is no longer worth living.

don't they know what all this stress is doing to us???????!!!!!!!!!!!! xxxa

debra50 profile image
debra50

I heard when you go over to pip if you can manage to walk indoors you will not get higher rate mobility i use my dla to pay for taxis used to have mobility car but was too scared to have another because of changes how depressing will not be able to afford to go out at all xx

fibro profile image
fibro in reply to debra50

I think you are right. not only have they changed the 50mtr rule down to 20, they are now saying indoors, when it's always been outdoors

these people have no idea what it's like to have a mobility problem. I was born like t so I think I'm qualified in saying, it's much harder to walk outdoors than it is indoors!

so tey are going to make us prisoners in our homes with now money to even buy food!

I won't say what I was thinking, it wouldn't be appropriate, but I hope the ones who have made these rules, either them or their families or preferably both bet struck down with it to see what it's like to be in our bodies!

tinkerbell66 profile image
tinkerbell66

been intouch with welfare rights today and told them about the form , i explained with being toung tied aswell and getting confused abot what i have got , and the dla said not to again due to changes wich will affects me in 2015 , so i give up the form as made me more stressed , confused , going crazy ,hurting ,

so now il have no money left with this council tax coming in and the bedroom tax ,look like eating bread and jam from now on ,aswell as trying to get keys to move into flat ,theres no joy on that nether ,

iv only had 2 hours sleep again ,now the flipping dog barking again , .iv no energy ,,lack of sleep ,no appitite , , the medication for pain isnt working ,

need some horeses tablets to send me to sleep lol ,

gentle hugs to all .

no one understands about this awfull condition and what we suffer 24 hours a day , .

rainbowdancer profile image
rainbowdancer

I also had my brown envelope today it does make you panick but I think what I understood of it, that if you have top dla ,and carers then they will review in 2015. I am at the moment worse than I was when I got higher rate on both,but the letter said please let us know if you are,or do get worse, as this could mean you are entitled to more money.

How I wonder do they make you higher than the high rate !!! The mind boggles x

Good luck everyone hope it all works out OK ((((((((((((((((((( ;-) ))))))))))))))))))))))))))))

debra50 profile image
debra50

I watched despatches last night the disabled olympics have not helped. ....... Wish i could do what some of them do the powers that be have got their blinkers on as usual they have put everyone in the same boat and forgot we need the oars..... the tax is stupid i have a 2 bed house knocked into one bedroom i still got to pay for 2 even though its to accomadate my vertical lift already installed years before i moved in.....xxx we all know we need cutbacks but this is ridiculous going back to old days how long before nhs goes....xx

secretldy profile image
secretldy

they gave me DLA for a year and in Oct i have got to reapply and probably fight for it again, i have had to fight for the last 3 years as well. why don't they have a box that we fit in? My sister has got it Indefinitely.

Would be nice if i was as well

i was on indefinite and been sent the dreaded brown envelope amd waiting for them to get medical reports on menow - 2 months ago got new motability car and thought ok have no reassess till 2015 and then this happens - and ESA tribunal awaitd too

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