Hi, I am new here.......

[Julianne]

Hi, I’m new here and I want to share with you my experience in dealing with this kind of silences’ illness which is FIBROMYALGIA.

I was diagnosed about 2 years ago, but I had been suffering from different pains in all my body for many years and no doctors could detect any specific illnesses until my GP sent me to the Rheumatology at the Hospital.

The doctor was very nice and patient with me, since I’m not from this country and also I don’t speak good English and for me was difficult to explain what I was feeling, also I apologise to all of you because I have to used a translator to communicate with you, I hope you understand me.

For me is very traumatic to be alone in this country with no family to share and help me to deal with this illness, because one of the important things is to have support, love and company. So I have learnt by myself to deal with this by doing different things, such as reading, listening happy music and once a week trying to go to aqua aerobics; the hot water helps me to relax and also helps the muscles to be have some movement; it is a little painful but we can’t stop moving and also yoga helps too. The medicine the GP sent me, I think there is no point in telling you what kind of medicine I’m taking because for everybody is different, don’t you think?

I have too many limitations and my symptoms vary every day, some of them are: I frequently forget things, loss of concentration, difficulty getting up, pain in the soles of the feet, knee pain, pain in shoulders, elbows and hands, headaches, swelling of hands and feet, dizziness, tingling in hands and feet, pain in the hips, constipation, feelings of anxiety and sadness, dry eyes, face pain, bad mood, cry and not sleeping well at all, I don’t have good movement in my body, I have problems walk and going up and down stairs.

Okay, this is the life I had to live which I wanted to share with you and hopefully receive any comments. Thanks to all of you for taking the time to read my story.

Be Positive, we are not alone!!!

[Hidden]

Welcome Julianne, I'm so sorry to hear you are alone in this country. You have new friends here now who know what you are going through Where are you from?

Sue

[Julianne in reply to Hidden]

Hi Sue, thanks for your welcome and for giving me your friendship through this system, I wish I could keep in touch with you. I hope we can learn many things related to FM, my interest is more in order to further investigate a better way of living. Thanks again and take care. I wish you a happy night. Julie

[Hidden in reply to Julianne]

Hi again Julie,

Of course we can keep in touch. You are so right to be interested in a better way of living with this. I'm sorry for the young people who have fibro, I'm older but hope I still have a few years left yet We all need to find a way of making living with this thing easier. I can't imagine how awful it is for young people having to cope with feeling so ill.

My concentration has been quite poor all day and I'm very tired now so I am going to bed and will read my book and hope to go to sleep pretty soon.

I like your saying - a happy night. I wish you a happy night too.

Sue

[jazher]

Hi Julianne,

This site will certaintly not leave you feeling lonely anymore (hopefully).

There is lots of advice and support and just a general chat and even a laugh.

It is good to meet you and look forward to reading more about you.

kel xxx

[Julianne in reply to jazher]

Hi Kel thanks for your words; it is very comforting to meet people who at least share the same pain lol...

I wish you a happy night!!

[Hidden]

Hi there to you and welcome to the club lol what you have described we can all relate to it is an awful thing to have and i am sorry you have no family here to help you but hopefully you have some friends around who can give you some comfort, the trouble is like the rest of us you probabaly look ok ! and people unless you have some visible sgn that you have something dismiss you and think that it is all in your head but on here your safe what ever you have you can bet someone will write right back to you and say i have that too so your not alone any more soo glad you joined and look forward to spaeking some more well typing you know what i mean take care love and soft hugs Diddle xx

[Julianne in reply to Hidden]

Hi Diddle: Thanks for your message, and I agree with you, because we're beautiful, people do not believe what we feel... lol, but we know what we have inside, so the disease is called the invincible lol. There are many things to learn about this disease, we cannot allow ourselves to become invicibles lol. Take care and happy night. Julie

[Butterfly54]

Hello Julianne,Glad you found us we are all friends here as I found out after

joining in febuary after being diagnosed in January.

I know what it is like to be a stranger in a new country.I lived in South Africa for 8yrs.We are all here for you,and we all suffer the same sort of symptoms so hopefuly you will find help when you need it.

Love and Hugs to you and welcome xxxxx

[Julianne in reply to Butterfly54]

Hi Butterfly, thanks for your welcome I am very happy to know we share the same symptoms lol, I hope we can learn many things related to FM, my interest is more in order to further investigate a better way of living. Thanks again and take care. Julie

[Julianne]

Hi Chiristine, The rheumatologist diagnosed fibromyalgia after making a checkup on my body, which was very painful. Since then I have researched a lot about this disease, my interest is more in order to further investigate a better way of living

Take care you too and thanks for contacting me. Julie