Covid and fibromyalgia (lupus)

[Geeforce99]

hi great forum people,

I have been getting worse after Covid infection in December and have been going to GP with chest pains tightness pains in across top of my back told increase gaberpentin.

this week went to see GP and said I need blood test to check vitamins as getting worse and like drained and exhausted so they came back and reported below min vitamin d so now given 50,000 UI vitamin d3 and see if this helps seems too high should I be concerned by the high level and is it safe

has anyone else had experience with taking high levels of this vitamin d for six weeks?

I was surprised no doctor thought to check this with me off work with post covid and still cough and symptoms

Thank you 🙏

[desquinn Partner Volunteer FMAUK Trustee]

50 000 IU is a normal short term dose to get levels up

[Geeforce99 in reply to desquinn]

Great thank you 🙏

[Deeb1764 in reply to Geeforce99]

I was the same so high levels 6 weeks and then I am tested once a year now as well .

[Gigiruth]

HiNot for myself but my Mum did and it made a big difference in improving her mood as well as bring up necessary vit D level. She had no negative side effects.

In week 4 it was like the sun had come out. I hope it helps.

Gigi

[Geeforce99 in reply to Gigiruth]

Thank you that’s good to know 😀😘

[Bakery40]

Hi there , Vitamin D at that dose is fine for short term. I had it before myself and since everyday I have to take a ' normal ' dose of it - it's on repeat prescription. When it comes to covid and fybro = very bad combination. I have long covid and my life never been the same since. As you said chest pains , exhausted all the time but it's to the level when I can hardly move sometimes. Brain fog worsened is well. I was advised to take B12 ,but had blood test before to see the level of B12 in me. Since then I'm on it. Well I wish you all the best , be strong and continue to fight it !

Take care.

[Geeforce99 in reply to Bakery40]

Hi Bakery40 sorry to hear your still suffering after Covid, after talking to family and friends seems to be allot of people with long covid.

Just makes us wary taking things as I don’t want it to get worse as your aware it’s hard enough just getting bit of sleep.

Wish you well and take care too 😀🙏

[DoubleMalibu]

Hi Geeforce99

My blood test this week showed low vit D, so Dr has put me on 40,000 unit once a week for 7wks.

It happened to me in 2020 too, so don’t worry it’s just the usual high dose to increase our level to the normal range.

Best wishes

Lj

[Geeforce99 in reply to DoubleMalibu]

Great thank you for this 👍🏻😀

[DoubleMalibu in reply to Geeforce99]

Morning Geeforce99

Do you have fibromyalgia and Lupus, with it being in brackets?

Can’t be easy managing both.

[Geeforce99]

Hi double Malibu yes I have lupus and now fibromyalgia advised on last hospital visit. The worst thing is trying to work and wanting to get back to normal very frustrating then it flaws you like being beaten up by an invisible enermy do what ya can😀👍🏻 that’s life!

[Debsdelight72]

I've just finished my 2 weeks on the 50 000, Now 1 a month for 5 months, I still don't feel any better,

[Geeforce99]

Debsdelight72 sorry to hear you’re not feeling any better. I hope you had a blood test after the two weeks to check your vit d levels if not best check with doctor.

I’m on 50,000IU one tab a week for three weeks then blood test to check levels then another three weeks the same then blood test if ok then one a month for maintenance.

🙏

[Debsdelight72]

Geeforce99 No follow up bloods after, I have low zinc and theGP has put me on a ststin as well now, I'll give it another couple of weeks and if I don't feel any better I'll go back

[Diane65]

hi yes I was put on a high dose of vit d as my appetite was so bad I was lacking in a lot of vitamins etc. Felt much better once I'd finished the course of vit D.

[Magnusj]

Geeforce99 I am having the same. Caugth covid Jan 1st and the past 11 weeks been a complete nightmare with all kinds of symtoms but dyspnea, asthma-like issues and chest tightness (even diapraghm tightness/cramps). And i never had asthma or experienced any SOB before for 43 years.

[Geeforce99 in reply to Magnusj]

hi magus sorry to hear your going through this and hope things improve soon for you.👍🏻😀

I have been told recovery takes time and seems to improve then wiped out again next day strange think it gets called long Covid at 12 weeks. 🙏