I have fibromyalgia also suspected PoTs and just recently got diagnosed with me/cfs. I have been having some difficulty with walking and getting around the house, I am finding myself holding on to the walls and kitchen counter for some support/ balance as the pain is getting really bad, is it time for me to start looking at some sort of mobility aids?
If so, what are your recommendations for mobility aids?
I’ve tried all kinds of walking aids. Just recently I’ve brought a crutch and have found it the best thing ever. Wish I’d got one years ago.
I have a sit on wheeled walker but find it gets in the way of my legs, clearly not using it correctly, and is no good outside 'cos I live on a steep hill. My main support is my walking stick - or a shopping trolley when at the supermarket 😀. At home I do rely on walls, door frames and furniture to prop me up. The kitchen counter top is a favourite 'cos I can lean forward on it and take some of the pressure / weight off my hips and lower back. Good luck finding what suits you, it is trial and error I think.
I would say: yes ! A stick for days when your balance is really off - but a physio recently told me that sticks are a double edged sword and can cause loss of strength and balance if over used, so cautioned me to use very judiciously, only when I really have to.Proper grab rail on the kitchen wall if possible? Something similar in the bathroom? A bath or shower board has been really helpful to me.
And a PIP or similar application is worth considering, and getting appropriate professional help e.g. citizens advice type organisation, etc, to complete your form. You could then consider getting a mobility scooter for times you really need to use one.
Also, fluid intake is key. Drink at least two litres a day. I was diagnosed several years ago, with an orthostatic intolerance issue, by professor Julia Newton in Newcastle, and she drove home the importance of hydration. I go everywhere with a water bottle!
Ask you GP for referral to Physiotherapy Therapy to see what walking aid they would recommend and provide you with free of charge. Also you could ask for referral to Occupation Therapy where they would access you and you living conditions and again offer free of charge aids for helping you at home. This is all provided on the NHS. Then if you would to buy your own then you would have a better idea on what aids would be best. I hope you find my advise helpful and the process works quickly for you.
A very helpful post from member Fibropatient this sounds like the way too go and you differently need the right help too ensure your safety in the home etc, I hope the doctor can move you forward on this soon , in the meantime take care 😊
I have a wheelchair which lurks in the garage as too many hills here! I also have a stick for when I'm particularly wobbly, and I have a Rollator for going out with, They all have their place, but I only use the stick around the garden.
Cheers, Midori
I just invested in some pacerpoles, expensive but I find them really help, they also are designed to maintain a good posture.
Hi sweetie.I personally started out with a stick them a light weight foldable Zimmer frame and when I have to go to appointment I use a wheelchair.
I resented it at first but I can only walk a room at a time before I need to sit down. I even have a surround aid for the loo so I can stand and sit on it without asking my carer for help.
Search online for ideas too.
I'm sorry ur at this stage as it can be disheartening.
You can also get a sense of freedom once you get used to the aids.
I hope this helps😊 hugs🤗🤗🤗
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