Burning tongue: Hi has anyone suffered... - Fibromyalgia Acti...

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Burning tongue

Deezy24 profile image
Deezy24
ā€¢18 Replies

Hi has anyone suffered with a sore burning tongue. It is making my life a misery šŸ™‚

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Deezy24 profile image
Deezy24
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18 Replies
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Badbessie profile image
Badbessie

Hi nobody can diagnose online. There are a number of possible causes from the menopause to simple infections or some medications. The best advice I can give is to see your GP. I have had these symptoms but they were related to steroid use.

Cotswolds25121 profile image
Cotswolds25121

Hi Deezy24, Iā€™m sorry to hear about this and can only imagine how painful it must be. Have you managed to see a gp? The only way I can understand how you must be suffering is as I have damaged nerve endings in my left shoulder blade area that burns intensely and is so painful I donā€™t know where to put myself and nothing eases it whatsoever. I havenā€™t heard of anyone who has what you have described so Iā€™m really sorry I canā€™t help, all I can do is empathise and hope you can find some relief and answers. Wishing you all the very best šŸ’–xx

Gigiruth profile image
Gigiruth

Hi Deezy24The tongue is linked by nerves to many places in the body and can give indication of problems elsewhere. Even mild and dietary issues.

As we are all so different you could seek medical advice. In the UK ring 111.

My tongue and roof of mouth burn if I eat high acid foods like pineapple or ear highly coloured sweets.

My tongue swells and goes lumpy on the side when my gut is bad.

Hope you feel better soon

Gigi

Deezy24 profile image
Deezy24 in reply to Gigiruth

Hi Gigi thanks for your reply. It is just so sore and it even hurts eating toast. Of course Iā€™m panicking now itā€™s the worst scenario which doesnā€™t help! I will go to drs tomorrow and ask for blood tests.

Take care x

Fra22-57 profile image
Fra22-57

yes and I must remind myself to visit gp again next week couple of weeks ago he gave me medication and mouth wash.All used up now and my tongue is still very red along centre and where itā€™s red n tip feel like Iā€™ve burnt it all the time.I find any food is irritating it.Is that what itā€™s like for you

Deezy24 profile image
Deezy24 in reply to Fra22-57

Hi sorry I missed your reply. Yes itā€™s exactly like that and it does get you down at times. Sometimes I canā€™t even eat toast as itā€™s too painful. I am going to make another appointment tomorrow as I want to be able to eat properly when I go on my hols. I hope you get yours sorted.

Bessy01 profile image
Bessy01

Hi yes I suffer with burning tongue seen consultants without any conclusions. It seems to happen when Iā€™m having a flare with my Lupus.

Phill1 profile image
Phill1

there is a condition called Burning Mouth Syndrome which Iā€™ve had in the past and a low dose of Amitriptyline helped .. gone now

Also try SLS free toothpaste .(eg Aloe Dent from..Amazon. ) some people like myself react to that particular chemical in toothpaste which causes sore mouth/ gums..

Deezy24 profile image
Deezy24 in reply to Phill1

Thank you. I will go and have a look

Purpledelphinium profile image
Purpledelphinium

Hi. If you are getting blood tests, ask your GP to look for iron deficiency as this can cause a sore tongue. Iā€™m currently having this issue with sore tongue and have discovered Iā€™m anaemic again. I hope you get to the bottom of it soon and can get relief.

Deezy24 profile image
Deezy24 in reply to Purpledelphinium

Thanks. If you donā€™t mind me asking does it get quite bad like even drinking sparkly water or eating toast hurts? My neighbour kindly suggested I may have mouth cancer which has left me feeling great!

Purpledelphinium profile image
Purpledelphinium

Oh dear! Donā€™t you just love it when people give you the worst case scenario! It can get really sore so that itā€™s really uncomfortable to eat. For some bizarre reason it seems particularly bad with bananas, Iā€™ve no idea why. I hadnā€™t associated it with my anaemia but I looked up symptoms and sore tongue was one of them. I was thinking I had a sudden banana allergy or something strange. It can feel like itā€™s burnt. I hope you can put your neighbourā€™s ā€˜helpfulā€™ suggestion out of your head.

Deezy24 profile image
Deezy24 in reply to Purpledelphinium

Thank you. Il get on to it tomorrow

Bolognese2022 profile image
Bolognese2022

I use to get that a lot. Could I suggest you look up symptoms for oral thrush. ( not the same as vaginal thrush). If itā€™s sounds like your symptoms, your pharmacy or nurse practitioner can give you something for that.

Deezy24 profile image
Deezy24 in reply to Bolognese2022

Dyu know when I first went to drs he gave me something for that but it hurt my mouth so bad I didnā€™t continue it. I will ask for something else too. Thank you

blueisgreen profile image
blueisgreen

I have what's called "geographic tongue", a syndrome for which there is no cure, no known cause and no remedy. I'm in horrible pain with chili peppers, pineapple, tomato, and the list goes on. I have a big split down the middle of my tongue.

Deezy24 profile image
Deezy24 in reply to blueisgreen

I also have that big split. Thanks for reply. I have put a form into GP online so fingers crossed!

PinkMarshmallow profile image
PinkMarshmallow

Hi Deezy24

Back in 2021 I was referred to an ENT specialist with a burning & really painful tongue which i had already been suffering with for a very long time. After looking down my throat & at my tongue, I was told I could have a suspected tumour on the back of my tongue...which as anyone can imagine scared the life out of me. Luckily I didnt have to wait too long...but long enough, for an appointment.

I was put to sleep & they took 2 biopsies from my tongue.

I am so pleased to say they weren't cancerous.

So I am just letting you know of my experience with ' burning tongue' & indeed you are not alone in suffering from this.

I was never given a reason or what could be the cause but was so relieved!

Not trying to scare you but just telling you of my experience & that it is highly unlikely, as this is very rare but they were ruling out the worst case scenario.

Hope this helps you xx

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