Sin Rash

[Greengems]

Hi everyone would just like to get some thoughts on this. I have been told that my Lupus is probably in remission due to negative test results and my symptoms are from fibromyalgia

We had a sunny day on Monday and I covered up as usual no skin exposed as far as possible and sun screen. I now have a sore patchy rash on my neck. Does fibromyalgia effect the skin and if so in what way all my family says it’s a lupus rash and I am not sure no idea what to treat it with and I can’t bear to number 30 plus on phone to get through to see if I can get a Gp telephone appt.

Many thanks for reading this is a great forum.

[Greengems]

oh dear title was meant to read skin rash but may sin rash sounds more exciting.

[Allingham60 in reply to Greengems]

Hi Greengems, fibromyalgia causes diffuse pain throughout the body but I've not heard of it being associated with skin rashes. I have Sjogren's and fibromyalgia and am also photosensitive, but the sun intolerance is due to the Sjogren's (and also perhaps to taking hydroxychloroquine) rather than the fibromyalgia.

I agree that 'sin rash' sounds a more racy description ... maybe it'll catch on?!

[Greengems in reply to Allingham60]

Thank you for that. I think the Dr is going to have to sort this for me.

[Dizzytwo Moderator]

Hi there, I am wondering if your question could not be better answered on Lupus UK maybe? Just a thought.

Momo

[Greengems]

Thank you Dizzytwo maybe your right do I have to retype or can I some how repost to Lupus UK. No good at tech things

[Dinkie]

I have skin sensitivity, as soon as the sun comes out, or even the light used by my dentist will bring out a rash. I also have rosacea so skin is a little sensitive due to that too. Dermatologist said to use factor 50 sun protection every day even in winter, I don't because of the cost of it!

[Gigiruth]

Hi GreengemsI have FM. Sjogrens and a non specified auto-immune condition. This means my body reacts randomly and I have swelling and rashes regularly.

I have found heat and cold also make a difference and reducing stress helps.

It is my genetics that have caused this so I avoid most medications.

The swelling and rashes have got better over yeses but I avoid sun.

Take care.

Gigi

[Purplelife123]

hi there, I was diagnosed last summer with fibro although feel I have had it for many years. I have problems with my skin especially on my face and chest. On my chest rash comes when I have a flare up and usually goes in a few days but my face gets what doc says is stress eczema most likely caused by the fibro. One of the other ladies on here put me on to a cream called la Roche posey. It’s very good . Hope you find something to help.

[KytttyKatt]

Sorry to hear about your rash.

When I need to call my GP I speed dial the number as soon as it opens and know the options that I need to press to get through and dial those straight away. This way I’m usually in the top 2. Maybe trying this will help. Or do they have an option to request online?

[RustyOBear]

Hi greengems, not sure if you are in UK or US as the health systems are quite different.

In UK you can ask a pharmacist in your local chemists to advise whether it’s something that can be dealt with using over the counter meds or if needs to be seen by GP.

With any sudden appearance of rash I’d always go straight to the GP.

I did this about three days after a rash appeared on my neck and it turned out to be shingles. If left any longer anti-virals would not have worked. It can be contagious for those who’ve not had chicken pox before and you need to keep away from pregnant women to avoid passing on, so quick diagnosis is important not just for yourself.

One of the problems with chronic conditions like Lupus, ME or Fibromyalgia is assuming every symptom relates to it.

If in doubt, seek clarification from GP or Consultant.

Hope it clears up soon for you.

[Greengems]

Thank you everybody for your comments I wear factor 50 sun cream and wear double layers trying not to lay any skin show I also wear a wide brimmed sun hat. I am a red head so I suppose that doesn’t help. Thanks for the advice about the chemist and alternative creams. Will be speaking to the Dr next week so will run it all past her. Thanks RustyOBear for the reminder that sometimes it’s due to something other than the chronic conditions.