Is this it 🤔

[Outoftheblue1954]

I have been diagnosed with Fibromyalgia and it has absolutely floored me. The pain I can sort of deal with but the extreme tiredness is something else. I have no energy to do anything and I can go from sleeping 10 hrs at night, up two hours and shattered again that I have to sleep for an hour. The other side is unable to sleep at night. Do other people suffer like this and what if any remedies they have found.

[Dizzytwo Moderator]

Hi there and welcome to the group 😊 Talking from my own personal experience of 40 years of fibro. I would definitely say no this is not it.

Like all people suffering from any chronic health problems. Life is what you make it. Yes it may be different. There maybe bad times and good.

For me I make the best of the good days and learn to ride out the bad days/weeks.

The one thing that helps me through the bad times is remembering fibro is not terminal. Yes it may feel like it but I try to remember there will be better days to look forward to.

I guess it's down to a persons frame of mind to be honest xx

Momo

[Ladame]

Hi, I was diagnosed January 2020 and my main issue is tiredness. I feel so frustrated at not being able to do what I want to do and having to pace myself. I’ve learnt to not do one thing if I want to go out say later in the day as I know I will get too tired and end up having to stay in. Most days I end up nodding off during the afternoon as I just find it impossible to keep my eyes open! Some nights I sleep fairly well and then others I just can’t get to sleep or can’t get comfortable. Then people say “well you look alright!” It’s hard getting to grips with the diagnosis and I often end up grumpy 😠.more so when I’ve overdone it! It’s a case of accepting that you can’t do everything and having to say no to helping or doing things- easier said than done! I also have rheumatoid arthritis which can make you tired so you never know what is causing what 🤪. I don’t have any medication for fibromyalgia itself. I tried amitriptyline but it wasn’t right for me. I have Tramadol for the RA and take antidepressants, vit D & Calcium for my osteoporosis, folic acid to do with Methotrexate I take for RA, Omeprazole for hiatus hernia and Diclofenac gel to use on painful areas. I also take an over 50’s multi vitamin. One way or another you learn what helps to keep you going! Sorry to hear of your diagnosis but you’re not alone and this group is wonderful for advice or just sounding off on a bad day. Keep smiling, be brave, stronger together! Sending hugs x

[denny_the_wench]

The tiredness for me is the sign that I've been doing too much and need to give my body a rest. Google "Spoon Theory" which is an ideal way of thinking about how this issue affects us. I also liken my energy level (or lack of it) to being on a diet. If I know I want to have a meal out at the weekend then I cut my calories during the week so that I can splurge a bit - if I splurge too much then I know I'll have to cut calories for a few days afterwards. i.e. if I've got an event I want to have energy for I rest up for a couple of days before (and after).

Listen to your body, sleep when you really need to if you are having a flare up but try to keep it to a rhythm if you can, nothing worse than being wide awake at 4am when everyone else is snoring!! Have a warm (not hot) bath or shower before bed, listen to relaxation sounds or do meditation - calm the mind - not TV or Facebook. I find Lavender spritz on my pillow helps me relax too.

Gentle Hugs x

[Outoftheblue1954]

Thank you for your replies and advise, and kind words. It is much appreciated. I think I am still trying to get my head around it as have always been so fit and never had to think about the things I do, definitely not used to pacing myself. I definitely do not feel sorry for myself but I do feel a tad cross with myself that I cannot do as I used to. Just have to try and get my mind set right, fingers crossed. Take care all x