Ausie

[Ausie]

does anyone suffer from excruciating pain in there hands it’s as though someone is sticking a knife in my hand where the joint of my thumb is. I can’t hold a pen to write anymore it’s in both my hands

[Dizzytwo Moderator]

Hi sounds like it could be OA. I started with it in my thumbs.

Momo

[Ausie in reply to Dizzytwo]

what is OA

[Dizzytwo Moderator in reply to Ausie]

Osteoarthritis.

[Cringleblue]

Hi 👋 I have this exact same pain, but strangely in my left foot!! I can only describe it as my big toes knuckle bone, it throbs and burns and feels like a sharp stabbing pain. Popped down to a and e and have been told its a fibro flare up and now have crutches to wobble around on til it passes. If it gets too painful, I would defo say go to docs or hospital. Our docs are very slow at mo, so popped down to local a and e and the doc I saw was actually a pain specialist and was absolutely fab with me! Don't suffer in silence, I left it 3 weeks of dodgy walking/limping before it took me falling to actually get some help. I hate asking for help, but woth 4 kids, I really needed it! Hope you start to feel better soon xx

[Ausie in reply to Cringleblue]

thank you so much

[Dizzytwo Moderator in reply to Cringleblue]

Hi there, I was surprised to read you were told the pain in your big toe was fibro. I certainly would be questioning that with my GP if it was me.

The most common reason for big toe joint pain is arthritis. The pain is usually worse at night, with the first few steps in the morning, and with increased activity. There are other causes like gout, but stress and damage to the big toe joint is the underlying problem.

I am not medically trained. But have had fibro for 40years and have never heard big toe pain related to fibro before.

And may I just say while A&E are under so much pressure at this time maybe calling a GP or 111 would be a good alternative till things improve. Unless its a life or death situation.

[Cringleblue in reply to Dizzytwo]

I did question this also, as thought it was rather strange to have such strong pain in my foot. My toe was fine, it was just bearing weight on the left foot was extremely hard. It has started to settle down now and I'm slowly putting weight back on the foot. The specialist said it was a flare up, apparently can happen any where and every where! I never knew this, so just take each day as it comes. My bones and bone structure is fine, its more the muscles I have trouble with leaving me very weak. I have made notes of this flare up though so I can refer back to it in the future.

[Dizzytwo Moderator in reply to Cringleblue]

Hi I was going on what you said.

"I can only describe it as my big toes knuckle bone"

Again for me I would still be questioning the diagnosis. There many reasons for foot pain other than fibro. I also suffer with plantar fasciitis which can be extremely painful when putting foot to floor. I hope you find some relief soon.

[Cringleblue in reply to Dizzytwo]

Sorry, I'm not great at trying to explain my pain to somebody. I don't have any bone pains as such, just constant muscle pain. All over. It's exhausting. I've not heard of plantar faciitis before, I hope it's not too painful for you. Soon as my feet hit the floor every morning the pains streak up my legs, then constant throbbing and aching all day, every day. I'm still fairly new to FM, even though i was diagnosed 2yrs ago. I've not taken the time to research it thoroughly, partly due to being scared of what I may read, and also a naivety too I guess. I'm a single mother to 4 kids so finding time for myself is hard enough, but I'm learning each day. The pain specialist was really fantastic, gave so much advice which he then had to email as I'd forget it all! I hope your pain eases and you have a good day, and I will most definitely being looking up on other symptoms I have also incase there is an underlying condition somewhere. Thanks for your help!

[Al10 in reply to Cringleblue]

Hi Cringleblue, I found doing Exercises helped. The fact you say it's once you're up and feet hitting the floor, I'm thinking, do you need stretching out somehow? Personally, I like figuring stuff myself because I think I can take the time others don't, and I too don't explain very well under pressure. Like in an examination, they tell you to do this or that and ask how it feels and my processing plant can't deal with it all, so they don't get a good picture. That and how fibro pain follows the exercise and is not so much an instant Ouch that exercise hurts? Few professionals understand that IMO. Also, my GP really hates Fibro, so if I think it's just another Fibro pain, I usually can't face bothering him. I'd rather do what I can first.

Anyway, I found the lovely Brad and Bob on Youtube and just the exercises I needed. It helped my hand pain some, and also my feet knees etc. They are proper qualified somethings? But also watchable and funny too sometimes.

Also, when I went to the physio, they gave me a badly hand drawn diagram to remind me the exercises I was doing. The Videos were so much better and clearer. I'm not co-ordinated, so checking back to see whether I was doing it right straightaway was helpful. Doing exercises for a week or more and then the physio twigging you are doing it wrong was not helpful for me.

If you decide to give it a go, don't force any movements, and don't over do, just gently follow directions. What they recommend is enough. I was amazed how quickly I started to see relief once I was exercising the right area. I think you just need a little and often approach. But obviously don't start doing stuff if there is something that needs checking first; Injury, inflammation etc. If after a few sessions you feel no improvement, maybe the pain is triggered from a different muscle that needs work?

[Galaxy51 in reply to Cringleblue]

Hi

I was diagnosed with Fibro last year after years of pain , I also have plantar faciitis in both feet, and pain in my big toes, which after blood tests was diagnosed with gout and I'm on tablets for this. So it's worth having things checked as not everything can be put down to Fibromyalgia.

[Galaxy51 in reply to Dizzytwo]

Hi

I was diagnosed with Fibro last year after years of pain , I also have plantar faciitis in both feet, and pain in my big toes, which after blood tests was diagnosed with gout and I'm on tablets for this. So it's worth having things checked as not everything can be put down to Fibromyalgia.

[Dizzytwo Moderator in reply to Galaxy51]

Hi there, I think your reply was meant for cringlebue is that correct? But I do agree with what you said. My first thought also ran to gout.

[Galaxy51 in reply to Dizzytwo]

Sorry yes was meant for the other person. Mind not working today.

[Dizzytwo Moderator in reply to Galaxy51]

No problem 😊

[Emaych61 in reply to Cringleblue]

I’ve had pain in my feet not dissimilar to that in the past (it felt as though I was walking on broken glass and the pain emanated from between the first and second metatarsal) and was diagnosed with Morton’s metatarsalgia (I think). In my case it’s almost certainly connected to the fact that I have Hypermobility Spectrum disorder and my foot arches were collapsing. I now have orthotic devices and do exercises to help strengthen the muscles in my feet. Things have improved markedly as a result.

[Chunky6]

hi Ausie, my hands are very sore and worse in the mornings and terrible when I have a flare up. I have ordered some compression gloves to see if this helps, I’ll keep you posted.

[Ausie in reply to Chunky6]

I have tried all these gloves nothing seams to work. Just something we need to live with 😢

[Chunky6 in reply to Ausie]

oh no, I hoped they would help 😩

[1whitestar]

Hi I get this . And my hands swell and fingers go hot red and itchy. But I here this week about my bloods .

[moo196]

the absolute best thing I have ever done wrt pain in my hands is to give up diet coke and everything else with artificial sweeteners in.

[OMALI]

Hi, yep I get exactly that.. My Gp diagnosed OA , my thumbs lock up aswell😢

[denny_the_wench]

yes.. currently in a flare & waking up in the morning with clenched fists and pain in the thumb joints.

[Looloo50]

Hi I was just referred for pain in my hands right up to my elbows she sent me splints for both and has now referred me to have the nerves looked at in my hands , I think it’s OA personally as anything I do for example hoover ,clean I suffer next day for it .

[Frenchi88]

Yeah I have it too. It started in my thumbs first and now the joint . I had xrays in one hand and it's Osteoarthritis as mentioned by Dizzytwo., but now it's in both. Both my little fingers have OA too but my right hand one is excruciating and the slightest knock and the pain is dreadful. So yeah sounds to us like OANow I'm looking for some sort of support for my right hand pinkie as I need to protect it from knocks.

It's horrible I do feel for you bless you 😒

[Frenchi88]

I also get it in my right foot on the tip and ot feels like it's going g out of joint the same as my hands and that's debilitating aswell. It makes me walk terrible. I have to use a crutch until it allows me to walk again. And I think I have Plantar problem in my left foot so that makes me limp too. It's difficult to limp when you have problems in both I find. It also affects the base of my toes. My hands and feet feel like they get locked in and have to wait for them to unlock. Well if there's any place u cane get advice it's on here and when you need it too. My husband and Mum keep telling me that I shouldn't put everything down to Fibro as that's what I always do. So I guess I'll heed the advice you've been given "getting it checked" so good luck and hopefully you'll fins something that will help you.F xx

[Hidden]

Hi Ausie

Not a cure as I still cannot write properly but for my excruciating hand pain (diagnosed years ago as rheumatism, and years before my osteo diagnosis) I take:

2x750mg glucosamine HCL (hydrochloride, not sulfate) and 2x250mg shark chondroitin which =1500mgglucosamine HCL &500mg chondroitin per day.

-Always take with food.

Hope this is of help.