So Ive been finding life a struggle, sometimes, for about 6 months. I thought it might be ra as my mum and grandad had that and I knew it comes in waves.
Some days I can walk for an hour and feel great another day 10 minutes and I have to lie down because of the pain.
Seems despite my joints and muscles throbbing there is no, no inflammation, seems odd to me. The Rheumatology guy poked me in a few places and dismissed me with fibromyalgia and a prescription for amitrypline and go away.
Friday I drove to pick up my son, we went back to my place and he did a few jobs for me that I cant manage for myself, I took him, drove home, maybe an hour and half total driving and I was in so much pain and so much fatigue I could barely walk from the car to the house. I just went straight to bed.
So my question, how do I deal with this? Ive always been active, gardening, walking, socializing, what do I do now?😑
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Welcome to the fibro family. When u are first diagnosed it can be hard firstly to accept the new me n secondly as Drs really don't understand what fibro is or what causes it so offer very little advice. Everyone here is going through the same thing n can offer their own advice. I feel u need to tell your Dr the pain u are in firstly so maybe they can look at some meds u can try. I myself am a heat girl, love my heat pads n infra red lamp n my newest addition is a heated throw which is pure bliss! I have king size light fleece blankets to curl up in, which I put under, over n between to ease pressure n would be lost without my weighted blanket it's like a warm hug at bedtime. I've even recently bought myself a hybrid mattress, all of these things don't stop the pain but they offer comfort. I have a laptop which is great item to have as I can prop it up beside me. Try out different positions and change positions often. If u can find things u like to do to help pass the time. U will get good n bad days n will need to learn to pace yourself as it is way too easy to wake up feeling better then overdo tasks n end up bad for the next 3 days! ( After 11 years I still struggle with that one lol!) As for fatigue, set easy achievable goals each day to reach n break down tasks into manageable stages. Throw your calendar out the window as fibro makes it impossible to make plans as u never know how u will wake up feeling n get your friends or family to visit u instead of travelling. Buy yourself small treats now n then n be sure to ask for birthday n Christmas presents for u not the fibro. There are so many freaky fibro symptoms so feel free to post here if u need advice. Most importantly remember u aren't alone n have our support. Live life in slothmode. Gentle hugs 😊🤗
Hello and welcome. Your last sentence was differently me, it does change the way we have too go about our daily lives, do something , paste, try something else , @paste through out the day, I am still learning too tell myself look at what you’ve achieved ,not what I have not (hard I won’t lie) Always have someone to talk you ,a good friend say , it can be a range of things just having a good chat and divert your mind away onto something else.I have just read SlothMode s post, that’s me especially now it’s cold, hot water bottles , comfy throw, my iPad propped up in bed in the Winter watching something positive like a nice film or series. Thinking of Spring when I can actually sit outside as differently don’t hurt so much with warmth. My garden was and still is my passion but like you my son is now helping with this he s self employed so I get to pay him and see him at the same time . Hope you find the forum helpful lots of members in this enormous unwanted club xx
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