Bad year

[Fibrofog]

This has been a bad year for me. I got diagnosed in March with fibromyalagia, but for the whole of this year, I have struggled. I can't seem to have a good day. And now awaiting an operation to remove my tonsil as it as a lump in it!I just never feel good, and I'm more comfortable when I'm in bed, so that's where I am mostly.

[Hidden]

I am sorry you suffer so: this thing is merciless I wonder, is it possible to get out of bed and move your limbs? In bed, fibromyalgia take more and more from you. It happens to me all the time. I've been in bed for two weeks now, the cold is unkind, but this morning I am going to swim. I don't know how much or even how but I'll try. Hopefully within a month I'll get back some control. Good luck to you.

[Fibrofog in reply to Hidden]

I do get out of bed in the morning, then its a case of trying to get back into bed sooner rather than later.

Hope you manage your swim x

[Hidden in reply to Fibrofog]

Of course you get out of bed! Sorry, I missunderstood. Hope you have a better day today.As for swimming, I did 30 minutes of very slow strokes, but I did. Now , it is a question of what price I'll pay in the evening in terms of fatigue. Jeez, the amount of negotiation, weighing we have to do just to manage a day is exhausting in itself.

Good luck with 2023, Fibrofog.

[Fibrofog in reply to Hidden]

Hope you don't suffer too much. And no need to say sorry. I'm not very good at explaining myself x

[Merrrm in reply to Hidden]

Swimming is great and your right..the cold hits hard with fibro. If only swimming pools were a bit warmer...the water..the pool-side temp and the dreaded changing rooms! Hydrotherapy pools are great but not always big enough or available. I hope you make your swim x

[Hidden in reply to Merrrm]

Oh, yeah Merrrm, the cold. Even the walk from the showers is perilous. By the time I got to the changing room, my swim suit was freezing. Not good for Raynaulds if you have it. I am going g to join a pool with sauna so I can roast for 15 minutes, jump into a hot shower and try to hurry. Have a lovely day.

[Merrrm]

I think coming to terms with a Fibro diagnosis takes a while and working out what triggers flares, what'll work for you to ease the various pains and knowing when you're overdoing things.. all take time too. I hope your tonsil surgery goes well and that'll be one thing less for you to worry about x

[Fibrofog in reply to Merrrm]

Thank you. I've also got chronic fatigue syndrome and various other things as well.

[rosewine]

If it is any consultation my first year when fibromyalgia really flared up (I think I might have had it for a long time) was the worst. My body was just rebelling and many days I could barely move. Slowly I devised a plan and tried to do gentle exercises from my chair slowly increasing the time. I had always eat quite healthily but incorporated more fruit etc into my diet. Painkillers and Pregablin helped with some of the pain and I managed to pace myself better. I also got a rescue dog and that forced me to take a walk every day, again often a struggle but to see the joy she has when going out is worth the struggle.

If you can fet hekp from a Pai Clinjc especially with a course of hydrotherapy you might fi d it helps, it certainly helped me. Many days are very difficult and if I get any infection my body goes into full body flare mode but I do manage the condition better than I did in the beginning.x

[Thor7860]

sorry for how you are feeling and don’t be so hard on yourself been there in my comfort bed zone but as I have children I need to be active and do what I can do