medical cannabis

hello everyone.

has anyone here been invited to take part in medical cannabis trials, from UK Fibromyalgia (link removed by admin)

ive been invited this week, just curious to see if anyone else as took part in it.

thanks

[Painny]

I never heard of this organisation, I just saw their website and not much info about it

[Hidden in reply to Painny]

me neither, i only posted it to see if any others had been offered the same, wasnt sure if it was a scam or not

[Painny in reply to Hidden]

oh, okay, it’s not a kind of webpage I look into. Any logical organisation would say who they are, not here.

[Hidden in reply to Painny]

they emailed me asking if id like to take part in the trials, asked for a drs summary etc.. i think when i signed up here i clicked a box asking if id be interested if any new meds or trials came up, might be that, it was here or some other fibro site i clicked the box..

[rosewine]

I was asked if I would like to take part as I think some time back I ticked to say I was open to certain trials. I declined as I have tried certain drops etc and they have given me bad side effects.

[Hidden in reply to rosewine]

thanks for confirming just needed to be sure

[bertie1606]

It was in an email from UK Fibromyalgia. I filled in the info. Prices and info are on their website x

[Hidden in reply to bertie1606]

thanks for confirming

[BlueTofu]

Yes, the invitation was sent to me, but I'm not doing it because of previous bad experience, and as I get so many side effects from anything.

[Hidden in reply to BlueTofu]

thank you for clarifying

[QUE6T-33 in reply to BlueTofu]

hi Bluetofu, can I ask what sort of symptoms you experienced ?

[BlueTofu in reply to QUE6T-33]

I just felt really ill. It's a long time ago. But I have got worse in my reaction to any medication. Also can't drink alcohol or have caffeine, minimize any added sugar etcI had to quarter the dose of Nortriptyline when I was put on the minimum 10mg dose.

I guess I think the risk versus gain equation, makes me feel it's not worth it.

[QUE6T-33 in reply to BlueTofu]

yep, agree with you - not worth it.

[Hidden in reply to BlueTofu]

ive had to give up teas, coffees, chocolate, vinegar, cabbage and loads more, even sticking to basic foods like beans on toast sets my stomach off, i was diagnosed with a hiatus hernia in 2020, i assume that courses it for me, but with covid and everything else going on its never been explained to me,, they found the hernia because i was sent in for a biopsy on my pancreas (which they never took) and ive been going down hill ever since, started having breathing issues not long after, it came and went at first slowly building up to everyday, had to give my job in feb this year due to it, told the doctors for 2 years that something else was wrong, they dismissed it saying its your fibro, theres nothing wrong with you etc, making me feel its all in my head, i kept pushing managed to get a chest xray a month ago, and 2 weeks ago i was diagnosed with a collapsed lung.... it goes to show its not always fibro, but drs always say to easily every things fibro once your diagnosed with it.. the last 3 years have been a nightmare.. good luck

[BlueTofu in reply to Hidden]

I'm so sorry for the struggle you've had to be believed, I hope you've now had treatment for the lung that has helped

[Hidden in reply to BlueTofu]

no nothing, no treatment, not been told whats caused it,not been told if itll get better or if itll get worse, nothing at all. im done with the nhs, ill never trust them again

[Hidden]

thanks for replies everyone, i just needed to be sure it wasnt a scam etc, need to be careful these days,, ive click yes anyway for now, just because im curious about it, but wont be taking it, because i think your driving licence gets suspended..

[Arymretep]

Yes i got an e mail too but they wanted your medical records so I didn’t bother.

[Duffy2021]

I have tried medical cannabis with project 21, it didn’t really help me, except slept a bit better. Is quite expensive, you have to pay to speak with your consultant every time and the product is about £150 per bottle, I had one for the day and one for night. Lasts about a month. Hope this is useful information for you.

[Hidden in reply to Duffy2021]

im going to be giving it a miss.. think id rather make my own oils if i was to try it now. thanks for replying

[Taima in reply to Hidden]

Better you get a prescription either way for legality reasons