fibro, meds and pregnancy

[Aelin]

Hi guys

I'm pretty worried what the next few weeks are going to look like for me. I asked the GP to do a meds review a few months ago as I was having the marina coil removed, this included 600mg of prcegablin a day. I was told this was safe during pregnancy so got on with my life.

My GP phoned the other day and told me that guidelines had changed and that people pregnant or trying were to be taken off prcegablin. She wants me to go from 600mg a day to 300mg a day for a week then 150mg a day for a week as I'm already over 8 weeks pregnant. On top of that I was in the hospice when she called and lost my father later that day. So I'm worried about coping with pregnancy, grief, and a dramatic come down of meds and the side effects that may give. Ive been on pregablin for years and have bad diarrhoea within hours of missing a dose. I have to deal with my mums grief my three teenagers and a funeral and paperwork to deal with like death certificates and mums benefits.

Its a lot to deal with and I have a final assignment for my college course that if I don't pass it I fail my whole course. I just want to curl up with my head under a pillow. feeling a bit brainless and overwhelmed right now. The only good news is that I had an 8 week private scan and baby is doing well, Im nearly 40 so it was a worry

[Cotswolds25121]

hi Aelin, I am sorry I cannot help you with regards to the medication side of things but I can offer some kind of support even if it isn’t in person. I am sad to hear about your sad news and anybody would be overwhelmed in your situation dealing with grief yourself and others in your family too. I am going to say though and I do hope I do not upset you by saying that your priority is for yourself and your unborn baby. Of course I am not saying you shouldn’t be there for your Mum and children all I am trying to say is that, obviously if they are very young teens then it is different to older teens, but if they are more advanced in age then your Mum and they should also be there for you right now. It is a hell of a lot to be taking on for you atm. Others may disagree with me but the baby and without being rude your age as you pointed out is another factor. Please take care and I wish you all the best in the next few months or so and for a happy healthy new little one 🙏🙏xx

[KimiJay]

Oh my Goodness, Aelin! What a lot you have to cope with. I had a third baby at 41. Recently turned 35, he's still adorable and one of the nicest people I know! I hadn't been diagnosed with this crazy condition when I gave birth but with his nice dad, two older boys and a dog who appreciated him too that strange period of going downhill with fibro was kind of deferred. You will get by and so will baby. I know someone who got pregnant still under meds for epilepsy about four years ago. Child is fine (and assertive!) and so is the mum. Good prenatal nutrition probably/perhaps the key for you both. Rest as much as you can is the crazy statement one should never make to any mum but if you can DO. - I never finished my OU degree, but still learnt lots from it. If your College won't make an allowance for your predicament which is quite ridiculously full-on complex, then stuff'em! You know you have what it takes to do well. - Expect to be completely brainless for weeks and weeks. Probably, your Dad's loss will take at least three years to completely get your head around but you will have light moments and some beautiful moments when you experience the strength of love in all its aspects. - It's a bittersweet thing! - Ideally you will find yourself a co-counsellor immediately. Go to cruse.org.uk. They will talk to you and listen and pair you with someone else local most probably. - I was executor for my mum's will so I know all that stuff is doable, though tedious often. I bought a filing cabinet for everything and asked for help when I needed it - and got it. Tell your teenagers what you need from them, even it it's just something to make you laugh. - Elizabeth Kubler-Ross said that people experience emotional numbness for about six weeks after a bereavement. It's protective!!! - Same for you. As a new mother again, your instincts towards protectiveness will be high. As I said before. You'll get by and if you are open to it, strength will come from all quarters. Thanks for sharing. You've helped me to review a part of my life and see that things came around. Never perfect but ok. Very best of wishes to you, your Mum and family. J xx