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Fibromyalgia Action UK

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Pip assessment

Dudders1 profile image
10 Replies

Just joined I had my 1st pip assessment over the phone. found it really hard going is it usually for it to last 1:45hrs, really struggled to explain how debilitating and exhausting fiibromyagia is to live with. Try explaining the affect that fibro fog has on you whilst suffering fibro fog. I haven't a clue how It went

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Dudders1 profile image
Dudders1
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10 Replies

I worry I will be exactly the same! I have yet to fill in the pip form....I need help to do i think, im too foggy! And I may attach my symptoms diary. I log in it everyday. Because I know its hard to remember and recall. I struggle to explain to friends or my partner so having to explain to someone on the phone who is literally judging my every word is very daunting!I think the system is completely unfair, the questionnaire for pip is useless for fibromyaligia and having to condone ones self to some imbecile on the phone who has NO idea what you're condition is like to live with, is quite frankly laughable!

Ahhhh. Sorry I realise I've ranted! But that's how I feel about pip after reading about it. And the wait times....do not get me started! Oh its OK dwp....I'll wait a year for you to tell me I'm entitled....l shall just starve to death whilst i wait!

Anyhow....Good luck with your claim. I wouldn't worry about how you did, I'm sure you did fine. Love and luck to you xxxxx

Groundhog1234 profile image
Groundhog1234

How much is the pip as I’m really struggling to work and think I’m going to have to try pip as no other money if I give u work

Groundhog1234 profile image
Groundhog1234

Thank you so much

PIP is awarded on whay you can or can't do not on your illnesses.. be honest is my advice. Good luck

Dudders1 profile image
Dudders1

Thanks for your support wish I had found this group earlier. Fibro is a difficult and confusing thing to understand and deal with, pre diagnosis I literally thought I was going mad. Its so hard to talk about as the standard reply is generally. oh yes I get tired and forget stuff as well everyone does !!! End of discussion shut up and put up. Invisible disability makes you feel like a fraud very lonely place to be.

in reply to Dudders1

I'm here with you! Went to work today to grab a file I requested (been signed off 5 months) and the big boss was like "you look well" like seriously women???? I feel lonely most of the time. Currently laid wide awake next to my snoring partner and I can't sleep as in pain and the usual fibro shit! Fed up! Xx

Steakandkidney20 profile image
Steakandkidney20

Hi, I had 2hr. Telephone assessment from pips. Horrible, horrendous, hate them. I retained my enhanced living element but lost my basic mobility!!!!! Yet I told her how distressing I found “going out”. This is a ridiculous and cruel set up. I did not contest, the upset just couldn’t justify. Also I was told that if I objected my whole claim could be lost. Basically blackmail. I am now depressed, demoralised and struggle to make ends meet.

Admin Edit: modified language used

Farmerboy profile image
Farmerboy

Hello now that you have had your assessment, you can request a copy of your assessment report and on receiving it you can work out what your award may should be but you still have To wait for the official award notification letter. If on reading your repot and you see and it looks that your not going to be awarded PIP or a lower award than you think is deserved then you have several weeks to prepare for a mandatory reconsideration should you feel the need to make a a request for one once you have have received the official award notification letter. These extra week can make a difference in it allows you to get extra evidence and information ready for your MR should you need to lodge one.

Lazyiamnot profile image
Lazyiamnot

Just some recent useful PIP reported information.

google.co.uk/url?q=https://...

Christine_new profile image
Christine_new

Mine lasted one hour..they failed me as I was on my own for the call..etc etc unbelievable as I'm almost housebound..today I need shopping and all home deliveries are booked up..I'm having a major flare today..I've asked for MR ..so who knows..this is so difficult for me as have no real help..

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