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Fibromyalgia Action UK

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Dandydog3 profile image
7 Replies

Hi I’ve just been diagnosed with fibromyalgia after suffering for 18 months. Any information would be gratefully received 😊

Does anyone suffer from a head tremor ?

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Dandydog3
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7 Replies
Dizzytwo profile image
DizzytwoModerator

Hi there, let me wish you a warm welcome to our group. I have had fibro for 40 yrs and thankfully have not suffered with tremors though I know a lot of members do. Hopefully others will be along soon to share their experiences with you.

In the mean time have you tried our search button?

I also see you have posted this question earlier. So has not to confuse members and keep all answers to your query in the same place, I will close and delete your other post.

Momo

Dandydog3 profile image
Dandydog3 in reply to Dizzytwo

Hi Dizzytwo

Thank you for taking time to reply much appreciated and also for the information on the site. 🥰

Gigiruth profile image
Gigiruth

Hi Dandydog3Welcome

I dont have head tremors but just wanted to say welcome and you are not alone.

I find the search box useful to read others members posts and gain a lot from them.

I kept a diary of foods and other factors so I could identify my triggers. I found the medical terms used by professionals a bit scary,as if I had many nasty conditions. However they were just official terms for a rash or swelling.

Take care

G

Dandydog3 profile image
Dandydog3 in reply to Gigiruth

Hi Gigiruth

Thanks for the welcome and your reply I did use the search mode and found a couple of interesting post’s thank you 😊

You get all kinds of unexpected things and pain in different areas but I believe that people with the desease in there legs and arms suffer the most There’s a cream you can get prescribed from called fed bid 40 this will help with pain but as Iv said I’m not a doctor People with fibromygia suffer so much but let me tell you there is no magical cure for this horrible illness I ran my own company for 37 years in construction the last 10 I had fibromyalgia and other illness so all what happed to me was I worked my socks of and now I can’t enjoy much in retirement So make the most of it becuase im telling you all the pain gets worse the older you get xx

Dandydog3 profile image
Dandydog3 in reply to

Sorry to hear that, you are unable to enjoy your retirement after all your hard work. thanks for the info I have used fenbid 40 it does help a little

Notifewithfibro profile image
Notifewithfibro

You should of never let them diagnose you with Fibromyalgia. I strongly believe that Fibromyalgia is what they diagnose when they don't want to look any deeper into your diagnose. Once you have Fibromyalgia they won't look at anything else. And when you go in for an another problem they won't look any further and just say it is your Fibromyalgia. Then you won't get any help. I believe you can have another ailment along with Fibromyalgia but they won't look any further and just blame it on Fibromyalgia. And even if you do the Fibromyalgia test (which there is a blood test now that diagnose Fibromyalgia) they still won't look into anything else.

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