Side effects after covid jabs

[Henry04]

Anybody dealt with long term side effects from covid jabs? (I had AZ for the first 2 and a pfizer booster) i am dealing with:

Loss of function in hands

Arms aching and bicep muscles constantly twitching.

Please no arguments about the vaccines,just concerned about side effects that began after second jab.

Thanks

[Dizzytwo Moderator]

Hi there, if you feel your symptoms are due to the vaccine then the best person to speak to would be your doctor. If nothing else it may put your mind at rest.

Momo

[desquinn Partner Volunteer FMAUK Trustee in reply to Dizzytwo]

would echo this Henry04 especially if you are attributing your side effects to the jabs and the guidance is to report anything that lasts longer than 7 days to a health professional and also in your case I would also make a yellow card report/

We have had some things mentioned on here but it is not a significant number, consistent, or easily attributable to anything in particular and also not apparently different than a normal population either.

[Rose45]

I had the Moderna booster. The following day I started with very strong pain through my left leg making it difficult to stand or walk. Throughout the day it moved to both legs then the rest of my body. The pain reduced after 10 days but remained generally higher with increased fatigue levels again and reduced function.

I decided to call the GP as I didn’t have this strong a response after the first two AstraZeneca doses. He said it’s an immune response to the vaccine and myalgic pain response. He said he would except me to feel it worse than other people and take longer to subside.

[Adlon57]

Yes I had the same mixture, in February last year, heart flutters, first jab, then April, the fun started, I have Schwannomatosis NF3, and two pin pricks appeared on my left arm appeared the day after my second, either side of a previous operation on my left arm, two new schwannomas/benign growths, my left hand/arm uncontrollable I lost use of my left arm until the effects began to wear off about September, I was in hospital in June, checking my various side effects, but most of the medical staff were interested in my left hand, even was tested for Parkinsons disease [negative]. I had broken my skull from a double seizure January 2018, my equlibrium/ balance was affected from then but again more dramatic side effects[blood pressure to the brain]. With the use of Turmeric that righted my balance issues. I had both my jabs on my left arm, recently been able to wash dishes using my left arm🤗Pfizer booster jab right arm, in November no side effects at all!

[Hidden]

No side effects from Astra Zeneca for 1st two vaccines nothing either for Pfizer booster except a sore arm. Like the others have said speak to your GP if you think your symptoms are associated with vaccines. It vould well be something else

[JayCeon]

I'm one of the rare cases who definitely has had severe side effects from my first and only Pfizer Nov 30th, on sick leave since then, due probably to my overall sensitivity to meds etc.. However my 25 fluey-type symptoms since (much more fatigue, hard to move, burning skin & sinuses etc.) are very much in line with those seen by interested docs as a kind of belated allergic reaction, very probably histamine intolerance and in my case it seems to have developed a mast cell activation syndrome, and treating it like that is helping.

In your case it'll probably be hard to prove it was the jab & I'd guess your docs won't be much help, but do ask; and you might want to treat the symptoms singly with some kinds of gentle physiotherapy? (Soft movements of it or on it, TENS, heat/cold; magnesium malate).

[Al10]

A friend reported similar issues with her hands. She'd had quite long recovery from the fluey symptoms reported by most foks likely due to an ME flare. She checked with her GP and she said don't worry, it's normal. She had the same flu/exhuastion after the second but not so long lasting. (We ME/Fibro bods are easily thrown off kilter. Can take longer than average to throw off aches and pains etc. Anything and nothing can trigger a flare, dont you think?) Since the third jab she developed hand issues. I mentioned studies that had linked demylination with the Astra Zenica in rare cases (BMJ) and she seemed a bit cross. She thinks it's MS (because there have been concerns raised in the past about her current diagnosis) and the jab, unconnected. Likely she is right?

My point was there are different Jabs and if you have a propensity to get nerve related issues, you might choose a different Jab in the future. I don't know? And those affected by this Demylination were slowly recovering, unlike with MS, which is generally considered degenerative. It's like even mentioning about side effects is letting the side down. Remember how years ago, women never talked about childbirth pain? It was like shelling peas; Easy!. Although, thinking about that analogy, perhaps if you were the peo-pod, getting the peas out meant you were never going to be the same again🤔.

Anyway, it's only by talking with your GP, raising a yellow card, if you think you need to that scientists are learning where any concerns lie. The reason why there are warnings about myocarditis in children etc, is because people took the time to raise their concerns. The real life safety data is only as good as the people who take the trouble to add to the body of knowledge.

[JayCeon in reply to Al10]

Hi - thanks for your thoughts: Have you heard anything more directly on my histamine/mast cell connection, e.g. that those ME flares you're referring to do have to do with something else other than histamine? I haven't been diagnosed with ME/CFS, only FM, altho having gotten the pains and some of the Ache down, the fatigue remains/figures more prominently. But what I've read (Klimas, Chheda etc.) regarding my severe jab reaction brings up histamine, MCAS in "soup" with ME/CFS... In any case, considering & treating it as/like histamine is helping quite a bit.

Thanks very much for the encouragement to contact docs despite my feeling it'll probably not help me: You're right - how else is there gonna be progress. My GP is no help, he believes it's not worth the trouble, so I've found an expert who has referred me to another even further away, but at least I should raise my voice.

[Al10 in reply to JayCeon]

Eesh! Not worth the trouble? I think this attitude shows the limitation of the yellow card scheme.

Have read little about allergy issues. One small piece suggested not all reactions are extreme and shocking, but it didn't have much to say. There needs to be research data. It's the life threatening anaphylaxis that gets the limelight.

I'm one of the annoying sort that reacts to stuff. My GP is the sort to deny such protestations. Darn his pesky partners who interfere with such pearls of wisdom as STOP taking those meds, pronto, you are having a reaction!

Drs are taught how patients are susceptible to dreaming stuff up. There is a new study that suggests all those vax' side effects are mainly down to our expectations that we will get them. It's what the media told us hey? guessing that many covid patients likewise, are suffering worse because of their belief they are going to die. It's complicated, isn't it? What we worry on can become real if we give it enough energy.

[JayCeon in reply to Al10]

Yup, well that nocebo effect does seem a viable possibility, and is proven, however like you I think overestimated. I like a recent admonition in JAMA (December I think) which says that docs have been proven far too often wrong in their diagnosis and treatment so should much more take the hunches and decisions of patients into account. They ain't all bad...

[JayCeon in reply to Al10]

Just seen the review you probably mean as "trending" in JAMA's alert mail. They found what looks like a nocebo effect in a third of the patients who only got a placebo jab. The difference to real jabs was less in the 2nd one. They suggest people should best be informed about a likely nocebo effect caused by "worry and anxiety". jamanetwork.com/journals/ja....

I'm not sure if that informing about the nocebo effect will make a difference, because I'm not sure how far a nocebo is influenceable by knowledge, since the placebo can take place even if we know it is placebo. But from a few recent nocebo studies/reviews on pubmed etc. it seems to me that nocebo works differently, i.e. is mainly increased by information (pubmed.ncbi.nlm.nih.gov/291....

[Star-01]

Hi, I had exactly the same mix and nothing with the first two AS jabs but the Pfizer booster…wow the pain I was in for 36hours was awful, I didn’t know what to do with myself and just waited it out and then was fine.

I hope your symptoms subside.

[chookey]

They all sound like side effects from the FM rather than the vaccines. The vaccine just amplifying sensations.I've kept a daily diary for over 2 years where I record all my problems etc; I am always looking for a common factor in my symptoms and the only one I have found to date is that I wake up each day.

[JayCeon in reply to chookey]

Sounds funny! 😀 But do you mean logging symptoms & trigger hunting isn't helping? 🤔

Of course a common factor is rare to find. Two of mine are a subliminal muscle tension which I can influence by amino acids, esp. GABA (even pain for being & lots more at the same time). And dryness of skin, eyes, mouth, throat, stomach - which I need to treat singly, so seeing it as a common factor doesn't help (I drink enough).

Most else has for me been a matter of finding single triggers for single symptoms, which has got everything local pretty much down. And of course overdoing it is clear common factor for some of the generalized symptoms like Ache & fatigue.

Lucky you btw that you apparently only wake up once per day: In my case it's 4-10x... 🙄😀

(And keeping track on how often, how long, triggers and what alleviates them or not greatly helps improve my sleep quality.)

Now my jab sfx all pointing to histamine / mast cells is on top of FM, altho praps connected, very unlike Henry's.

[Midori]

I'm lucky I guess, I had 2 Astra zeneca and the booster was Moderna, as I have allergies, it was thought Moderna would be better than Pfizer.

I've not had any lasting problems.

You need to see your own doctor, because none of us here are qualified in medicine.

Cheers, Midori

[Kel6]

Hi there I had Az the 1st Jab but experience such bad side effects like I had really bad pain in my back I never felt like that before I have fibro but this pain was something else I decided it n end not for me so I never had a jab since I had covid over Christmas my whole family had I would say just talk to your GP about everything really hope you feel better .😊