To anyone

[Autumn1666]

So I was diagnosed with fibromyalgia 9 years by a professor in Glasgow I had been for three years getting the meds right which help but more recently I have been told I have high blood pressure which I am on ramipril I have been reading the posts and there is a blood test for fibromyalgia which is amazing as it took me years before then thinking the pain was me in my head and people thought I made it up I am 24/7 tired in pain have you ever seen the cat video walking on grass for the first time this is sometimes I can not put my feet down or I have them out of the bed as I can not have anything touching them same as my legs or when washing my hair I give up as my arms get so heavy sometimes I have this burst of energy my kids are like wow its mum back dose not last for long but I dance and I feel happy this is how it should be ever get angry at your body I do. I went to see someone from healthy minds telling me if I could talk about things in the past that was not good this would help me get rid of the pain in my body I went three times I spent most of the time filling in forms before you start and you have 30 mins never actually got to talk about much. Have an amazing day stay positive because we have to as we are worth it xx

[Yassytina FMA UK Volunteer]

Hello , yes it can be hard some days living with this condition and every day can be different , one day we want to sing from from the roof tops as we look back on our day and think ohh that was a good one and then days it’s like I want to crawl back, under the duvet and stay there. I differently think the pacing method is our biggest friend, hard if you have a young family but it can be the people in our lives that make us smile and the reason we get up each day , my little grandboys 7 and 4 are one of my reasons for having a smile on my face. I do think it’s nice to be able to chat and let it all out when need be, i certaintly feel the forum has been the best place to come we are all in this massive club together. xx

[wiserlady]

I have only recently been diagnosed by a consultant but did a great deal of research up to that point. I was the one who told my doctor he needed to send me to a consultant, he kept fobbing me off with it's only another cold, it's only more aches and pains and so on. Never any explanation for it or help for it. My fibro was caused by cortisol levels not being right. I am sure of it. It began when I started to use asthma inhalers. Then gradually got worse and worse. This idea that there are other causes interests me and may well be the case for a lot of people, but it does not follow it is the same for everyone! I find it helps to sort of go with the flow when you can. Do as much as you can on days when you are livelier and feel lighter and fitter so that on the bad days if you can only lay in bed or sit around at least the house is reasonably clean and tidy and not an eyesore weighing you down.

[JayCeon]

Autumn1666, don't be confused by the posts about the "FM/a test" - this measures cytokines and chemokines, but no-one apart from the entrepreneur Gillis who sells the test believes that this is a definite fibro test, altho these may well be biomarkers, like there are many others.

Regarding blood pressure: many of the supps I am taking for fibro have reduced my blood pressure again (which went up from fibro), so my docs have allowed me to stop taking the meds. This is I think mainly due to them relaxing.