Wo is me?: So many fibro people are... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Wo is me?

Singeranne profile image
11 Replies

So many fibro people are feeling worse at the moment. I am wondering if it something to do with air pressure. I have almost come to a standstill. My pain is something from hell and I am breathing in a stressful way. Christmas shopping is going to be really difficult this year.

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Singeranne profile image
Singeranne
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11 Replies
Arymretep profile image
Arymretep

Hi, personally I think it’s the result of all the stress we’ve been through the past year or so with Covid, it’s all catching up on us now I think, don’t talk about Christmas 😳 lol

Adlon57 profile image
Adlon57 in reply to Arymretep

All these kids with their non-cyclable Halloween gear, then👻🧙‍♂️🧛‍♀️🦹‍♀️, will be put into the attic [usually forgotten about🥴] then Xmas 🎅🎅🤶👼👼same thing! Plus Covid🤐😷😷You wonder why we are stressed?🙄😗You gotta laugh?😆😆😗

Arymretep profile image
Arymretep in reply to Adlon57

Yes, or we’ll cry 🥲👍

fenbadger profile image
fenbadger

Stressful time of year anyway for the reasons you have given. But I firmly believe air pressure is significant. We get lots of anticyclones in he UK this time of year. There's a research group called Cloudy with a Chance of Pain. Tongue in cheek title but oh, so relevant. Gentle hugs

Janous2000 profile image
Janous2000

Hi, I’ve only just been diagnosed with Fibromyalgia, though believe it’s been about 3years now & new to this group. I’ve been under a terrible amount of stress recently and sleep deprived and so my pain levels began rising. But I was in so much discomfort that for the first time with this problem I called in sick. Usually a week of rest would have me in a much better way but I’m still struggling. I don’t know what to do. Do I rest, do I move? Maybe the air pressure suggestion is accurate but unfortunately that doesn’t magic us better.

Lots of love to the group and willing all our pains away xxx

Cat00 profile image
Cat00 in reply to Janous2000

Move! I would suggest you explore some different ways of moving, sport, dancing, tai chi, yoga, walking, find one that makes you happy and then do a little bit everyday until you can do enough to help your mood and your pain. Not moving is a slow death.

Janous2000 profile image
Janous2000 in reply to Cat00

Thank you. I do enjoy a little jig around in my room to some tunes & I’ve recently join the national trust so been trying to find gentle walks to do. I’m off sick and bothered about people seeing me though. Don’t dare leave the house because I feel people won’t understand. X

Cat00 profile image
Cat00 in reply to Janous2000

Yeah and people will never understand, the closest I've got to people "understanding" is people not judging rather than understanding, which isn't quite the same but it's better than nothing. And if we're going to be brutally honest so much of my exerperience of fibro is so different to others I'm not sure I understand, the only thing that makes me feel better is vigorous exercise but that seems to be catastrophic to most of the other fibro people I've met.....

But on a more positive note, I think finding some joy through music is fantastic, that makes me feel more alive too. I think that's the key to why I enjoy classes at my gym so much, jumping about to music with someone with giant biceps screaming at me, it's the closest I've been to clubbing in 20 years, but sadly, just like other fibro sufferers, that would kill me now. So maybe I'm not so different after all.

Midori profile image
Midori

I find that Covid has done us no favours, we have lost friendships, relations, pets and all kinds of things; My brain has reacted by making me afraid to go out and talk to folk, TV doesn't replace face to face interaction and I'm getting very forgetful. I work on puzzle books a lot to keep my brain working. I'm also losing fitness by not being able to get around much.

Midori profile image
Midori

Hi there,

Personally, I find a great deal of it is to do with the rapid changes of weather.

My bones Hate wet, windy and grey weather.

My skin hates hot weather and the sun burns me almost as soon as I look at it!

I'm only comfortable in Spring and Autumn. I have a broken Internal Thermostat!

Cheers, Midori

PassionFruit6 profile image
PassionFruit6

Personally, I think the cold, rain and low to uv (sun) are triggers. Before the diagnosis, I used to say I always feel bad in the winter because of the weather doesn’t agree with me… although, I’ve learnt this isn’t the same for everyone since this website 🙃

With the stress of less daylight hours, more people try to do everything in a shorter space of time. So that could be a contribution? 🤷🏾‍♀️

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