Progress..: So I’ve just sent back my... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,956 members67,093 posts

Progress..

2 Replies

So I’ve just sent back my questionnaire to the nhs pain management unit (it actually arrived quicker than I guessed-within a week since my gp appointment). This will be my second time speaking to them but never had a questionnaire before…

It also said that of course it’ll be triaged and then put on waiting list which can be 12 weeks.

Has anyone had a similar waiting time, shorter or longer?

I know that not every hospital will be the same but wanted to find out

2 Replies
Penpusher profile image
Penpusher

I'm currently in the middle of a pain management course online. I was referred a couple of months ago and expected to start in September but more people were referred so the course started sooner. It's for 2.5 hours once a week for 7 weeks. So far we've covered the neuroscience behind pain, we've had psychologists in helping with pain management and a session with pain nurses on medications and their side effects etc. We've been given little exercises to help start to move safely, done a bit of tai chi, have a relaxation session each week and been given advice on expectations and managing pain on a daily basis. It's given me hope. I had got to the point where I wondered why I bothered with no quality of life, just living, working, sorting out food deliveries and sleeping. Not being able to sit for long periods comfortably or stand for long periods, not able to drink due to conflicting with meds, or even hold a book.

Now I understand more about how my body is reacting and how my meds and even things like artificial sweetners may actually be accounting for what I thought were symptoms where they may just be side effects.

I can only encourage you to hang on, after fibromyalgia and arthritis for a number of decades, this has really encouraged me mentally and given me hope to maximise my physical health. I really can work to feel better myself on a daily basis without looking to others.

Fibromyalgia is such a crap condition- we truly suffer from it and there is little about it to bring us joy. It's so good to have something to be positive about. Good luck!!

Trappedmoth profile image
Trappedmoth

I've been on waiting lists both longer and shorter. Most hospitals are struggling with covid, brexit and years of under-investment. As Penpusher says, pain management courses can be really beneficial. See if you can get on one.

Not what you're looking for?

You may also like...

A work in progress

I have been in constant pain for a few years now but I have an almost diagnosis from my GP which I...
Lruk profile image

How quickly does Fibro progress??

I read the blogs on here and empathise with so many of you. I suffered with what was thought to be...
suejayjay profile image

Beware, vent in progress!

I'm going to unapologetically vent! This is for fellow mobility scooter users and of course those...
Sniffer8 profile image

Awaiting ESA Group Decision

Hi all, Sorry I haven’t been on here for a while, finding looking at phones/tablets are hurting my...
Blue1927 profile image

PIP extension of application!

Hello 👋🏻 Received a letter from PIP this morning saying they have given me extra time to send in...

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.