Advice please!

[Buildashed]

Hi, i am thinking about buying supplements I would be grateful if anyone can advice or suggest what to get. I have been diagnosed fibromyalgia 3 years, tried meds but couldn’t cope with side effects, doc prescribed vitamin D and I take paracetamol, and aspirin occasionally and CBD oil, I seem to have the pain under control but since January I have had this awful fatigue, it started with my eyes, blurry vision, hissing in ears, and unsteady when walking. Iv had all the blood tests twice, doctor said all side effects from fibro, basically get on with it. I stopped taking CBD for 10 days in case CBD was causing but still so tired. I get about 7/8 hrs sleep, I’m ok when I get up then as the day goes on I struggle to move off the settee everything is a effort, I cry a lot which I never used to do, crying typing this, I keep thinking something is wrong with me, telling myself surely if it’s a flare it shouldn’t last this long. Does anyone take B12 supplements, magnesium, ginsing, Q10 or anything from the health shop? Is this normal to feel so ill and washed out for this long? I don’t know what to do, any advice would be so appreciated. Many thanks Edwina xx

[Hello21456]

Hello I have started taking q 10 and turmeric defence plus with ginseng in for the last 6 weeks And I am going to order Magnesium and I am taking seven seas multivitamin with slow energy release defo feel a difference now my q10 has run out x I’m in the same situation as you but luckily I’m a private pa and the girl called me off today only 4 hours at a time but could only manage 2 yesterday as was in so much pain.

Good luck it seems everyone is different but trying and eliminating certain foods and I found the turmeric definitely helps

It was actually my 94-year-old client who recommended it to me as she was the first person that opened up to me she he’s quite into herbal stuff and she doesn’t really like taking supplements but she said health span don’t overheat so they have more of a pure concentrate she is 94 so doing something right.

I posted something similar but no reply’s either x

[Hello21456 in reply to Hello21456]

Also I’m taking nytol herbal tablet to help me sleep on a really bad night The doctor has put me on duloxetine as well I’m feeling a little better today but very sore and stiff and trying to keep positive about getting better but getting on top of the triggers and flares.

[Buildashed in reply to Hello21456]

Hi again, I hope you don’t mind me asking but what are duloxetine for? I am going to give my Dr a call tomorrow as I feel very low and keep crying, I am wondering if it’s anxiety or I am depressed. It’s this fatigue that’s getting me down, I feel so ill with it. I take CBD oil before bed so sleep is not too bad but I will keep nytol in mind. Thank you so much

[Buildashed in reply to Hello21456]

Hi thank you for taking the time to reply, it’s good to know it’s ok to try supplements, all the ones you have mentioned are the ones I was thinking about ordering, I am definitely going to give them a try. Many thanks

[LoneEra]

Hi Edwina. It’s normal to want to try everything but the kitchen sink to tackle fibro!! The research on the benefits of any supplements is pretty limited, as far as I know. And everyone has a different story to tell.

In all honesty, my best advice would be to make sure you’re eating a healthy, balanced diet and getting all your essential vitamins. Cutting out alcohol and caffeine can help some people - as well as saying goodbye to processed foods.

Other ways to try to ease the pain include gentle exercise, mindfulness, a TENS machine and Epsom salt baths.

Hope you find something that works for you x

[Buildashed in reply to LoneEra]

Hi thank you for replying and your advice. Pain at the moment is not too bad, I use a tens machine and mindfulness and will try Epsom salts. It’s just this fatigue that’s really getting me down, I don’t know if it’s normal to feel so tired for so long I have never experienced this before.I Really think I’m convincing myself that the doctor has missed something and I’m getting anxious about it which is making it worse. I am going to pluck up the courage to call the Dr tomorrow I am wondering if I’m getting depressed as I keep crying. Thank you for taking the time to reply it means a lot XX

[LoneEra in reply to Buildashed]

I hear you. The fatigue is soul destroying sometimes. I’ve definitely had months of it, but then it has cleared. Sounds like a good idea to chat to your GP. And try not to be too hard on yourself xx

[Buildashed in reply to LoneEra]

Oh bless you and thank you for your kind words. Also knowing fatigue can last for months and I’m not on my own helps a lot. I really appreciate your time. I will chat to my GP tomorrow. Xx

[Buildashed]

Hi I am sorry to hear about your trauma, thank you for telling me what you take duloxetine for, I really think I’m depressed and need to accept this vile thing (fibro) hope fully tomorrow my doctor might help. I did stop the CBD for a while but still cried and felt down so I went back on it as it helps with my pain. I think it is trial and error with everything. I am definitely going to try supplements but I really think I need prescription meds for a while. Just having this conversation knowing I’m not on my own has helped me a lot. God bless you and thank you again. Xx