Hello all...Although I have not been given a definite diagnosis of Fibromyalgia, I have had worsening full body pain for the last several years which increases in severity when the body is at rest, i.e. sleeping. I would characterize it as burning and throbbing, punctuated with needle-like pinprick sensations and joint stiffness. I have been on and off antidepressants for several years, and have been off them now for about a year. I was recently prescribed amitryptilene "for pain", but I took it only for a week because of unwanted psychological effects. Combined with heart disease, the chronic pain makes life very difficult and I am frequently struggling. I guess I am looking for some comrades-in-arms to share experiences and knowledge. Thanks for reading.
Aging warrior looks for comrades-in-a... - Fibromyalgia Acti...
Aging warrior looks for comrades-in-arms...
Hello and welcome, when you say you have not had a definite diagnosis of fibro are you still under the doctor at the moment in order to get some answers for a definite diagnosis? Yes indeed life can be difficult with other conditions as well, I seem to be experiencing more aches and pains at the moment, I do think my fibro body dosent like the cold weather much, I am not working but still I juggle housework/grandparent childcare, I differently think the pacing method is the best way I get through these type of days, stopping for mini breaks during the day , I don’t really take any meds for pain unless it gets to a stage where I’m struggling big time then it’s codiene, wouldn’t be without an Epsom salt bath early evening, warmth differently helps, roll on the Spring 🌞
Hi...Although I have discussed it with her, my doctor hasn't given a diagnosis of fibro. She has referred me to a rheumatologist whom I will be seeing in a couple of weeks. I agree about the hot epsom salt baths, which I take once or twice a week. The doc has recommended getting more exercise (walking), and I am looking at anti-inflammatory diets. Thanks for your reply!
Good to know you will be seen by a rheumatologist soon. You could try some gentle stretches at home in addition to the walking: to help with pain: youtu.be/fONfo3OpoGI
It’s also worth trying some mindfulness techniques to help you manage the pain.
Let us know how you get on and take care x
Welcome to the forum, you will find lots of helpful information and amazing support on here.
Amitriptyline does have terrible side effects, I have found that taking one tablet every week at the same time/day has been helpful for getting a better sleeping pattern.
I would recommend the book by Dr Leon Chaitow -book on fibro and muscle pain - he is someone that fully understands fibro, unlike your average GP.
I really would just like to say that I have made hugh improvements to my health, so when I GP says its just something you have to live with, I am proof that is not the case, In Dr Chaitows book ti does mention about recovery, there are lots of things we can do. I manage my fibro and do not take any pain medications, years ago I would have been able to life without them
Best wishes
Debs
The NHS website has a good section on Fibromyalgia and is worth reading. It will help you to understand how it is diagnosed and treated. Within the Support Group I go to, we have a library of books and the most popular by far, is Fibromyalgia for Dummies. It gets borrowed more than any other, so much so that we now have 3 copies. Amazon sell it at a reasonable cost. Support Groups are not meeting at present due to the pandemic and most have not met for a year, but as things return to normal, if there is a Group near you, it is worth going 3 or 4 times to decide if you find it useful. I think it takes that long to really know if it is for you or not. FMA UK can put you in touch if you contact them.
Thank you for the info. Is there a link to help find this on the NHS website please ? Thanks again
Here you are: nhs.uk/conditions/fibromyal...
Also worth checking out FMA UK’s website - since we are on that forum 🙂 fmauk.org/information-packs...
You will find it here nhs.uk/conditions/fibromyal...
Thank you for sharing
I can agree with much of that. It can be difficult to get to sleep with Fibro. Stiffness is my biggest bugbear, too.
Yes, me neither, but all your symptoms are the ones I have. Im finding it increasingly hard, as its getting worse. Thanks for the heads up in the ami drug, I wont bother asking for it.
Kind regards Lisa