I've been diagnosed with fibromyalgia after a 6 year long battle.
The pains been getting worse and worse since the start of the year. This morning I was getting ready for work and then my side pain began to flare up and I am now finding it difficult for me to breathe properly, I told my husband and he literally shouted " I told you not to go to work last night".
But I feel guilty if I don't as its him fronting the bills and working harder for both of us, switching his job to be paid more to support us and I feel like I am now becoming a burden on him.
I'm so scared of losing my job in these current times as it's hard enough for me to get a job now anyway
I have had the condition now for over 4 years and it is definitely getting worse.
I find stretching exercises a good way of relieving the acute pain and stiffness. I have a strict routine every morning and push myself through the pain barrier as I know I will get some movement back.
Like yourself I tried talking to my husband about my pain and anxiety but he will never be able to empathise as he has no idea what it's like or how to comfort me. The best way forward for me is to talk to other fibro people and get mental support from them.
Hope this helps and more importantly be kind to yourself.
I try keep myself active, pottering around at home, walking to shops (as needed), walking to bus stops to get from work and home and vice versa.
I'm just feeling rather depressed and alone right now in terms of family.
I feel useless for just staying home again.
Hey
I completely understand how you feel. Ive lived with my partner for 2 years and have suffered with chronic pain conditions for 6 years, I’m only 20 and felt I’ve inflicted so much stress on people in your life.
I actually quit my job before the outbreak, it was hard because I feel useless at home, but I discussed it with me partner (who had been unemployed for a while and taken a significant pay drop).
He reminded me how hard it was for him to see me experiencing my pain rather than taking care of me after work because he loves me.
With fibromyalgia I think it’s important to remember to communicate with loved ones who care enough to work through it with you.
I’m sure you’ll work it out and have a couple good days coming your way, try to stay positive.
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