New member, not diagnosed, yet...

[steveburn]

Hello people,

New member here, been reading for a while and feel i need to post.

I've been suffering for about 7-8 years now with various ailments, ibs signs, heart palpitations, tiredness, wide spread pain, carpal tunnel on both wrists, had surgery 3 times.

Had so many tests, bloods, mri, x-rays, ct. Had a sleep study done (still ongoing) seen a podiatrist as apparently i have flat feet, they were baffled why i was there, had physio to try loosen me up, didn't work at all, been to pain management clinic, complete waste of time that was, guy was just ticking boxes then they lost me for about a year in the system because that person left....

The specialist at the hospital i go to is basically refusing to see me as he doesn't believe i have fibromyalgia because i'm a man, and i quote "you cant have it because your a man, men dont normally have this condition"..... been contacted many, many times by myself and my own doctor with no joy...

Now i'm at the point of not knowing where to turn, i'm currently taking co-codamol for pain 30mg/500mg which does help, tried gabapentin and amitriptyline which made me feel worse even after taking them for months, cant take tramadol because i dont like the side effects.

I am still working but its so hard for me, i work nights in a supermarket, it is quite hard work and the management have been really good to me but i'm really struggling.

I've started using a walking stick sometimes when i get really bad, like at the moment.

My partner has been really a rock and she helps me in more ways than i ever thought i needed, we also have 4 children together and struggle to do things with them which gets me down.

I just so lost at the minute, don't know where to turn or what to do next, my doctor is being useless, and just keeps saying he's doing all he can for me but did notice the last time i requested some painkillers online that he'd put an "at risk" on my records, i'm assuming its because of the length of time i've been on these painkillers...

I'm a 38 year old man with the head of a 21 year old, want to live life, be happy and just get on in life but this condition i have/believe i have is killing me, its taking over my daily life.

I don't think i'm depressed, i have suffered when younger, i just want to find out what is wrong with me and get the right help to help me.

I'm so sorry for the long, long post but i just need to speak to others going through similar things to me

Many thanks for reading

Steve

[Hidden]

Hi Steve

I was diagnosed about 18 months ago. Once the rheumatologist knew it was fibromyalgia she kicked me into touch!!! Luckily I've got 2 very good drs at my surgery, I just wish I'd had them a few years ago!! I have got quite a few conditions which cause me pain. I found pain management useless. The pain meds I am on are zomorph, oramorph and nortriptyline. If I didn't take them I wouldn't be able to get out of bed this morning!!, Take care Lynne

[Bluenordic]

Hi Steve, dont forget you have the right to ask for a second opinion.

[steveburn in reply to Bluenordic]

Thanks lynne and bluenordic, sorry for the delayed reply, had a busy weekend at work this week.

I do think it has now got to that point of asking for another opinion from a different doctor, i will make an appointment with my doctor or another at the practice to arrange something