Ankle

[seren1970]

I got a severe pain in my ankle couldn’t walk on it lasted about half hour then a couple of hours later get pain in the others ankle it’s crazy xx

[M0AL61 Moderator Volunteer]

That's the thing with fibromyalgia, there seems to be no rhyme or reason with it, and as you've said it can be one thing one minute and something completely different the next. I hope the pain has eased of now. x

[Violett-rowan]

I hope the pain is easing, I get these ankle pains and get looked at like I'm a loon job, it actually feels like I've sprained it! If this is the pain you've been feeling then I'm so sorry and I hope it gets better. I've been searching for some CBD balm but unsure if they do it in the UK x

[Hidden in reply to Violett-rowan]

They do iv tried it but omits say didn’t do a lot , I use a gel from the doctor called Fenbid forty 5% it’s the only cream I’ve tried that works for me

[Violett-rowan]

I'm given lots of pills and fentanyl patches but still so painful sometimes I wonder why I take full this medication

[seren1970]

Thankyou all for your replies it’s ok asked of backs bad today xx

[Judithdalston]

Just curious to know if you take statins? I have fibromyalgia, but about 2 -3 years ago , before this diagnosis, when trying to get to the problem of why my legs( including hips to ankles) had dagger-like pains in them I stopped taking my statins (that I had been on 14 or so years). Took ubiquinol and vitamins after to help repair damage and these really disabilitating pains have apparently stopped. My medical notes now say ' statin intolerant', but still have exhaustion/ overall pains- now going down route that my known hypothyroidism is undermedicated and raising thyroxin dose. Have you ever had full bloods ( have to go privately unfortunately as NHS don't do it), research suggests a very high proportion of fibromyalgia sufferers have this but don't know?

[seren1970 in reply to Judithdalston]

I’m not on statins and thyroid was normal I have low vitamin d I was told if I didn’t have fibromyalgia/cfs I would be fit as my bloods were good xx it’s not right you had to pay x

[Judithdalston in reply to seren1970]

I am pleased you are not on statins! I presume you are taking very high dose vit D3 then now , getting that up to a 100-150 range should help. Perhaps along with vitamin K2(mark 7) which allows vit D to go to where it is needed ( bones/teeth) and some magnesium too. I would be a bit wary of doctors saying your results were 'normal' for any blood work as ranges can be huge, and what is acceptable to them as just in a range might not suit you when you need to be at the high end of a range to feel ok! Try googling 'Vitamin D Council' for help, or/and check out healthunlocked sister Thyroid Uk forum that has a lot of detail re ideal blood readings etc.

[seren1970 in reply to Judithdalston]

Thankyou I will take a look may ask yo have bloods checked again and ask to see results not heard of vitamin k2 I will look that up xx