Hi joined this site to get some information
I have multiple sclerosis but have been suffering with deep bone pain in ankles wrists knees feel like a bad bruise I suffer with vertigo hot and cold sweats extreme fatigue and bloating really badly. It's the deep bone pain that worries me as I don't think that this is ms and know people with both fibromyalgia and ms and say it sounds like fibromyalgia. Could I ask for your opinions please.
I am one that has both Ms and fibromyalgia. I also have a degenerative disc so... To me it's hard to separate what is causing what. I started doing mild yoga exercises and it's helped some. I go at my own pace. I would recommend that you talk to your doctor about fibromyalgia. It's a bit different than MS. Although they do have some of the same treatments. I truly hope you find what works for you.
What blood tests have you had? I would ask for Vitamin D levels to be tested. Also Calcium.
LooK up symptoms of Deficiencies in Vitamin D on NHS choices.
I would also think about asking for tests to check Thyroid function In particular Thyroid Antibodies TPO and Tg (Thyroid Peroxidase and Thyroglobulin)
I've had a lot of blood tests I have low platelets low white blood count and low red blood count and been taken off my ms meds with which I used to think was causing the deep bone pain obviously not
I get home pain just as you describe, I was found to be very low in vitamin D, since taking high dose vit d this pain has improved a great deal, but it is still there. Good luck with getting it all sorted.
Thanks just waiting on ms nurse to rule out ms then I can go to doctors and ask for them to investigate
I also have Multiple Sclerosis and deep bone and muscle pain is the norm with me and along with the huge amount of tablets that I take I got given pregabalin to take 3 times a day and when I get my bouts of pain when my ms flares up I think they help calm all the nerve pain going to the receptors in your brain down massively they are the difference between me walking or using my wheelchair. Also in regards to your sweats and dizziness it's all common with most auto immune diseases and I have had all these terrible side affects too so I wouldn't say you have fibro you have typical ms flare up symptoms and you can't get ready for them there's no preparation for a attack as you don't know when a flare up is going to happen. Plenty of fluids painkillers and ask your Dr to try you on pregabalin or gabapentin and it should make a big difference for you.
I was diagnosed with m.s in 2013 been on gabapentin and the side affects were awful and couldn't deal with them so had to stop taking them. I do suffer with dizziness and not being able to regulate my body temperature and I know this is down to the ms but the deep bone pain is something more it's not just that it is that parts of my body hurts to the touch like it's bruised but no bruise in sight. Believe me I know what a ms flare is like and I personally do not believe that this pain is part of ms as I get inflammation along with it in also not saying it is fibromyalgia as I haven't been diagnosed but was just after information and thoughts on what people thought.
Don't forget each ms episode will be different and if you have progressive ms this could be causing you the pain. If you can't tolerate gabapentin you must try pregabalin they are a more expensive drug and much easier to tolerate and you take much smaller doses I was down to 200mg a day pregabalin from 2800mg of gabapentin and definitely helped calm my pain receptors down and my pain is now much more controlled
Evening I think the best advice would be to book an an appointment with your doctor give him/her a complete update on everything that is happening right now that's a good place to start, then they can give you the right checks and follow up with any treatment or meds that might be needed , so keep us posted on how you progress, wishing you a pleasant Christmas 🎄. If you would like to lock your future posts I'm sending the link healthunlocked.com/fibromya... it normally generates more responses from members on our forum and not to anyone else out on the internet take care
Swelling in hands and feet
Multiple Sclerosis and Fibromyalgia
persistent pelvic pain and now can barely walk
Costochondritis anyone? Desperatly need your tips
How do i get a diagnosis 
