HONOR1a

[honor1a]

Hi, I joined back in July & only started posting comments today, so never introduced myself so, Hello nice to meet you all, I hope my comments so far are of some benefit to those of you who have read them Take care, hugs to you all

[phlebo123]

Hi Honor... nice to "meet" you. Just sorry that we have to "meet" under these circumstances.

It helps others to know that we are not alone and we can support each other.

Take care and hope today is a good day for you. Xxx

[honor1a in reply to phlebo123]

Hi Phlebo 123, thank you for your kind words, it is nice to "meet" you too. I knew there were a lot of sufferers, but never thought I would become an online forum. Take care x

[Ian123]

Hi, honor1a nice to meet you hoping for a good day for all.

[honor1a in reply to Ian123]

Hi Ian 123, thank you for the welcome, nice to "meet" you too. I generally have 'ok' days, that's the best way I can describe painful days, but a little less painful as usual, as I get to a swimming pool & do an aqua aerobic class within reason or swim as the water takes the weight from my painful muscles & joints come home & generally sleep. I hope you have relatively good days too. Take care x

[Fibrofoggiest]

Hello Honor and welcome to the friendliest Fibro site I know of

Have you explored our mother site fibroaction.org, if not, it's well worth a visit with lots of useful information and support.

It is always great to meet new members, so pull up a chair and we normally gather round for coffee and toast in the mornings hosted by our lovely volunteer administrator, gins. We chat and hear how people are and what they are up to, it's good fun. I look forward to seeing you around the forum and getting to know you better

Foggy x

[honor1a in reply to Fibrofoggiest]

Hello Foggy, good choice of name, I have more than a few foggy days! I have not explored the site you mentioned, but I will check it out thank you for the link. I have mentioned to Ian 123 I go to a pool straight after breakfast for being in the pool gives me relief & support while I try push my mobility but feel totally whacked when I get out so home to sleep for an hour or two best sleep I get, as whether I sleep in day time or not I still can't sleep at night bery frustrating. Thank you for your welcome & supportive information x

[Shadows-walker]

It's alright I did the same thing , it's a wonderful site isn't it

Chris

[honor1a in reply to Shadows-walker]

Hi Shadows-Walker, I am certainly very impressed, seems a friendly bunch of people x

[Shadows-walker in reply to honor1a]

There all lovely ,we understand each other and where we are coming from ,everyone is excepting ,x

[Hidden]

OOps I have just had a look down the post and realised that I had not yet said hello, I thought I had, oh well I had better say it now.

Hello Honor 1a I am very pleased to meet you, welcome to the site.

Hugs sue xx

[honor1a in reply to Hidden]

Hi Sue thank you for the welcome, it's nice to "meet" you it's really surprising to see quite so many people in the same situation as I am, I hope you are having a good day x

[Hidden in reply to honor1a]

I am feeling a lot better now that I dont have the G,kids winding up the dog.

Their dad fetched them. peace and quiet.

Hugs sue xx

[honor1a in reply to Hidden]

Sue, Just have yourself a well deserved mug of tea hugs xx

[Hidden in reply to honor1a]

Your wish is my command,

[honor1a]

:-D:-D do you have the G'kids again tomorrow? ♡♡♡

[Hidden in reply to honor1a]

No not tomorrow it all depends on when their mom and dads shifts clash. though my hubby is taking the lad fishing tomorrow.

A whole day on my own, that doesnt happen very often.

Peace and quiet all day, lovely.

Now I need a muzzle for megga mutt and super glue in the birds seed pot and ill be well away.

[honor1a in reply to Hidden]

Hahaha Sue, you'll enjoy the day all the more then, when it doesn't happen to often! Are you in Canada or America? I'm in Glasgow, Scotland. Honor xx

[Hidden in reply to honor1a]

UK Im a black country wench, living near B`rum

[honor1a]

I thought when you used the word mom not mum you were over the pond, you have a great sense of humour. I love Birmingham x

[Hidden]

I dont the only times we ever go is when we get a summons from ATOS.

[honor1a in reply to Hidden]

How often do you get summond to ATOS? I've not been called for about 4 or 5 years now I've been suffering since about 1995 only diagnosed in 2000 stopped work mid 2002 I think I had 4 ATOS assessments x

[Hidden in reply to honor1a]

Hi can I ask what is ATOS.?

[Ian123 in reply to Hidden]

ATOS were the company employed by the Department of Work and Pensions assessing medical conditions.

Were because they did not do a good job and the contract ended early.

[Hidden in reply to Ian123]

Thanks Ian

[Hidden in reply to Hidden]

If you look further down the thread you will find more info on benefits and where there is a lot of info on fibro in general.

Hugs Sue xx

[honor1a in reply to Ian123]

Ian, who does the medical assessments now for DWP?

[Hidden in reply to honor1a]

I have never been for myself but I have been three times with hubby.

I have also been to the tribunals at the law courts with hubby after ATOS turned him down.

He won both of the esa (employment support alawance ) And lost on what was then DLA but is now PIP.

Since then we have both been to brum for PIP , we were both awarded part of it.

All rather confusing,

If you would like to learn more go to ...fibroaction.org

There is a lot of infofmation on there about benefits and fibro in general .

Sorry most of this was meant for p1pp1ns.

Hugs sue xx

[honor1a in reply to Hidden]

Thanks Mayrose54, I know your answer was meant for p1pp1 but I appreciate the info as never knew any of this

Thanks Honor1a

[TheAuthor]

Hi honor1a

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I genuinely hope that you find the forum useful and informative.

I also look forward to bumping into you around the site.

All my hopes and dreams for you

Ken x

[honor1a]

Thank you Ken for the welcome, I am as good as it gets with the conditions! I look forward to bumping into you around the site. Thanks again.

Honor1a x

[Anneadams in reply to honor1a]

Hi Honor1a I checked in here a while ago to and didn't introduce myself so I shall do it now lol. I am Anne Adams had fibro for 19/20yrs I'm also insulin dependent diabetic. I had just been reading here on site before I could get the nerve to try myself now that I think I've mastered it its great!! Gentle hugs to everyone

[honor1a in reply to Anneadams]

Hi Anne,

Welcome to the forum, i hope you find it as informative as I do,...

Having Fibro, is literally a bit of a drag, the constant fatique, poor memory & concentration & having to deal with DWP & there many demands on us sufferers, for well over a year I've been having to refill form after form as they claim to have "never received it" well at last i got my PIP & my SEVERE DISABILITY PREMIUM sorted & back dated, thought i could relax a little, but no DWP sent a letter to me which I received last Thursday for an ATOS medical, which took place today, i found it quite stressful, appointment time 2.15, to arrive 10 minutes before hand, which i duly accommodated only to sit in the waiting room to be called for assessment at 3.15 letter advises assessment will be 30 - 45 minutes long i got out at 4.45, Phew 1 hour 30 minutes later, the dr was pleasant enough, but accent i felt held things up quite a bit, her name sounded i thought Polish, but could quite easily have been German or Russian lol, so now the waiting game for the DWP assessment decision, the outcome whether they declare me fit for work or not so fingers crossed for the right decision is made, wishing you well, take care, Hugs Honor xx

[Anneadams in reply to honor1a]

Hi

Don't you just wish that all these medical & form pushers could just connect with each other to take the pressure of us!! Personally I get in to a real state when I see brown envelope never mind what a form does!!

[honor1a in reply to Anneadams]

I'm the same Anne, the anxiety/stress is unbelievable, but this last year & a half I take everything now to Welfare Rights adviser, get him to fill out the forms & make phonecalls to Benefits office he knows all the right terminology to use which takes a bit of tge strain off xx

[lilian68]

hi honor1 a

welcome to the forum it is nice to meet you when i joined the site i was suprised at how many of us ther were hope you find it helpful as i do.x

[honor1a]

lillian68,

Thank you for the welcome, I am finding the forum informative. x

[dlee43]

Hi Honor. My name is Diane and am fairly new to the site and everyone is so nice and caring. Lots of hugs.

[honor1a in reply to dlee43]

Hi Diane, nice to meet you, everyone on this site are really nice, friendly & give amazing advice for all they're not medically trained, any advice given should by put by your doctor as what works for one might not work for another, hope you are having good days, love & hugs xx

[dlee43 in reply to honor1a]

Haven't been having any good days for 3 years now since having a knee replacement. My fibro has been so severe ever since and now I am need of the other knee done but my surgeon won't do it because she said I will be worse than I am now. I have tried 2 pain clinics, bio feedback meditation, had physical THERAPY for my knee 5 days a week for a year, had water therapy acupuncture and tried every med for fibromyalgia and nothing has worked. Been on every pain med and take ocycodone with tylonal to help get through the day. Its been a nightmare. I just lost a dear friend who had a horrible accident while vacationing in the Bahamas the other day. I have another best friend who has stage 4 cancer and a ex son in law who had tongue cancer and then it spread to his neck and had to have all the lymph nodes removed. He moved in with my husband (who had a stroke) and I for months and months to recover. My memory is so bad from the fibro. So I have had 3 years of stress and am still hoping for some relief. Sorry for venting. Theres even more things but I feel like I am living a soap opera. Hope things are better for you. Lots of hugs...

[honor1a]

Oh Diane, no wonder you're in so much pain, it's well known that stress triggers fibro & fibro triggers stress, & with hubby having stroke & ex son-in-law staying with you through his recovery! Was there no one else he could have gone too? dont understand why surgeon said you'd be worse off having surgery on your other knee you might respond to that surgery differently than previous knee surgery! That puzzles me!!! Take care Hugs Honor x