PIP asscessor made me worse

[firbochron]

the lady who did my assessment made me feelworse than ever thats why started my healthunlcoked account this morning she had firboymyalgia she said and made me feel so abd even worse about myself

[vixen49]

Hi hun how was your assessment when I had mine took half an hour. You shouldn't have to feel bad cos she if she had or got fibromyalgia then she would understand the pain your in hun.gentle hugs. Ros xoxox

[firbochron in reply to vixen49]

Hi it was very demumansing for me my wife sat with me it took almost 2 hours my assessment and the lady even said i work and i have fibromyalgia i mean she dont know me she didnt know my history what iv been through last few years why im in this state its reallyput me further into limbo physiclally and mntally . arthur

[Furry]

Hi sorry you are feeling so bad, the lady who did your assessment should not really be disscussing her own health with you, that's not what she's there for. Fibromyalgia varies from person to person and fluctuates all the time. One day you may be able to get out and about and the next you may be in bed. I know it's probably the last thing you feel like doing but you could always make a complaint about the way the assessment was conducted. Hope you feel better soon. Take care. X

[firbochron in reply to Furry]

i thought it varied as well due to your own persoanll issues and life etc but when said i also have chronic pain disorder she saidit same as firbomyalgia dosnt mean have both.im actually been bid riideen for 4 months no and has got worse daily the cluster headaches are killing my thought process as cant cope with the pain inhead and all ove my body .. thank you furry x arthur

[Hidden]

Hello. I live nr Brum and I had a lady from capita visit me, she said that she had fibro. I dont know if she was the same lady but the one I had was very nice. yes she did delve deep and ask some very awkward questions, but I found that because she had fibro she knew what to ask.

From what I have read it seems that chronic pain disorder and fibro have very similer symptoms and maybe that is all she meant.

Put it from your mind now it is over with and if it was the same lady her report got me the higher amount mobility allowance.

You dont say what treatments that you are on or whether you have ever been to pain clinic, physio or even a fibro course, these seem to be few and far between but a lot of peeps on this site find that some things work for them and not others. It may be worth having a word with you GP and see what is available.

If you would like more information go to.. fibroaction.org

Why not have a look and then we would be pleased to welcome you back onto the forum for a chat.

Hug sue and very pleased to meet you xx

[firbochron in reply to Hidden]

Hi sue iv had alot of issues last fe years lost a daughter through amurder she was 8 and also astep son who died from and accident ive been homeless and develpoed agoraphobia due to wht happened while i was homeless i havea mental health team who look after me but with my gp hes how shall i saydosnt want help in nice way i can put it he gives me meds and thats about it me and my ife tell him they dont ork and we even tell my mental health team and my adult socia worker they have been great but my gp is main issue with meds as they dont work and im bed ridden so unable go anywhere and having agoraphobia now for 2 years ..sorry to offload but thought it best so understand hy not gone fibro clinic etc im uicidal on top of that due to everything thats happend and still happening to me but thats for another time ..thank you for the link and we are looking to move my gp but here we live hard as very rural so unable to move gp but we are looking to move in2 a bungalow for easy access and better for me long term hopefully..lovely to meet u sue x arthur

[Hidden in reply to firbochron]

Hello again, Keep in mind that you now have a great group of new friends who will support you in any way that we can and that you will soon be moving into a new bungalow. It will help to give you a new start in life.

lots of gentle hugs sue x

[firbochron in reply to Hidden]

morning sue thank u and since joined made me smile when been able replyas fingers killing typing replies to all the lovely msgs and hope bungalow be soon just ouncil dragging it out for us but hopefully it comes off x arthur

[Mdaisy]

Hello Fibrochron,

Welcome to the FibroAction Community

So sorry you've had this experience, really if the assessor had Fibro they should understand. I'm amazed that a comment like this has been said as she cannot compare her symptoms to yours. I can only imagine how it bad you feel, please know you have support here.

As others have said you could complain if you feel up to it, was the appointment recorded? Please see this link which has information from our website about benefits & Fibro with organisations you may like to talk to should you wish to complain;

fibroaction.org/Pages/Benef...

As per the link above, please know we FibroAction can provide you with information about PIP, which may help.

Please do email us using [e-mail], I look forward to hearing from you.

Keep Strong, here's to less stressful days ahead.

Best Wishes

Emma

FibroAction Administrator

[firbochron in reply to Mdaisy]

Thank you for the lovely msg emma .well iway she said it made me feel that all fibro suffeers are the same and i kne it wasnt butmade me feel bad ..i also thought chronic pain and fibro are 2 different thing ?? but also very similar .. thanks again for the ovely welcome .. arthur

[TheAuthor]

Hi fibrochron

I am so sorry to read that and I genuinely hope that you can find some resolution and relief to this issue. I know these things can be so difficult but you should always remember that you are a wonderful and amazing person. I sincerely hope that you can find the answers that you are looking for?

All my hopes and dreams for you

Ken

[firbochron in reply to TheAuthor]

morning ken i do as well hope my gp just very non existent but have a lovely adult social worker he givehima kick for me and hopefully in time i can get to a place where just coping with pain or livig ith the pain physucally but mentally im not so surethank you for the nice msg ken ... arthur