Fibromyalgia Action UK | HealthUnlocked

Fibromyalgia Action UK

60,040 members•67,250 posts

Fibromyalgia......If There Was A Potential Experimental Cure For Fibromyalgia Would You Trial It Or Give It Ago ?

As The header of this topic reads would you undertake it ? When I mean cure or trial I don't mean such things as radioactive ☢️ therapy or...

As The header of this topic reads would you undertake it ? When I mean cure or t...

Fibroguy66

•15 days ago

40 Replies

Boyfriend pushing me to learn to drive and saying I let my illness hold me back to much.

I've posted on here once before nearly a year ago as I was worried my Boyfriend was getting frustrated with my health issues. Things thankfully hugely improved...

I've posted on here once before nearly a year ago as I was worried my Boyfriend ...

MysticAura777

•18 days ago

36 Replies

amytriptaline

Hi have anyone seen this latest report from the jmc it states that anyone taking amyttipteline has a higher chance of developing dementia. It knocked me back...

Hi have anyone seen this latest report from the jmc it states that anyone taking...

Paige1999

•27 days ago

37 Replies

Head Pains/Headaches

Hi I haven’t been diagnosed with fybro, but get a lot of the symptoms. I was wondering if anyone suffers with shooting pains in their head & general headaches....

Hi I haven’t been diagnosed with fybro, but get a lot of the symptoms. I was won...

heartmatters1

•3 days ago

11 Replies

Pins and Needles

Hi, I hope you are all well. I'm a newbie here . I have been diagnosed with Fybromyalgia which is awful.. My main symptoms are pins and needles in my...

Hi, I hope you are all well. I'm a newbie here . I have been diagnosed with ...

bubbatetley

•11 days ago

19 Replies

Question ? How Much Emotional Trauma Would Cause A Crippling Mega Fibro Flare Up.

Although we are all different & handle situations in different ways,what amount of emotional trauma would cause a mega flare up 😭 & possibly put you out...

Although we are all different & handle situations in different ways,what amount ...

Fibroguy66

•5 days ago

12 Replies

I need to know how many people with Fibromyalgia suffer with constipation?

I am asking this question because as far as I am aware or remember (brain fog 😶‍🌫️I haven’t seen any posts related to constipation connected with...

I am asking this question because as far as I am aware or remember (brain fog 😶...

Cotswolds25121

•1 month ago

33 Replies

Gabapentin for fibromyalgia, ibs and nerve pain

Does anyone know if these drugs will help with my nerve pain, fibro and ibs. I have been on amitriptyline for 25 years which helped but need a higher dose now...

Does anyone know if these drugs will help with my nerve pain, fibro and ibs. I h...

Gingers

•21 days ago

24 Replies

Universal Credit and LCWRA.

So I have recently attended a tribunal hearing because the jobcentre want me to find an additional 20 hours work.I am physically unable to do this. Does...

So I have recently attended a tribunal hearing because the jobcentre want me to ...

Littlefighter82

•28 days ago

27 Replies

THIS IS ME.....

IF MY BODY WAS A CAR I WOULD BE TRADING IT IN FOR A NEWER MODEL. I'VE GOT BUMPS, DENTS AND SCRATCHES AND MY HEADLIGHTS ARE OUT OF FOCUS....

IF MY BODY WAS A CAR I WOULD BE TRADING IT IN FOR A NEWER MODEL. I'VE GOT BUMPS...

fibrojan

•13 days ago

18 Replies

Severe Neck Pain

Does anyone get really bad neck pain, it’s all around the back of neck going up into the back of my head, I can’t take anti inflammatory medication, any...

Does anyone get really bad neck pain, it’s all around the back of neck going up ...

Mires

•18 days ago

21 Replies

anything positive?

we all know 99.9% of the time Fibro can be sh***y for us, but is there anything positive Fibro has taught you? for me, it’s been that if I was to be diagnosed...

we all know 99.9% of the time Fibro can be sh***y for us, but is there anything ...

Scooterz

•1 month ago

29 Replies

What causes constant sweat at nights?

I sweat every night especially, if I feel chilly. I hav tr8ed everything. Any suggestions

I sweat every night especially, if I feel chilly. I hav tr8ed everything. Any ...

Prayeristhekey

•25 days ago

24 Replies

Fibromyalgia specialist

Is there such thing as a fibromyalgia specialist as this is now keeping me awake at night. It comes in new places now and I am coming off my Codine as its...

Is there such thing as a fibromyalgia specialist as this is now keeping me awake...

Africanmonkey

•12 days ago

17 Replies

COVID & Fibromyalgia

Hello All.Just tested positive for COVID (1st Time Ever) Does anyone have any helpful tips please from there past experiences with the same...

Hello All.Just tested positive for COVID (1st Time Ever) Does anyone have any he...

Fibroguy66

•8 days ago

12 Replies

Advice please

Hi, this is the first time writing on here for my fibromyalgia. For about a year I was treated for PMR and the relief from the steroids was initially amazing...

Hi, this is the first time writing on here for my fibromyalgia. For about a year...

Cooper02

•29 days ago

22 Replies

Merry Christmas

Hello to everyone, I hope you all are doing well, and looking forward to Christmas. It is without doubt that it's been a very hard year for a lot of people...

Hello to everyone, I hope you all are doing well, and looking forward to Christm...

bossygirl

•5 days ago

9 Replies

Foggy head leading to falls...

Morning all. So yesterday I kept well away from the snow and ice and stayed indoors as usual.Cold weather causes fibro pain to increase but I've been...

Morning all. So yesterday I kept well away from the snow and ice and stayed indo...

Mrdiagnosis

•1 month ago

24 Replies

CAB ABANDONED ME

Hello all.I was being helped by CAB for all the process of PIP .We appealed for a tribunal hearing and was awaiting a date.I was offered a representative from...

Hello all.I was being helped by CAB for all the process of PIP .We appealed for ...

Nahr79

•13 days ago

14 Replies

fingernails

is anyone suffering with brittle fingernails. Mine are just peeling off and I’m left with just the skin underneath. I know it’s just cosmetic but my hands...

is anyone suffering with brittle fingernails. Mine are just peeling off and I’m ...

196912

•18 days ago

15 Replies

Duloxetine

hi everyone Just after some feed back on taking Duloxetine. I have had other meds form doctors and pain clinic. But not this. Has it helped anyone, are the...

hi everyone Just after some feed back on taking Duloxetine. I have had other m...

Rox_daw

•26 days ago

18 Replies

Hello

Ever played that game where you describe something without saying the name of it? I'm getting quite good at it - I often can't think of the name for things -...

Ever played that game where you describe something without saying the name of it...

SammyThePurringCat

•16 days ago

14 Replies

PIP Review - supporting evidence

Hi everyone I’ve just received my dreaded pip review form. My question is does everyone here send supporting evidence with their form. I currently receive pip...

Hi everyone I’ve just received my dreaded pip review form. My question is does ...

Shann07

•12 days ago

12 Replies

Keep warm

I know you all will have been through this at some time but I have to ask does anyone know how I can get warm. I have been like this for 3 days now, saw Dr...

I know you all will have been through this at some time but I have to ask does a...

Africanmonkey

•14 days ago

13 Replies

Merry Christmas to everyone

Hey all, I hope you are all doing OK and are looking after yourselves. I'm sorry I haven't been on much, I've had a lot going on which I'm sure you will all...

Hey all, I hope you are all doing OK and are looking after yourselves. I'm sorr...

misspicky82

•7 days ago

9 Replies

Can't get warm

I don't seem to be able to get warm I am wrapped up the heating on and the log burner is on but I just feel so cold. I have 4 layers on but my feet and legs...

I don't seem to be able to get warm I am wrapped up the heating on and the log b...

Africanmonkey

•1 month ago

19 Replies

Fibromyalgia & Transdermal Pain Patches

HelloDoes anyone else have skin burn marks on the site of application where the patch was applied after using Butec Transdermal Pain Patches ?...

HelloDoes anyone else have skin burn marks on the site of application where the ...

Fibroguy66

•16 days ago

13 Replies

High Blood Pressure Drs visit.

For more than two weeks I have felt like I had a knife stuck inside the left side of my scull. Nothing would shift it and I would go to bed with a hot water...

For more than two weeks I have felt like I had a knife stuck inside the left sid...

Onceabiker

•22 days ago

15 Replies

A BIG THANK YOU TO ONE AND ALL WHO REPLIED....... I'm glad it helped you smile..

I have other notices in my kitchen to make me smile - so here's a few more:- I WOULD BE UNSTOPPABLE, IF I COULD JUST GET STARTED........... I'D LET MYSELF...

I have other notices in my kitchen to make me smile - so here's a few more:- I...

fibrojan

•10 days ago

10 Replies

Burning sensation

Good morning. New to this forum diagnosed almost 2 years,get very little help from consultant but new symptoms seem to be happening now. Does anyone else get a...

Good morning. New to this forum diagnosed almost 2 years,get very little help fr...

Star-light65

•1 month ago

18 Replies

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Up to 2.7 million people in the UK live with Fibromyalgia (Fibro) & the awareness of this condition remains ve...

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