Fibromyalgia Action UK

57,043 members • 65,172 posts

assessor lied in my pip report

hi everyone just to say for anyone having future pip assessments please ask for it to be recorded. I don’t cook at all !! I said only microwave meals and in...

hi everyone just to say for anyone having future pip assessments please ask for ...

Lh1979

•13 days ago

67 Replies

fibromyalgia

Hello guys I have been having really bad dizzy spells for the past few weeks where I actually feel like I am drunk. This doesn’t happen just on movement but...

Hello guys I have been having really bad dizzy spells for the past few weeks wh...

Kazzza1976

•4 days ago

27 Replies

Not sure what to do about work

Morning all. So I was diagnosed with Fibro around 2 years ago but as time has gone on I actually believe my symptoms to be closer to ME/CFS. Either way the...

Morning all. So I was diagnosed with Fibro around 2 years ago but as time has ...

KiciaDoll

•10 days ago

41 Replies

Recent diagnosis

Hi. I have recently been diagnosed with fybromyalgia (likely to quote GP) and I told him I cant accept that. I dont have pain when touched as many sufferers...

Hi. I have recently been diagnosed with fybromyalgia (likely to quote GP) and I ...

York666

•3 days ago

22 Replies

fibromyalgia diagnosed - how effective is 10mg amitriptyline iin managing symptoms?

I have been diagnosed with fibromyalgia and prescribed 10mg amitriptyline. Does anyone have experience of how effective thisfor managing the symptoms? Am I...

I have been diagnosed with fibromyalgia and prescribed 10mg amitriptyline. Does...

Ivyamanda

•14 days ago

40 Replies

Sciatica and Gabapentin

Hi, I've been diagnosed with sciatica and have all the classics of pain all the way down left leg, occasional pins and needles, worse when bending etc. Doc has...

Hi, I've been diagnosed with sciatica and have all the classics of pain all the ...

Sukiling

•5 days ago

23 Replies

Fibromyalgia

Hi can i please ask doe's anyone go to toilet alot ( weeing) i am constantly up and down day and night i was wondering with fibro do anyone else suffer...

Hi can i please ask doe's anyone go to toilet alot ( weeing) i am constantly up ...

Shartaylor0264

•8 days ago

28 Replies

Newly diagnosed

Recently diagnosed by msk but given no information and no treatment. Suffered since July 2020 after getting covid in March 20 and GP very little help. Had...

Recently diagnosed by msk but given no information and no treatment. Suffered si...

Aka-Ice

•5 days ago

20 Replies

Brother’s passing away

it is with great devastation and heartbreak that my 65 yo brother passed on Monday 13/3/23. He was released from his 10th hospital admit in recent weeks and...

it is with great devastation and heartbreak that my 65 yo brother passed on Mond...

honeybug

•15 days ago

33 Replies

Housing advice.

Hello everybody. please may I have some advice. I am 29 years old. I am disabled with fibromyalgia/mental health. I was in a council home for nine years...

Hello everybody. please may I have some advice. I am 29 years old. I am dis...

Antstarr

•13 days ago

28 Replies

Diagnosed by GP. Should I see specialist?

Hi! I was told by my GP last week he believes my symptoms are fibromyalgia, he has prescribed me 10mg amitryptiline (probably spelled that wrong!) which I...

Hi! I was told by my GP last week he believes my symptoms are fibromyalgia, he h...

chan620

•4 days ago

16 Replies

TRAMADOL

I'm asking my GP to take me off Pregabalin as A) it doesn't really work even though it has been increased again and B) horrendous weight gain. 2 stone weight...

I'm asking my GP to take me off Pregabalin as A) it doesn't really work even tho...

golly123

•17 days ago

31 Replies

Retirement due to ill health.

I have fibromyalgia and also suffer from anxiety. I have been out of work since the end of December and have recently applied for ill health retirement As I...

I have fibromyalgia and also suffer from anxiety. I have been out of work since...

Elifant

•14 days ago

24 Replies

Massage for Fibromyalgia

Has anyone found that massage is helpful with Fibromyalgia and if so what type of massage is most beneficial?

Has anyone found that massage is helpful with Fibromyalgia and if so what type o...

Jomaur

•18 days ago

26 Replies

Wide spread pain.

I have just returned from a brilliant holiday to Cambodia. We go to Asia this time every year . While away l have no pain , ibs.,our sleepless nights .Came...

I have just returned from a brilliant holiday to Cambodia. We go to Asia this ti...

hope60

•6 days ago

15 Replies

fibromyalgia and other issues

hi just wondering how you get other diagnosis ie diabetes after fibromyalgia diagnosis ? I have a lot of symptoms but bloods are always okay.

hi just wondering how you get other diagnosis ie diabetes after fibromyalgia dia...

Bubbles_3

•3 days ago

10 Replies

budget disabled pip change

Hi 👋 I am worried about the new changes about the Pip ? The new assessments as they government change these the system yet again :( I get so stressed...

Hi 👋 I am worried about the new changes about the Pip ? The new assessments ...

Scoo1961

•11 days ago

20 Replies

New social security Scotland.

Hi I currently get Standadrd rate care of pip which is due to be reviewed Dec 23. It take 12mths to fight to get that . I'm debating rocking the boat as my...

Hi I currently get Standadrd rate care of pip which is due to be reviewed Dec 23...

Mystique23

•2 days ago

8 Replies

HHhhmmmmmm

My Hubby and I are trying to organise a short holiday, The last one we had was Portugal about 10 years ago,We had 2 weeks of total relaxation,eating healthy...

My Hubby and I are trying to organise a short holiday, The last one we had was ...

Debsdelight72

•5 days ago

12 Replies

Does anyone feel their fibro is saying something much more serious is going on in their bodies and it’s being missed?

Hi, this is for me a very honest heart on the table post. I’m saying it how it is and how I feel which isn’t easy. I’m recently diagnosed with fibromyalgia...

Hi, this is for me a very honest heart on the table post. I’m saying it how it i...

PersonalTAgent

•1 month ago

31 Replies

Cat and anxiety

Hello everyone, Approximately 2 weeks ago my eldest cat has been diagnosed with heart failure and risked to die. Fortunately, the vets managed to stabilise him...

Hello everyone, Approximately 2 weeks ago my eldest cat has been diagnosed with ...

Dodo21

•24 days ago

24 Replies

recliner

my dad bought one, they got it in DFS, took 3 months , to arrive but they are very happy with it. Cost £1200, is by leather. They got the VAT back ad he had...

my dad bought one, they got it in DFS, took 3 months , to arrive but they are ve...

Duffy2021

•38 minutes ago

1 Reply

Adult disability Scotland

Hi am from Scotland and we no longer have PIP its now called adult disability Scotland and I applied for the back in November and I they received all my...

Hi am from Scotland and we no longer have PIP its now called adult disability Sc...

Fmcr

•14 days ago

18 Replies

Gabapentin

I was diagnosed with Fibromyalgia 13 years ago and was prescribed 300mg Gabapentin taking one three times a day. I have really good on these until recently...

I was diagnosed with Fibromyalgia 13 years ago and was prescribed 300mg Gabapent...

Nanabrodie

•4 days ago

9 Replies

Fibromalargia

Hi does fibrom. Effect anyone's throat and swallowing please

shazzafloyd

•7 days ago

12 Replies

stress at work

just had date for my capability hearing feeling completely devastated it’s come to this been in the same job over 26 years . Been awake all night sheer panic...

just had date for my capability hearing feeling completely devastated it’s come ...

Thornthorpe

•4 days ago

9 Replies

My birthday 🎂 🎁 🎈

I will be celebrating my 54th birthday on 9th March but I also have lots of friends and family who have birthdays in March - in total there are 8 birthdays one...

I will be celebrating my 54th birthday on 9th March but I also have lots of frie...

Buttercup74

•27 days ago

23 Replies

Face pain.

Not sure what's going on with my face this week but I'm about to storm the dentist and demand they remove all my teeth😁 I'm mostly sipping soup and duncking...

Not sure what's going on with my face this week but I'm about to storm the denti...

Broadfield

•1 month ago

26 Replies

Sciatica pain

I've had unbearable sciatica pain on top of my fibro, all down left leg, I'm using an elbow crutch to help me walk but also waiting to see specialist physio...

I've had unbearable sciatica pain on top of my fibro, all down left leg, I'm usi...

Seascapes31

•30 days ago

24 Replies

Weird fibro symptoms/issues due to fibro

Hi everyone,Hope you are all feeling as well as possible 💛 I was wondering if anyone else has these issues because of fibro. They are driving me a little...

Hi everyone,Hope you are all feeling as well as possible 💛 I was wondering if a...

Turquoisesummer

•21 days ago

20 Replies

See all posts

Write a post or ask a question

Contacted by an admin - our method of editing a post

Making a new post rather than replying - a video

How to make a good post or question?

FAQ - Benefits information - Start here

Employment Booklet is now available!

What changes would you like to make in 2020 to improve your health and quality of life?

Vote

Up to 2.7 million people in the UK live with Fibromyalgia (Fibro) & the awareness of this condition remains ve...

Fibromyalgia Action UK

Home

About

Posts

Members

assessor lied in my pip report

fibromyalgia

Not sure what to do about work

Recent diagnosis

fibromyalgia diagnosed - how effective is 10mg amitriptyline iin managing symptoms?

Sciatica and Gabapentin

Fibromyalgia

Newly diagnosed

Brother’s passing away

Housing advice.

Diagnosed by GP. Should I see specialist?

TRAMADOL

Retirement due to ill health.

Massage for Fibromyalgia

Wide spread pain.

fibromyalgia and other issues

budget disabled pip change

New social security Scotland.

HHhhmmmmmm

Does anyone feel their fibro is saying something much more serious is going on in their bodies and it’s being missed?

Cat and anxiety

recliner

Adult disability Scotland

Gabapentin

Fibromalargia

stress at work

My birthday 🎂 🎁 🎈

Face pain.

Sciatica pain

Weird fibro symptoms/issues due to fibro

Pinned Posts

Latest poll

What changes would you like to make in 2020 to improve your health and quality of life?

About us

Support us!