Newbie: Good morning all, I’m really... - Fertility Network UK

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Nessie86 profile image
12 Replies

Good morning all, I’m really new it all this! Had a look at a lot of posts but the lingo kind of confused me lol. I’m 32 and after me an hubby having lots of tests it was discovered he had low sperm count and I had one blocked and one twisted tube and told IVF was our only option.

So we were referred to fertility clinic about a month ago. I received a phone call from the clinic 2 weeks ago saying they were referring me back to hospital to do more tests.

I then received a copy of the letter from the clinic to the hospital saying I had Tortious left Fallopian tube secondary to hydrosalpinx and recommended I have a Laparascopy and Left salipingectomy. After lots of googling I realised that they want to remove my blocked Fallopian tube through keyhole surgery as they said the thing I have had higher risk of miscarriage!

At the moment my emotions are all over the place, I think I’m close to starting the IVF journey after 3 years of trying unsuccessful then to have the rug pulled under us 😕. Sorry for the long winded post. I know that people are much worse of than us and that have been through difficult times and I have been told soo many times how lucky I am that it’s getting looked at - oh and not to mention the “stay positive “ comments 🙄 I am really trying my best but all of my family and friends all have young babies and children and it’s bloody hard to keep pasting that smile on sometimes!

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Nessie86
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12 Replies

Hi Nessie86

Welcome to the group. It's a very helpful place where you may even find people who have been through the same procedures as you.

It's great that the hospital and clinic have done thorough investigations and have been able to isolate the issues. The thing with hydrosalpinx is that, left untreated, any ivf would be much less likely to work as the fluid released by it cam be a poison to any eggs transferred. So, in reality, with your delay your chances of success are so much higher.

Wishing you all the best xxx

Nessie86 profile image
Nessie86 in reply to

Thank you, I know that it needs to be done to help with our chances. Just feels like a longer journey is all - just having a moan lol xxx

in reply toNessie86

Another reason why this place is good. Moan away xxx

CharlieW1985 profile image
CharlieW1985

Hi

I know exactly how you are feeling...

Staying positive is soo difficult when everyone around you is having babies and you can't... The stay positive comments do my head in lol

I have bilateral blocks tubes and too am waiting for a laparoscopy to try and unblock them.. If not ivf is our only option but we aren't eligible for NHS ivf so will have to pay privately.

The waiting is soo difficult too so totally get where you are coming from.

If you want to chat I'm here x

destiny121 profile image
destiny121

I couldn’t read and not comment as I have been through this, similar to your story. Gosh, it’s a tough time and a long journey but here goes.

Me and my partner were trying for baby for 2 years and no luck. We had all the tests and his sperm was fine. However, I was diagnosed with hydrosalpinx in both tubes. The doctors advised that I have both removed prior to ivf as the liquid in my tubes would wash away the embryo. I was so depressed and thought my life was ending and seeing friends and family and even strangers with their babies literally killed me. But I knew I had to keep strong.

I didn’t listen to doctors advice to remove both tubes and I just wasn’t ready so I asked them to try and flush my tubes out. They did this but couldn’t guarantee that the hydrosalpinx wouldn’t come back.

I then had a scan months later and one tube was ok but the other had a hydro.

I then had a cycle of ivf, although my consultant warned me that the chances of success with the damaged tube was low. And guess what my cycle was unsuccessful with a top quality embryo. My consultant then booked me in to have another laparoscopy in March to take out the one tube. Then I had another cycle of ivf in July and I am very lucky and pleased to say I am now 22 weeks pregnant.

My advice to you is that you want the best possible chance of the ivf working so please listen to the doctors advice, go ahead with the laparoscopy and then do your ivf. I understand it’s a never ending waiting time but you are ensuring the best possible way of success by having it dealt with beforehand. That way you know there’s is no other problem as to why it wouldn’t work.

Wishing you all the best on this tough journey but it will be worth it. I remember my dark days but I’ve got through it and it’s so worth the wait.... good luck xxx

Nessie86 profile image
Nessie86

Thanks so much ladies, you’ve made me feel a little better, I think because I live so far away from family I struggle a bit more with support etc. I just need to have a good cry about it and move forward with it all 😊 it’s good hearing from other people who’ve been through the same and succeeded - gives me hope! How was the recover time after your op destiny121? Xxx

destiny121 profile image
destiny121 in reply toNessie86

Not long at all.. I would say 10 days max... but you’ll feel a lot better after a couple days xx

runsoncuddles profile image
runsoncuddles

Hi Nessie86, Welcome!! Please feel free to share, this forum is incredible. Everyone is helpful and supportive. You will be amazed by the number of ladies who have gone through or are going through what you are. I hope things get resolved quickly so you can get on with your IVF journey.

We are all here cheering you on.✨✨

Sweets1 profile image
Sweets1

Welcome here! This is such a fab place for questions, moaning, advice- you name it, you’ll find it here.!! I hope things get sorted quickly for you, and all the very best xxx

CharlieW1985 profile image
CharlieW1985

We haven't explored the options for assistance abroad yet, but something for us to consider x

maxyhealth profile image
maxyhealth

Hi, how are you doing now? Any updates? Is your husband on any meds?

Nessie86 profile image
Nessie86 in reply tomaxyhealth

Hi, I phoned Sheffield on Monday to check progress of the referral - they’d never received it! So after a lot of conversations with gynae secs at my local hospital they’ve finally sent the referral forms a month later. Now we wait again

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