Living my reality : It was a fluke that... - Living with Fatty...

Living with Fatty Liver and NASH

8,141 members2,085 posts

Living my reality

TLC777 profile image
8 Replies

It was a fluke that I asked for a fibroscan, which resulted in reading & searching. Grateful to have found this forum!

Thank you all for the info , shares, prayers.... all the very best to each of us as we live out this journey and hope to educate others.

#liverawareness

Written by
TLC777 profile image
TLC777
To view profiles and participate in discussions please or .
8 Replies
nash2 profile image
nash2Partner

Thanks TLC glad to have you here

Wayne

asurfpro profile image
asurfpro

Hi,

Did I miss your original post about your health report? Your Fibroscan results?

Be well,

Harrison

TLC777 profile image
TLC777 in reply to asurfpro

I go to Mayo Clinic April 29

The only thing this gastric dr said was stage 4 & find something to live for along w loose weight.

Literally. No explanation no how is best way loose, or even what to eat or not.

I will no longer be seeing that dr.

Thank you

asurfpro profile image
asurfpro in reply to TLC777

Don’t blame you. Your doctor would have served you best by offering up dietary information and a fitness program. I hope you will let us know how your Mayo Clinic visit goes. My nephew is a Doctor there.

Be well,

Harrison

TLC777 profile image
TLC777 in reply to asurfpro

Thank you , I do appreciate your kind words and the support.

What kind of Dr is your nephew?

I’ll be in Jacksonville FL for 1 week

They originally had my down for 3 weeks for liver biopsy eval

I slowed the process down ! I have not even had a biopsy yet.

asurfpro profile image
asurfpro in reply to TLC777

My nephew has just completed his residency at the Mayo Clinic in Rochester. He is headed to a University in the East to start his Gastroenterology fellowship. So excited for him!!

Now about your upcoming liver biopsy. Just a bit of 411 on the procedure and what to expect. Note: I am not a doctor I’m just sharing my experience and knowledge regarding the liver biopsy.

The procedure itself is a piece of cake. There are a few risk as you might imagine but they do thousands of laser guided liver biopsy’s with little to no difficulties. You will feel a slight pinch when the needle goes in but for the most part it’s easy and quick.

To me the results are not 100% accurate because the fact is they can put the needle in at one angle and get one result and put the needle in another time (at a different angle) and get a completely different result. Make sense?

A good Hepatologist will rely on 4-5 important things to give him or her an accurate diagnosis of liver disease and or the extend of liver damage one might have.

1. An MRI or Abdominal CT

2. Blood work

3. Liver biopsy

4. Clinical notes

5. Your symptoms

It is essential to go to a specialist, preferably a Hepatologist. Do your homework and ask a lot of questions.

Be well,

Harrison

TLC777 profile image
TLC777 in reply to asurfpro

Kudos to him!

And thank you for the info, I’m awake for this??

asurfpro profile image
asurfpro in reply to TLC777

Yes. It’s really not bad. Have you researched the procedure and results accuracy?

Harrison

You may also like...

Got my nerve up to look at scan results

interquartile range to median for all measurement was 14% but here are results, not what I wanted...

my last question I promise!!

world do you guys get your quarter cup of olive oil a day? Do you drink it and if so how do you do...

The State of NAFLD/NASH Care in America 2023 is Live - We Need Your Voice

please feel free to share: what did you think about the survey? has this survey made you look at...

Questions I should ask my doctor on first visit after diagnosis.

doctor since the Fibroscan. I would like to be prepared for my visit, but this is all new to me....

Long awaited visit with my liver specialist. Your thoughts.

secretly taped my doctor, hahahha. Anyway, I gave him all my bloodwork and my fibroscran. He gave...