Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

71,173 members • 52,339 posts

All posts for November 2020

Coming off mirena (endo treatment) to start trying for a baby - anyone have any experience with this? What was your endo like?

I was diagnosed with endometriosis at age 19. Had various operations since, pills, etc. I've now had a mirena in for the past 9 years, it has completely...

I was diagnosed with endometriosis at age 19. Had various operations since, pill...

Catlady89

•4 years ago

1 Reply

Not sure if this is normal?

Dunno if this is normal?😂 maybe it is? Maybe it’s not endo related? I’m not sure but I’ve only just noticed it and feel like I would’ve noticed it earlier if...

Dunno if this is normal?😂 maybe it is? Maybe it’s not endo related? I’m not sur...

Flowerpotgirl1

•4 years ago

6 Replies

Rapid onset endo?

Hi everyone, Has anyone else experienced a very rapid onset of endo symptoms? I had fibroids removed in April 2019, at which time there were no signs of endo....

Hi everyone, Has anyone else experienced a very rapid onset of endo symptoms? I...

SparklePig

•4 years ago

7 Replies

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Fluid in pouch of Douglas

I had a ultrasound scan in July which showed fluid in my pouch of Douglas, I had two weeks of antibiotics but my symptoms haven't improved, had another scan...

I had a ultrasound scan in July which showed fluid in my pouch of Douglas, I had...

Catnesss

•4 years ago

3 Replies

Severe pain and unsure how to manage it

I have days where the pains is so bad that I end up going to a and e but they usually just tell me that it's in my head but the only way I can be heard is if I...

I have days where the pains is so bad that I end up going to a and e but they us...

tamzx

•4 years ago

8 Replies

APPG on Endometriosis

Join Endometriosis UK for a panel discussion on the impact of COVID-19 on endometriosis patients. Chaired by Sir David Amess MP, the Chair of the...

Join Endometriosis UK for a panel discussion on the impact of COVID-19 on endome...

Lynne_support

Partner•4 years ago

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Degenerative disc disease and endometriosis!!!!

Guys I’m absolutely devastated !! For 6 years of my life I have been told over and over again my gynaecologists and doctors that my pain is endometriosis and I...

Guys I’m absolutely devastated !! For 6 years of my life I have been told over a...

Fooofs91

•4 years ago

20 Replies

how long for an appointment?

I've just been told ive got to wait 6 months to see a gynaecologist ?! If not then I have to pay for private treatment. As ive only just been diagnosed with...

I've just been told ive got to wait 6 months to see a gynaecologist ?! If not th...

sugarplumfairy20

•4 years ago

16 Replies

Can someone tell me what endo pain feels like?

I’ve always had painful periods, pain down my legs and lower back, as well as what I can only describe as hot poker butt pains. I start taking painkillers a...

I’ve always had painful periods, pain down my legs and lower back, as well as wh...

buttmonki

•4 years ago

3 Replies

'Probably endo? 'Offered zoladex

Hi everyone, i had a negative lap over 6 months ago done by a general gyne and since been pushing for a 2nd opinion, when im off the pill symptoms are worse...

Hi everyone, i had a negative lap over 6 months ago done by a general gyne and s...

H2847

•4 years ago

4 Replies

Hormonal Treatment with high blood pressure

I am currently waiting on a gynaecology appointment after going to my doctor with chronic pelvic pain and explaining that I used to have extremely painful and...

I am currently waiting on a gynaecology appointment after going to my doctor wit...

Niahn

•4 years ago

1 Reply

Endo diagnosed and mild pain or cycles that aren't as bad?

Has anyone had a definitive diagnosis of endo but only had mild pain or cycles where pain does not seem as bad? I'm having a lap in next few months and this...

Has anyone had a definitive diagnosis of endo but only had mild pain or cycles w...

LaurPharm

•4 years ago

3 Replies

Cystoscopy and hydrodistention

Has anyone had a cystoscope and hydrodistention (stretching of bladder) whilst under general anaesthetic? I have stage 4 endometriosis and now suffer with pain...

Has anyone had a cystoscope and hydrodistention (stretching of bladder) whilst u...

Lily1986

•4 years ago

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Please help

I feel really shit - just been really sick My pains are terrible and I’m struggling to sleep. My legs are killing me Any advice

I feel really shit - just been really sick My pains are terrible and I’m strugg...

rossemma1

•4 years ago

16 Replies

I feel really unwell

I’ve felt really bad all day, really sick, legs killing me and pelvic pain Taken my meds - in bed, partner asleep and I feel all alone - who stays awake that I...

I’ve felt really bad all day, really sick, legs killing me and pelvic pain Taken...

rossemma1

•4 years ago

3 Replies

Operation

I’m over the moon I’ve finally got a date for my operation and it is the 18th of December! My pre op Is tomorrow and I am actually so nervous about it all as...

I’m over the moon I’ve finally got a date for my operation and it is the 18th of...

Jade2000

•4 years ago

3 Replies

Thinking about stopping hormone therapy but concerned doctors will react badly.

Hi everyone. I’m 21 and have had chronic pelvic pain since I started my periods a week after my 10th birthday. Prior to that I have always have recurrent...

Hi everyone. I’m 21 and have had chronic pelvic pain since I started my periods...

kailee49

•4 years ago

5 Replies

Possible endo?

Hello, I was wondering if I could get some advice relating to what I suspect is endometriosis. I came off the pill about 7 months ago (partly to try to get...

Hello, I was wondering if I could get some advice relating to what I suspect is ...

Julescas

•4 years ago

9 Replies

Laparoscopy in two weeks need advice

Hey guys So after being put on the emergency surgery list I finally have my surgery date. I was wondering if you guys could give me some advice on what to...

Hey guys So after being put on the emergency surgery list I finally have my su...

Graduate2020

•4 years ago

14 Replies

Post laparoscopy follow up?

I had a laparoscopy last week and am wondering if I will be able to see more detailed notes about what was found. When I came round the consultant said they...

I had a laparoscopy last week and am wondering if I will be able to see more det...

OllieF

•4 years ago

7 Replies

Pre-op consultation

Hi! I am having a meeting with my consultant tomorrow. And it is supposed to be pre-laparoscopy meeting. Is there any questions that I should definitely ask...

Hi! I am having a meeting with my consultant tomorrow. And it is supposed to be...

Sorayaq

•4 years ago

2 Replies

Prostap & Tibolone - Exhausted!!

Hi All, so i'm 28 and i have recently been put on Prostap injections for my endo and also the tibolone tablets to counteract the side effects. i am completely...

Hi All, so i'm 28 and i have recently been put on Prostap injections for my endo...

Daniellecx

•4 years ago

1 Reply

Menstrual Cycle

I got my nose pierced at the age of 48 and suddenly my periods stopped, never had any problem in my monthly cycle ever in my life.

I got my nose pierced at the age of 48 and suddenly my periods stopped, never ha...

Tans73

•4 years ago

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Hysterectomy

Hi ladies I’m due to have a hysterectomy,looking to be done in January all being well as discussed with my endo consultant tonight. I have endo and adeno had 3...

Hi ladies I’m due to have a hysterectomy,looking to be done in January all being...

Lou93

•4 years ago

12 Replies

Pain in legs with endo

Does anyone else suffer from pain in legs with endo? Almost like numbness/pins and needles at the same time as a throbbing pain? I had a lap 3 weeks ago so not...

Does anyone else suffer from pain in legs with endo? Almost like numbness/pins a...

Catlife123

•4 years ago

10 Replies

2 day periods please any advice would be helpful

I have had 4 periods since coming off of the implant and the last two have only lasted for 2 days then it just completely disappears but I have been so I'll...

I have had 4 periods since coming off of the implant and the last two have only ...

Victoria1988

•4 years ago

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Finally home after lap

I’m finally back home, it feels so good to be back. Since my surgery was mostly for fertility we couldn’t clean up everything but hopefully it’ll help with...

I’m finally back home, it feels so good to be back. Since my surgery was mostl...

happyseal

•4 years ago

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Cancelled appointment

Hi everyone. My visit to the gynecologist has been cancelled. This visit will be in January. I probably have endometriosis and now I have strong and...

Hi everyone. My visit to the gynecologist has been cancelled. This visit will ...

Annakr84

•4 years ago

2 Replies

Palpitations with endo possible symptom?

Hi so this may seem a bit strange but wanted to know if any one has had similar symptoms to me. So basically I was diagnosed with endometriosis last November...

Hi so this may seem a bit strange but wanted to know if any one has had similar ...

butterfliez

•4 years ago

13 Replies

Unrelated Surgery cause endo flare.

Im 55 and have suffered from endometriosis and adhesions for years. Ive had numerous surgeries and ovary removed. Im post menopause and endo symptoms did...

Im 55 and have suffered from endometriosis and adhesions for years. Ive had nume...

mumble1

•4 years ago

2 Replies

Posts - Endometriosis UK | HealthUnlocked

Endometriosis UK

All posts for November 2020

Coming off mirena (endo treatment) to start trying for a baby - anyone have any experience with this? What was your endo like?

Not sure if this is normal?

Rapid onset endo?

Fluid in pouch of Douglas

Severe pain and unsure how to manage it

APPG on Endometriosis

Degenerative disc disease and endometriosis!!!!

how long for an appointment?

Can someone tell me what endo pain feels like?

'Probably endo? 'Offered zoladex

Hormonal Treatment with high blood pressure

Endo diagnosed and mild pain or cycles that aren't as bad?

Cystoscopy and hydrodistention

Please help

I feel really unwell

Operation

Thinking about stopping hormone therapy but concerned doctors will react badly.

Possible endo?

Laparoscopy in two weeks need advice

Post laparoscopy follow up?

Pre-op consultation

Prostap & Tibolone - Exhausted!!

Menstrual Cycle

Hysterectomy

Pain in legs with endo

2 day periods please any advice would be helpful

Finally home after lap

Cancelled appointment

Palpitations with endo possible symptom?

Unrelated Surgery cause endo flare.

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