Lap done, next steps...: I had my first... - Endometriosis UK

Endometriosis UK

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Lap done, next steps...

PinkDaisy profile image
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I had my first laparoscopy on Thursday to remove endometriomas from both ovaries, check my tubes and the extent of my endometriosis. My surgeon was there when I came around and as I was still very 'out of it' just said it had all gone well & he'd come and see me the next day with more details.

As my op was the last of the day I already knew I'd be in overnight, but wasn't expecting to have a catheter or be on oxygen. The first was useful as it meant I could sleep without worrying about having to get up in the night, but the oxygen just made my nose itch and my dry mouth & throat drier, but luckily they took that off after a few hours.

I have four small cuts - one in my belly button, one to the right, one to the left and one in the middle underneath - all very neat and clean. I looked about five months pregnant thanks to the gas & fluid pumped into my stomach, which I found a little upsetting at first, but its soon gone down. The pain wasn't too bad and I've only had paracetamol and codeine regularly since, although there was tramadol and oramorph on standby if required. My throat was very sore from the tube and meant every bite of toast had to be swallowed with water, but the nurse gave me a strepsil which really helped.

Once the catheter came out I was able to get up and have a wash to get rid of the multitude of dyes from my skin and changed into 'normal' albeit slouchy clothes. Moving around shifted the gas that they'd pumped into me and that's when the pain really started. I'd been expecting it in my shoulders, ie my back but it felt like my lungs were collapsing. The pain was right behind my collarbones, both sides and so bad I couldn't breathe, which sent me into a panic and just made matters worse. I found that by sitting resting forwards I could breathe shallowly and calm myself. The nurse gave me some hot peppermint water which helps to shift the gas but it took a few days for the gas (and pain) to go sufficiently so I could lie down.

My gynaecologist came to see me as promised and showed me pictures of my ovaries and cysts. They were drained & stripped out and the tubes are okay. My ovaries were stuck to my womb & to each other and he managed to separate them and flooded the area with fluid to try to stop them sticking again. However, I have severe endometriosis which is stuck to my womb, bowel and other areas/organs.

He has suggested down regulation by monthly Zoladex jabs to try to calm the endo down whilst he considers the next steps with a colleague. This is likely to be excision of the endo but will be difficult and carry more risks because of depth and location and other organs involved. I could have had the jab at the hospital but he suggested I have a few days to think about it and then make an appointment with my GP/nurse - who it turns out is fully booked or the next few weeks.

After much soul searching and discussion, i am not too bothered about having children but I do want as good a quality of life as I can get. I am terrified of something going wrong and ending up with a colostomy bag or worse, but hate the thought of this thing growing inside me and not having any control over it. I guess I need to wait for my gynaecologist to write with his thoughts and then discuss at my follow up in a few months and in the meantime focus on getting fit again.

Five days later I'm still tired and get a bit dizzy if I stand up for too long, but feeling much more like myself and hope it continues to go that way.

Hope you're all as pain free as you can be xx

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PinkDaisy
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sj_is_charmed profile image
sj_is_charmed

Hi, I am 10 days since my latest lap and still not feeling quite right. On day 7 I saw nurse at GP and she reminded me that despite the small scarring (I have holes in the same place as you), what has been done inside is not insignificant so definitely give yourself time to recover fully and take it easy.

Try and stay positive xx

PinkDaisy profile image
PinkDaisy

Thank you xx

That's very true and its important to remember that just because it looks okay on the outside it doesn't mean it's ok inside - seems to be general rule of thumb for endo!

Will give myself time & rest and hope I get my energy back soon.

Kayleighk profile image
Kayleighk

wow did you go private for all of this? sounds the complete opposite lap experience that i had..!

That's fantastic that your gynecologist is taking the time to work out what they think will now be best for you as well. Your endo sounds very severe and it must be a difficult time for you but try not to dwell on it while you are recovering. I would wait until you are better to decide what to do, as you will be better informed to make decisions.

Just a tip with the breathing side of things make sure that you are always breathing as deeply as possible. After my op, i didn't breathe properly as i was trying to protect my stomach and this backfired on me as a week and a half later i spent xmas eve back in hospital with severe chest pain & breathing difficulties.

Hope you recover well and take care of yourself x

PinkDaisy profile image
PinkDaisy

Thanks for your comment Kayleigh

No, not private, just seemed to have lucked out with a brilliant gynaecologist and team at my local hospital :)

Thanks for the deep breathing advice, I'm asthmatic & wouldn't want any problems with that just as I'm starting to feel better!

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