Diagnosed with new non-invasive procedure: Relieved but I feel emotional

[Butterfly0509]

I have now been formally diagnosed- I scored 0.90008 out of 1 on my test which means I have a very high

After many Gp visits, countless prescriptions of high painkillers, doctors saying it is period pain (no 💩) and my referral pushed for key hole …. I finally have an answer and closer to some physical relief.

Although I am incredibly grateful for the doctors who listened, my wonderful partner who has always been there and unfortunately had to also cope with my flare ups and mood swings and the journeys I have read through healthunlocked….

I still feel I am in a position where I feel incredibly helpless my options are wait use my dose of the pill and my coil or fork out money to get private treatment (which is not really an option as I am a 22 in low paid job).

I thought I took it well which was last Thursday and although I barely slept the night before battling what if they tell me I do and especially if they told me I didn’t- now I know and I am relieved that it isn’t all in my head or a life threatening disease being diagnosed has made me feel distant.

I am currently (of course just after finding out) now feeling intense pain, fatigue since Monday and bloating so much I look 5 months pregnant- I havent had a full flare up since September so feel defeated that just because I know doesn’t relief my pain.

Which I know in theory but subconsciously I thought having a justification and the knowledge how to cope over the last 4-6 years of this intensity that I feel im a pro but trying to explain to people who don’t experience this major inconvenience to my ‘best years of my life’ makes me feel down.

I have therapy for other problems and use to take sertraline but sometimes just writing it helps and just having validation that yep its crap but yeah if there is any advise on online groups or groups to visit in the southwest would be greatly appreciated.

Does anyone who has been diagnosed also feel the same ?

Has anyone else had the new non invasive treatment?

I have uploaded my scores as it helps to understand the negative / positive scoring ☺️

Thank you if anyone has read through this and hope are all well it’s all about the journey 🫶🏻

[endotheline]

Wow. I’m intrigued with this diagnosis. How does it work? And what’s the new treatment?

I saw a post on here yesterday about different waiting times depending on where in the UK you are. Did they give an indication to you even?

I was about your age when I got my first symptoms… it’ll be great if they treat you soon so you can start enjoying your 20s xx

[Moon_maiden]

Hi

Sorry you are going through it all, what you’re feeling thought wise is natural, helps to get a diagnosis but doesn’t change the actual disease. Have they put you on a list for surgery? Make sure if you have surgery it’s with Gynae who knows about Endo.

What painkillers are you taking?

I’d be interested to know more about what the test is, how it works?