what’s the next step?

[Lovethemoon]

hi everyone. So I only managed zoladex for 4 months. To put it lightly they affected my mental wellbeing so much I hated myself on them. As well the severe joint pains and hair issues. I’m seeing my endo nurse tomorrow for a follow up. And I don’t really know what the next step is for me. I had my first period after the zoladex this week. And it was horrendous for the first 4 days. My ovulation was horrendous with pain too. I just don’t know what my next step is. Could I say I’m lucky enough to only have a small amount of adenomyosis growing. I read some of your stories on here with worst cases. My mri before zoladex showed some small changes in the deeper layers of my uterus and thickening to the ligament at the back of the vagina (hence sex can be painful) but they said the changes looked like adeno not endo. I just don’t know if I want to go back on the pill. I get sick of treating all this with hormones! Seems like our only way of treating right now other than surgery! To be honest I’ve got one beautiful 4 year old and don’t think we will have anymore so I’d much rather they take it all away now 😣

[Moon_maiden]

Hi

Zoladex didn’t agree with me either, good for you for quitting at four months, I tried the six. Unfortunately at the moment we only have choice of hormones or surgery, Edinburgh are researching/testing a cancer drug which did have positive results initially. They’ve extended these last year to more women but don’t know when the results will be out. It’s potentially something to hope for.

[EmB18]

Sadly not everyone gets on with hormone treatment. I don't know what else you've tried, but it might be worth trying some alternative therapies to see if there is anything else that helps manage your symptoms. I didn't get on with hormone treatment so went down the alternative therapy route and found that changing my diet to more of an anti-inflammatory diet made a big difference to my symptoms, along with working on managing stress. There are lots of things out there like acupuncture or homeopathy that may help too.