Hi any hydrosalpinx people here

[Sara0102]

Hi is there any hydrosalpinx sufferers on here I'm desperate for any advice please... Thanks

[Scoutybob]

I have one. What did you want to know?

[Sara0102 in reply to Scoutybob]

Hi Hun thanks for Ur reply ... Do u get pain along side it ..?? If so where is the pain .. I have pain in my left pelvic back and sometimes legs ... I think it's more than hydrosalpinx ... My gynae thinks it's endometriosis and yesterday she prescribed me the mini pill

[Scoutybob in reply to Sara0102]

Sorry I should have said, it’s one of a number of issues I have as I have stage 4 endo and also adenomyosis and tethering of organs and bowel involvement so my hydrosaplinx is a result of endo in the tubes I think. So it’s not really possible to understand what symptom is from the hydrosalpinx individually. I do get a lot of lower back pain but that’s fairly typical with stage 4 endometriosis. I’m assuming they are exploring more with you for an endometriosis diagnosis if it’s suspected?

[Sara0102 in reply to Scoutybob]

Yes they are now I had to cry to them in order for them to believe I felt like I was been fobbed off... Gosh u have alot going on... I really hope u get some relief and it all goes well for u...how did they know u have endometriosis ???

[Scoutybob in reply to Sara0102]

I got sent for an ultrasound by my GP which showed what they thought was a tubo ovarian mass plus endometriomas and other bits. So they referred me on again. I had a private ultrasound in the meantime to understand what was going on and they diagnosed severe endo and adenomyosis. I then took that to my NhS gynae referral and they ordered an MRI which showed further detail and bowel involvement. Now waiting for a BSGE appointment and to understand my options for treatment.

[Sunset-lady]

I've got this on top of everything else. Are there particular symptoms relating to this? It's blood in the fallopian tubes isn't it? I just thought it was an extra complication.

[Sara0102 in reply to Sunset-lady]

What's Ur symptoms please and did they pick it.on a ultrasound ,??? Thanks for Ur reply ☺️

[Sunset-lady in reply to Sara0102]

They won't pick this up in an ultra sound as far as I know. You need an MRI with dye to see it properly. I have stage 4 endometriosis, cysts. Adenomyosis and fibroids so I have no idea what the symptoms of this extra complication are but I haven't got children x

[A44M]

Hi, yes I have one along with other endo issues, waiting on a long waiting list for an operation. What’s your question?

[Sara0102 in reply to A44M]

What's Ur symptoms please and did they pick it.on a ultrasound ,??? Thanks for Ur reply ☺️

[Sara0102 in reply to A44M]

I want to know if it's normal to feel pain on the side where the hydrosalpinx is and what Ur symptoms are

[A44M in reply to Sara0102]

It’s difficult for me to differentiate what pain is from what. I have large cysts and endometriomas, I have kissing ovaries and endometriomas on my bowel and pelvic floor, rectum etc., so all pain is sort of merged into one. I do often have right side pain (where the hydrosalpinx is), but I also have the largest cyst on that side too. Sorry.. Unhelpful answer!

They didn’t pick it up on ultrasound but did on the MRI.

[Sara0102 in reply to A44M]

My hydrosalpinx was picked up on an ultrasound ... I don't know what's going on I wish I had some answers it's really killing me to being the dark.. the NHS lists are so long

[A44M in reply to Sara0102]

Yes they are crazy long! What answers are you looking for? About fertility?

[Sara0102 in reply to A44M]

No I have 3 kids n my family is complete.... I want to know why this pain n it's jus not in my head as all hospitals think.... Sadly my daughter died in 2021 and I have massive health anxiety especially after all the trauma down below

[A44M in reply to Sara0102]

I’m so, so sorry to hear that. I can’t imagine what you’ve gone through.

If they’ve diagnosed a hydrosalpinx that could be the pain, I would have thought they’d have picked up on cysts or endometriomas in the ultrasound.

[Sunset-lady]

I think it's more likely to be a cyst if you have pain. Have you had an MRI scan?

[Sara0102]

No.. nor MRI yet .. they want to rescan me with an ultrasound