Advice after clear Laparoscopy: Hi All... - Endometriosis UK

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Advice after clear Laparoscopy

Haneliz22 profile image
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Hi All,

Hope you don’t mind me asking so many questions in one post but here I go 🙏🏻

I had my first laparoscopy on the NHS last Thursday (exactly a week ago at the time of writing this) and it found no endometriosis at all, my dye test came back clear, normal uterus, normal ovaries so I’m baffled! I’ve had ultrasounds, bloods and a colonoscopy and the only thing they picked up on was high testosterone levels and I’m not ovulating. I have no cysts but have had extremely irregular periods for the past 9 years, in the last 9 months alone I’ve bled for 2 months straight, 2 weeks, 5 days, 4 weeks and I’ve gone 4 weeks between bleeding, 5 weeks, 7 weeks etc… before bleeding for 2 months straight I didn’t have a period for 6 months. Sometimes I bleed very heavily (changing a pad every 1-2 hours), sometimes it’s spotting, sometimes I pass huge clots and sometimes its really old black/brown blood. So I meet the test for polycystic ovaries but that doesn’t explain chronic pain I get when on my period particularly when urinating and passing bowel movement. I also get pain in the right side of my pelvis which I believe to be my ovary area, although this has recently happened on the left side too and on my right side under my rib. I suffer with migraines too.

My post op appointment is not for another 7 weeks time but I’m losing my mind wondering what could be causing this if it isn’t endometriosis. Do any of you have any ideas? In recovery from my lap, the surgeon did mention they would have to explore bowel problems and pain management. In addition to this, I’ve never ever been on birth control and after 7 years of unprotected sex with my partner we haven’t once gotten pregnant so I’m really worried about fertility, but because we haven’t yet moved out I just feel that we shouldn’t explore fertility treatment till we’re living together however, as I’m approaching 27 I’m terrified that I am infertile.

My next query is in relation to seeing a specialist as I was seen by a general gynae/obs surgeon so I’m wondering what is the waiting list like if I ask to be referred to a BSGE centre as an NHS patient? Or if I pay for a private consultation for second opinion, what do you think the waiting time would be to have it as an NHS patient through the right to choose? And would I be best going ahead with this now or should I wait to see what my gynae says at my post op appointment?

And finally - I have a slight infection in my belly button wound from my lap so I’m on antibiotics which seems to be clearing it but my stitches are showing no signs of dissolving and I think they’re just aggregating the wound at this point. My GP has actually advised me to remove the stitches myself after the weekend - do you have any thoughts on this as I’m a little unsure?

Any help is soooo appreciated.

Thank you

X

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