Surprise diagnosis, big op looming, scared and relieved

[Macdunc29]

Having suffered since i was 11, but blessed with 3 children, i was rushed to hospital last Wednesday with suspected appendicitis or an ectopic pregnancy following Marina coil 1 1/2 months ago. Turns out i have endometriosis stage 4, adenomiosis and bilateral endometriomas which are stuck round the back of my uterus in a big blob of endometius tissue. My abdominal cavity is filled with tissue and i now need a radical full hysterectomy and abdominal cavity valet urgently by a specialist team as it gave me abdominal sepsis.

I knew about endometriosis as two of my aunts had it and unfortunately were unable to have children. It answers so many questions for me and gives me relief that the suffering i have gone through my whole life actually has a reason. Before i would plough through the most excruciating pain, sickness, fainting, tiredness, immune responses, bowel issues, bladder issues, pelvic pain, the list goes on, and be told to take painkillers and use a hot water bottle.

I am so blessed to have my 3 miracle boys, as the consultant confirmed, but i am shocked and petrified. They kept asking if i had any questions but i am so shocked i don't know what to ask. Half of me wants to research and be prepared as i can, but half of me wants to ignore it until i have to.

I feel so bad knowing the devestation this condition caused my aunts yet i have my children and i know that the operation, once i've healed, is likely to change my life in such a positive way, but at this point i am not sure how i feel.

Any advice or examples of questions to ask, support available would be most welcomed.

[AdeleG4192]

Hi, ive just seen your post and wondered how things are? Have u had the op yet?Im in the dilemma also of considering a radical hysterecomy, I only have one ovary anyway after having my right one removed during my last surgery.

Ive only spoken to my GP this past week, shes referred me back to my surgeon, so its obv too early to hav heard anything yet.

Im just trying to go through my options.

[Macdunc29 in reply to AdeleG4192]

Hi, i have been refered to a really fantastic surgeon but not had an appointment through to meet with him yet. Although my op is urgent it is not life threatening so i could be waiting a while.

I know what they will be aiming to do but not the details. I am going through a flare up at the moment and i feel like i just want it over and done with, but then it calms down and i flip flop back to being scared.

I am still quite shocked and confused about the whole thing