Perfect periods to misery in 1 year. Will... - Endometriosis UK

Endometriosis UK

70,734 members52,159 posts

Perfect periods to misery in 1 year. Will I be taken seriously?

budgeroo profile image
1 Reply

Sorry for long post.

I came off the pill (Ovranette, which I'd been on for ~7 years) as I thought it was making my skin bad. I was fine for about 6 months, and then my periods got weird. The time between them was becoming more erratic, and my bleeds lasted longer (10 days as opposed to normal 4-5). I wasn't really worried at this point, I just assumed this was my natural rhythm kicking in.

I experienced period pain for the first time ever aged 26 in December (crazy, huh?) which I actually initially thought was gut pain related to IBS/coeliac disease, as it was new to me. After that, every period was painful and long, to the point where my bleeds were lasting longer than my breaks.

I went on a new pill (Gedarel - supposedly good for skin) which messed up my cycle completely. I bled more, had loads more pain, and had permanent nausea, and was sooo emotional. At one point I bled for 5 weeks continuously. Was a miserable wreck, my work was struggling, using double protection just about cut it..

I stopped Gedarel and was given Noriday and Tranexamic Acid. Doc mentioned Endo at this point, but wanted to see how I progressed. Since then, I have been having breaks from the bleeding, but on average (after 3 months) I bleed for about as many days as I don't, and there seems to be no pattern or predictability. My "Flo" app has stopped predicting my periods because it's that random. I don't know which bleeds are periods, and which are breakthrough bleeds or whatever else is going on.

My pain is pre-, during, and post-bleed, and sometimes randomly through the month. More recently, slight pain with sex, and pelvic pain and bleeding for a few days after. Bowel/rectal pain at same time as bleeding. Sometimes I get cystitis symptoms (but with no detectable infection). Bleeds are varying colours and usually clotted.

Saw doc last week and he has re-prescribed Noriday and said if I feel like I'm not coping with medication alone, that he will refer me to a Gynaecologist to investigate for Endo by surgery.

Is it weird/unusual to go from completely normal/healthy periods, to Endo diagnosis within just 1 year?? Has anyone else experienced this?

Could it be that Ovranette had been holding Endo back all those years?

Will Gynae take me seriously, as my symptoms are still kinda new?

Written by
budgeroo profile image
budgeroo
To view profiles and participate in discussions please or .
Read more about...
1 Reply
Nina1980 profile image
Nina1980

I went from normal periods to having problems in a matter of months. I did however have painful periods but manageable with paracetamol and ibuprofen since I started periods. I knew I had problems when I started to bleed excessively and pain increased and developed IBS symptoms.

You may also like...

Left ovary pain 1 week after period

week after my period). It is an aching pain that last usually a week or so, sometimes longer. I...

First period after laparoscopy, in serious pain.

I hadn’t bled for almost 2 years - I had all the other symptoms of a period just no bleeding, my...

Unusual period (for me) - should I be concerned?

mirena coil fitted which caused constant bleeding and terrible pain - it took me 11 months to get...

Where can I go to be taken seriously? Anyone know of any good places to be treated?

relieve the pain and was discharged this morning with just paracetamol and codeine (which won't...

Anyone any experience of Endo returning after having Mirena coil fitted and no period for 3 years?

rather than a Hystorectomy, periods halted after six months, with just a light break through every...